Seeking Tagrisso buddy

[Kellye28]

Hi all,

My mom (65, diagnosed this summer with Stage IV NSCLC) is looking for someone who also has the EGFR mutation and is taking Tagrisso and would be interested in connecting with her for support. If that's you, please feel free to reach out! Thank you so much. <3 Kelly

[Pessa]

Lungevity.org has weekly and monthly Zoom groups for people with lung cancer. They have general groups and a specific one for those with EGFR mutations. Go to the website to sign up.

[Kellye28 in reply to Pessa]

Thanks so much Pessa. Hadn't heard of that one yet.

[Bow-19]

There is a group called EGFR resisters worth googling it and joining too. Wishing your Mum all the best x

[Kellye28 in reply to Bow-19]

Thanks Bow! I heard of that one. Wasn't sure it was appropriate since she is technically not resistant to the treatment at this time. Guess it couldn't hurt. I'll look back into joining.

[Bow-19 in reply to Kellye28]

Nothing to lose by joining. I find the ALK Positive one excellent, people with different stages of cancer there and all welcome. It’s a place where everyone supports each other

[Bow-19]

google.co.uk/url?sa=t&rct=j...

[Kellye28 in reply to Bow-19]

Thank you!

[Miranda_GO2 Partner]

Hello Kelly! Does your mother live in the US? We have a Phone Buddy Program where we can match her with someone if she is interested. She can just call our Helpline 1-800-298-2436 and we can talk about options for matching her.

Here is the link to the Phone Buddy website: go2.org/phonebuddy

[Kellye28 in reply to Miranda_GO2]

Hi Miranda, thank you for reminding me of this. I know you had mentioned to me this past fall. I'll pass this info onto her again. Appreciate it!

[Momchach]

group called “ Tagrisso Patients and Caregivers on Facebook

[Dollybrad]

There is a group on FB specific to EGFR. EGFR Resisters!

[towardsthelight]

Can someone say what EGFR "Resisters" are? Do not want to take the recommended treatment (in my case chemo followed by Tagrisso), or, the body rejects the treatment, or? Thanks! New to all this as of last month, Ellen in Washington DC