Hello. How's your day going?: Hello If you're new... - Mencap

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Hello. How's your day going?

Sarah_Mencap profile image
9 Replies

Hello

If you're new here (I can see lots of new names) please do say hello. It doesn't need to be your life story - just a quick post to let us know how you are getting on and maybe a bit about why you are here.

If you've been on here a while we'd still love to hear about your day. Let us know what is going well, or what isn't. We don't mind if you just want to let off a bit of steam.

Best wishes

Sarah

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Sarah_Mencap profile image
Sarah_Mencap
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9 Replies
crazysquirrel profile image
crazysquirrelModerator

Ok. Here goes. Bad points so far - I've got a cold and I could do with a sleep. Good points - it is a beautiful day and everyone went off to work/school happily. My plan is lots of tea and biscuits for the rest of the day.

PS I love the blue bird photo.

jow2319 profile image
jow2319

Hello. My adult brother has a LD. We're getting on a bit now (enjoying middle age). I'm so pleased that he is well and happy, but I do worry about how best to support my parents. I'm here just to see how other people deal with LD, and to learn new things. I have realised that my experience is very different to other people's, and the LD is a very broad term.

I like the idea of sharing how your day is going. Sometimes it is good to hear from other people.

Today is a good day. Sunny. No emergencies.

My friend sometimes sends me quotes that are positive (she also sends me videos of animals). Some quotes are a bit corny, but I do quite like them. Here are a few:

“The good life is a process, not a state of being. It is a direction, not a destination. ”

Carl Rogers

, Psychologist

“Every day may not be good... but there’s something good in every day.

Alice Morse Earle,

American Historian

If I cannot do great things, I can do small things in a great way. Martin Luther King Jr.

Enjoy

Jo

BlueberryYellow profile image
BlueberryYellow in reply tojow2319

Hi

I have just put my first post on the forum. Never done anything like this before. I actually joined because I have a son with Asd ADHD and mild learning difficulties among other things!!!

I am replying to your post because I too have a brother with learning difficulties. We are both in our 50's and he lives at home with my parents. I fear for him when my parents aren't around.

Is your brother still with your parents and have they made any plans for the future?

Love your quotes by the way. I am a positive person who tries to find good in everything and enjoy being around positive people.

Sarah_Mencap profile image
Sarah_Mencap in reply toBlueberryYellow

Welcome BlueberryYellow . It is lovely to have you here.

BlueberryYellow profile image
BlueberryYellow

Hello,

I am mum to 21 year old son. All the decisions I have made for him as a child were done with his best interests in mind at that time. I haven't always got things right and sometimes there isn't any right or wrong answer.

He doesn't fit any one profile so his list of difficulties read ASD ADHD MLD Tourettes and Anxiety which has led to Psychotic episodes at times of crisis. He is a vulnerable young adult.

He has a girlfriend (who has autism and learning difficulties) and wants to have sex with her. He has had sex education and is aware of consent and safe sex. He has asked me and his dad can his girlfriend come so they can do it.

I agree that every person should have a right to have a relationship. As a bystander this is easy to agree with but as a parent I am struggling. It's not that I don't ever want him to have a sexual relationship but am not sure if he is ready and fearful of the fallout from the experience.

Is there anyone out there who has had a similar experience and would like to share???

Frumpyfish profile image
Frumpyfish in reply toBlueberryYellow

hello.

You must have a great relationship with your son if he is so open with you. I think that most parents struggle a bit with this if they are honest. It is very hard to know when someone else is ready, and even if they are - if they are with the right person.

It might just be a matter of supporting him and hoping it isn't too toe-curling. On a practical level, you probably can't stop him. and you don't want this to be something he tries to hide or feel ashamed of.

There are lots of things online that might help. There is some on the Mencap website, but also -bild.org.uk/resources/relat...

I also found this PDF mencap.org.uk/sites/default...

Good luck

Frumpyfish profile image
Frumpyfish

Hello

I'd just like to say that it is very easy to feel overwhelmed - but it is good to have a place to hear what other people are going through. I find it really helps me feel less isolated. I don't post very often, I ususally just read other people's posts. I particularly like some of the chatty posts - where it might not be a direct question. again, it helps.

I also find it helps to talk to real people (not online). I have got much better at talking to people I don't know well. And being more honest about how I feel. This has really helped. It is silly but it just feels good to get stuff off your chest. I have found some other parents who I can talk to. They aren't in exactly the same situation as me, but they can empathise.

Thanks

Hello Sarah 👋🏻

Sorry I’m late to the post - that’s because I’ve been poorly. Since I was a teenager I have experienced severe vertigo which results in what’s called a “drop attack” - falling to the floor because my world won’t stop spinning. Up until recently my consultants believed it was Meniere’s Disease but 7 years ago things got a lot worse and i was eventually diagnosed as having the auto immune disorder Wegener's Granulomatosis (a mouthful to say! 😝). There is no cure and I’m gradually coming to terms with what it means for me (no driving sucks).

Anyway, I just started feeling better so I wanted to pop in and say hi to everyone and hope the rain isn’t spoiling everyone’s day? My son LOVES to trampoline in the rain and so I stand under a big golfing umbrella and keep an eye on him ☔️ and cheering him on.

Happy Friday everyone 👋🏻

TTT x

Sarah_Mencap profile image
Sarah_Mencap

Hello - I hope you're doing ok today (even in the rain). My mum gets attacks of vertigo so I understand how awful it can be. Trampolines are wonderful for occupying children (and adults). We also have one that gets used in all weathers. Keep up the cheering, then bob inside to warm up. Best wishes, Sarah

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