It's working!

[Michelemybell]

So excited! After 20 years of CFS feeling better on LDN after 35 days. Cleaned my room for the 1st time in the last year. I am more clear-headed, hopeful, energized, and motivated. My sleep is a little messed up-waking up around 2am going to change dose from before bed to when I wake. Most hope I've had in so long. I can start living again!!!

[aredtigress Administrator]

Michele,

Wonderful news, thanks so much for sharing!! A month isn't very long on LDN, I hope you continue to see benefits as time moves on.

Sleeping issues can pop up on LDN. Here's some great advice: From Pharmacist Suzy Cohen: "Melatonin-For many night-time thrashers, it’s a question of how much melatonin you secrete from your pineal gland. Melatonin production can be augmented if you supplement, because the pills (or sublingual sprays) get absorbed into your bloodstream and trigger the same sleep reaction as if you had made the hormone yourself. Fluoride can harm your pineal gland, which is supposed to make melatonin. For some, melatonin supplements are highly effective. For others, it must be combined with glycine, hops, valerian root or kava. I always suggest low dosages, about 0.2 to 0.3 mg per night, but you will find many supplements containing more. Be very careful with yourself, this is a hormone. Too much melatonin and you will suppress cortisol to the point that you feel bad getting up every morning (when cortisol is supposed to be peaking). That said, melatonin has a widespread (wonderful) effect on the immune system and specifically awesome for people with auto-immune disorders and chronic infections."

Hope this helps! If not, many patients find morning dosing works almost as well as night.

Michelle