Primary sclerosing cholangitis

[Jhol77]

Hi, my 16 year old daughter was diagnosed with PSC at aged 14. She was originally being treated for anorexia and a blood test showed an anomaly with her Liver, she has had lots of blood tests, X2 Liver biopsies, numerous ultra sounds and X2 MRI’s. In her last MRI it showed strictures of her bile ducts, the hospital have said not to worry to much and just to monitor the situation, she has had one further blood test and they have said she does not need further MRI or tests till maybe next year. I am worried as I don’t know if they should be monitoring more than this. Does anyone have any experience of PSC?

[LIVErNORTH1 Partner LIVErNORTH]

Hi - we can ask specific questions of our medical advisors if you would like us to but our colleagues in PSC Support may be able to answer you more quickly: pscsupport.org.uk/