Fibromyalgia -- Reduction in Pain!! - LDN Research Trust

LDN Research Trust

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Fibromyalgia -- Reduction in Pain!!

CindySiegelShepler profile image
5 Replies

LDN has helped reduce my fibro pain more than any other medication or treatment I have ever tried. And I tried everything!!! Pain clinics, trigger point injections, every alternative therapy available - nothing even came close to providing the relief that LDN has. I hope one day that every fibro patient will know of LDN and have the opportunity to try it. (I also love GYROTONIC as a form of movement for fibromyalgia!)

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CindySiegelShepler profile image
CindySiegelShepler
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5 Replies
TulipRose99 profile image
TulipRose99

Hi Cindy,

I totally MUST AGREE with you. Fibromyalgia is forever, but LDN has made sleep so wonderful again. I am an advocate for LDN and try to explain,that flareups will happen, but cut by about 50%. Flareups last a few days vs a few months.

What a wonderful feeling to leave the couch and have your life back. Everybody could enjoy that.

Hugs ❤️

CindySiegelShepler profile image
CindySiegelShepler in reply toTulipRose99

Fantastic, TulipRose99! It is great to hear about your reduction in flare-ups from LDN! Have you seen the Stanford fibro study? With such a successful study it is sad that more fibro sufferers don't have knowledge about LDN.

TulipRose99 profile image
TulipRose99

Hi Cindy,

It's incredible that you mentioned the Stanford Fibro Study ! After over a year of searching and finding Cymbalta(didn't help me), Savela and Lyrica, I really got frustrated. My son, who is a surgeon, graduated from Stanford School of Medicine.

Until my emails to him, he too, never heard of Fibro. I went to Stanford , sent to drug studies, typed in Fibromyalgia and found LDN. I was upset that it was approved and patented years before. I was able to start it within 2 weeks.

I also saw the video about what Fibro is and hope to meet Dr. Younger when I visit my son.

I go on Twitter and Pinterest to spread the word. I also am volunteering with LDN Trust, by calling drs in the U.S. To see if they want to be listed on the site. I believe in talking to people and most either have Fibro or family members do. I'm a walking

Tribute to this wonderful drug.

Have a beautiful weekend.

Hugs

CindySiegelShepler profile image
CindySiegelShepler in reply toTulipRose99

Wow! We have a lot in common. I am also a volunteer with the Trust and have called some doctors in the US! Quite interesting to speak with the docs! I have learned a lot by making those calls. Please let me know if you meet Dr. Younger. I saw on a PubMed search that he attended school in my neck of the woods. Thank you for continuing to spread the word about LDN. We need to keep it up. <3

DeirdreCB profile image
DeirdreCB

Hello Cindy, hoping you see this and reply, I am desperate for improvement in fibromyalgia, have been in flare for over 2 years, diagnosed 10+ years ago, my GP and Rhuematologist dismissed LDN instantly. I need to get my life back, I will keep trawling these and other websites but the 'rabbit hole' is so time consuming and my energy is so limited. Wondered if you could direct me to some good resources I can use to verify use of LDN as legitimate Fibro treatment to use with my physicians, or info on LDN treating doctors ( anywhere but also in Australia) ? Thank you very much

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