I'm trying to find anyone who has had a ground glass diagnosis or knows about it
Ground glass: I'm trying to find anyone... - Lung Cancer Support
Ground glass
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Twotimesurvivor
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My oncologist just informed me that my ground glass opacity in the lower right lobe is probably evidence of an old infection such as pneumonia or bronchitis. I've also read that it could develop into an adenocarcinoma, but since mine has been stable for close to 18 months, I shouldn't be concerned. Hopefully my next CT scan shows no change.
Rick
Thanks mine was just found never showed up before. It’s 5.3. X 3.0 cm & I’ve had a chronic cough for a few months. I have another CT scheduled for Feb 1. I’m worried because I know that if it’s a 3rd cancer surgery is not available. I’m not so sure I would want chemo or radiation
I have found that some radiologists are more thorough than others. One found a small nodule in a ct scan. The radiologist reviewing the next scan stated that the nodule was not observed. The radiologist who reported on the third scan stated that there are two small nodules in all three scans, but there is no change in size. Of course the most important thing is that nothing has increased in size.
I wish you the best on your next scan.
Rick
Thanks
You are welcome. I'd have Michele respond directly to this post, but thought a call might be more productive.
Thank you
I know how you feel about chemo and radiation, but this is my 5th primary cancer and one thing I have learned is that things are very different now! There are so many different chemos and meds to help with the side effects. And radiation is just a matter of spending the time doing it. Some of us have to do the dreaded 6 weeks, but having done it more than once, I can tell you that it seems impossible at the start yet at the end you wonder where the time went. I was lucky with one of my lung tumors - they did a mega dose of radiation and killed it in just one session. So I'm strongly encouraging you to talk to your oncologist and express your feelings, but don't cross out chemo and rads until you know what the oncologist has to offer. Our lives are so important, especially to those around us!
Are all your primaries in lung? I can’t imagine how you held up. Thanks
Hi. No, all the primaries were not in lung. I've been battling cancers since 2002. Liver, Right breast, ovarian, left breast and now lung. I wrote to you because over the years I have seen such dramatic changes in cancer treatment! For example, when I had rads for the first breast cancer it was not possible to pinpoint the tumor, so there was scatter that damaged my heart and lung. 5 years later when the 2nd breast cancer happened, they could pinpoint the radiation and completely minimize the damage to the adjacent area. BIG change in how they did things, and it was only 5 years between!!
Please never give up and talk to your oncologist before making any decisions - they can often change things up so that your concerns are met with treatment.
Lauri-Anne
Bless you for your courage
Most days it isn't courage - it is just doing what has to be done to stay alive and have as good a life as possible. When the time comes that life turns really ugly, then we can talk about courage. Til then just keepin' on moving forward!
Lauri-Anne
I have ground glass opacities which were residual after having had pneumonitis. I've had it in both lungs and it moves around but it has not been anything serious for me it kind of comes and goes and started after each bout of pneumonitis.
My husband also has had ground glass opacities showing up in his CT scans. His doctor is not too concerned and we will just keep an eye on it. From what I've read it can stay like that for years and never amount to anything serious. 🤞
Thank you
If you would find it helpful, please call our patient support line 650-598-2857 and ask for Michele Zeh. She'd be happy to give you more information and connect you to other resources/experts.
Thanks
