Hello. I have Milroy's disease and was wondering if anyone Else has ringing in the ears like me Thanks and peace! Kent :{ )-

[Golfislikelife]

[Emma1966]

YES!! my sinuses, ears, nose have all been really bad for around the last 4 years or so, and more recently my ears have been blocked on one side since before Christmas and with loud ringing in my ears. am wondering if the lymphatics in my head are damaged and making this constant infection

[ofcourse]

Hullo yes - both my mother and

I have it. I think it's just a variation

of primary lymphodema to do with early onset. I've not heard of it being connected with blocked sinuses. She and I went to

to St George's hospital where they were doing a study of the genetics of inherited lymphodema

( which this is) there is a particular

gene responsible which we both

have ( a professor Childs did the

study) she told us it's connected

with 'sausage toes' which my

big leg has and two rows of eyelashes prone when young to

ingrowing - which I had. Apart from this its primary lymphodema

in the leg (s) which we control

with hosiery,MLD, and for the

last few months helped very

effectively with 'lymphapants'

(From Body Brilliant) All the

best Shula.

[ofcourse]

PS from Shula (queryit) as a matter of fact I am bothered by

ringing on the ears and one

blocked ear, but my mother who

Also has milroys isn't - I've always thought it's just 'one of those things' suggest golfislikelife

you can call professor childs at

St George's who did the study

I mentioned on the genetics of

inherited lymphodema and ask if

blocked sinuses were part of the

Condition. Or maybe the study is

written up somewhere? Thank you for pointing it out. I'll try and

chase it up too! Shula

[Ginsing]

I have terrible trouble with ringing in the ears thought it was just tinitus