Advanced prostate cancer here - LGBT Cancer Commu...

LGBT Cancer Community

Advanced prostate cancer here

Troutwerks profile image
Troutwerks

Was diagnosed in June 2015. Have had radical prostatectomy, have had Zolodex injections, radiation, etc. currently on a clinical trial drug. Would be interested in hearing from others who have experienced similar.

7 Replies

Tell us about your clinical trial. What does that entail? What was your PSA and Gleason score at diagnosis? What is it now?

Troutwerks profile image
Troutwerks in reply to cfrees1

Hey. PSA was 12.7 and Gleason 10 at diagnosis. After radiation PSA dropped to 0.8. That was last May. By August I was at 8.3 and in November over 17.

I am on a clinical trial being held by the BC Cancer Centre in Vancouver. Abiraterone is the drug I am on. Side effects have been tolerable so far. Will be going in for blood work, CT scan and bone scan in the next few days for follow up appointment w my oncologist next week.

cfrees1 profile image
cfrees1 in reply to Troutwerks

Ah, that's rough. I was diagnosed in Nov 2015, PSA was 89, Gleason 4+5. I had an open prostatectomy and then started on Lupron 2 months after surgery. I had a Decipher test to look at my genes. Seems I was pretty high likelihood of future problems(40% chance of 5 year recurrence, 20% chance of 10 year cancer-specific mortality) so that led to adjuvant radiation as soon as I was sufficiently healed from surgery. Post surgery PSA was 0.06 and most recent was 0.04, so room for optimism I think. I expect to be on Lupron for 2 more years. If I don't see a PSA rise in that time, I'll go off Lupron for a while until my PSA starts to rise again. My best hope is that I can survive long enough for some treatment options to get approvals.

You're not alone. :)

Please keep me posted. I'll see my latest results on the 18th. Good luck!

Darryl profile image
DarrylAdministrator in reply to Troutwerks

You're definitely not alone. Many of us here are wishing you great results back on the 18th. Do post those if you're ok about that

Darryl profile image
DarrylAdministrator

Also, there is an advancedprostatecancer and gay men and prostate cancer community here on Healthunlocked too

Troutwerks profile image
Troutwerks in reply to Darryl

Good to know. I will check that out!

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