Newest test result: Hi, was hoping... - Lung Cancer Support

Lung Cancer Support

4,067 members2,215 posts

Newest test result

gibdonnalee profile image
gibdonnaleeCommunity Superhero
5 Replies

Hi, was hoping someone could help me understand my latest chromogranin result.All my other ones were labeled chromogranin with a number to compare with the normal one, with normal being 15, mine has been marked high at 23.

Now this months is labeled Miscellaneous, with normal at 93 and me at 140. This has me a wreck, it will be Monday before I can call the Doc. I know, I'm probably over reacting, but have also been taken sick on and off again with the CNS.

Written by
gibdonnalee profile image
gibdonnalee
Community Superhero
To view profiles and participate in discussions please or .
5 Replies
ThePurplePlace profile image
ThePurplePlace

That is not a test I am familiar with, nor one that has ever been done for me. I have Stage IV NSCLC (Adeno).

I did quickly look it up (since I had never heard of it) and it is a test that is sometimes used as a tumor marker, but again, it's not one I have heard of or one that has ever been done for me. I have Lung Cancer and there aren't any tumor markers (tests) that work for us all in Lung Cancer, so my Oncolgist stopping running them on me.

I would try not to be too concerned, there are lots of variables in test results and until you understand what this is, no point in getting upset -- I know that's easier said than done -- but try to think positive.

Best wishes!

gibdonnalee profile image
gibdonnaleeCommunity Superhero in reply toThePurplePlace

Thank you, Purple Place. Your right I shouldn't jump to conclusions. I'll just call tomorrow and get an answer.

gibdonnalee profile image
gibdonnaleeCommunity Superhero in reply togibdonnalee

Oh, I also have lung cancer, had middle lobe removed, stage 4. I get a shot once a month of Sandostatin .

ThePurplePlace profile image
ThePurplePlace in reply togibdonnalee

Good Luck! I totally understand how hard it can be to have to "wait" for answers, especially when you are battling such serious illness.

Sandostatin is also a new "drug" treament to me -- two new things I've learned in one day? Interesting.

I have Stage IV Non Small Cell Lung Cancer and my lung tumor has been treated with Chemo (Carboplatin and Pemetrexed), and later with Radiation and then Immunotherapy (Opdivo). I'm happily now stable and doing well -- 2 1/2 years since my diagnosis.

You lab tests and treament are both new to me, but I'm always trying to learn about all the treatments and options that are available and realize that they are not the same all over the world. That's why I wondered if you may be in a different country or have a different type of Lung Cancer?

Either way...good luck tomorrow and hope you'll feel much better after you meet with your Oncologist and have the answers to your questions.

~Lisa

gibdonnalee profile image
gibdonnaleeCommunity Superhero

I think a person could learn something new daily on this site.

That's great you've been stable for all that time. I've been in remission twice for a short time, was diagnosed in at the end of 2013, with Carcinoid lung cancer, had my middle lobe removed.

I live in Pennsylvania, where are you? I will post what I learn tomorrow, keeping fingers crossed!Thank you for the well wishes !

Donna

Not what you're looking for?

You may also like...

Update

Hi all, I haven't been here much, been kinda bummed out. I am out of remission, chromogranin going...
gibdonnalee profile image
Community Superhero

fit-to-fly' test which simulates flying conditions

Last week i had a fit-to-fly' test which simulates flying conditions to see whether or not...
Guy59 profile image

See. Test. Treat.

This is a free cancer screening event sponsored by a national organization of the same name. It’s...
Denzie profile image
Moderator

Any advice or insight would be greatly appreciated

Hello, I’m new to this. My mom was diagnosed with stage 2b lung cancer. She had lower and middle...
Getalife18 profile image

Wiped out

Is there anyone out there that is in bed? I have no energy. I was fine until about 8 weeks ago. Now...
Enjoyabull profile image

Moderation team

See all
AmyKamp profile image
AmyKampAdministrator
SarahMcHale profile image
SarahMcHaleAdministrator
Maureen-GO2 profile image
Maureen-GO2Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.