I'm an ITP Patient since 6 months.the count was 10.how long can a itp patient live.can I drink alcohol. My count keep up & down frm160 to 10

[hifi]

[Lynnek]

Hello Hifi. I am 48yrs & have been diagnosed with ITP for 7 years and I intend to be around for many, many more. I live life to the full and enjoy socialising with family & friends. Alcohol is a blood thinner and large quantities will affect your ITP. Binge drinking is never a good thing for anyone but with ITP you have to be very careful. A couple of beers or glass of wine should not cause any major problems but do not drink a lot for the following reasons..... 1) alcohol thins your blood. 2) falling while drunk can cause serious injury - cuts, bleeding in the brain etc. 3) a common symptom of ITP is fatigue, excess alcohol will affect your 'get up and go' and can last longer than ITP free people.

You know your own body. Don't stop enjoying yourself. Be aware of your condition. Don't binge drink. STAY SAFE x

[NickyD]

Hi Hifi don't let ITP rule your lie. Many people with ITP have full lives. Listen to what Lynnek says about drinking alcohol. It is good advice. Just be careful. I had a count of Zero platelets and my consultant said that I would not be able to do any kick boxing for a while! You live within your capacity. Just be sensible. Take care. Nicky

[hifi]

Thx nicked actually I have stopped the prednisone and revolade as directed by my haematologist. Now I'm only on Dapsone 100mg 1 daily. My count was 1.58 lakhs.and after stopping the tablet of steroid within 15 days it came down to 56k on 8th May. I had a travel plans to Thailand for 7 days on 13th as per the advice of my doctor I had the count again and it was 54k. And he suggested u can travel now I'm back and there is a follow up on 27th May. Hope all goes well.

As discussed I'm not a regular drinker.i take occasionally twice in 10 days. Either 2 large of scotch or a bottle of beer. Is that k.

[sailor]

Hi Hifi,

The short answer is, you can live a long and near normal life but be aware of the dangers and especially aware if you bleed.

I am nearly 70, had ITP for 20+ years, have travelled all over the world for work, enjoy a drink or three and for the last 12 years have enjoyed a steady count around 10 with only medication necassary for surgery. I have just undergone a quodruple heart by pass three weeks ago for which I had medication to raise the count to a safe level. I have now stopped medication and my count has reverted, the last test was 50 a few days after the operation. It has probably lowered since then

If you are a bleeder, then you will need to be guided by your hemo.

ITP is a funny condition, but it is not the end of the world, just modify your life style and do not put yourself in dangerous situations if these can be avoided. i.e. I gave up skiing!!!!

Keep smiling, a lot of sound advice in the replies.

[hifi]

Thanks sailor.As I'm 30yrs male.and have a son 16 months old.hence worried about my lfy and his future.

[hifi]

Hi all today morning after my break fast I noticed a small purpura patch on my lower lip . immediately came to the hospital gave a blood sample for platelet count and hemograffin. Awaiting for the reports. They discussed if the platelet count is below I need an admission. Now I'm worried I don't want an admission. Praying for god.

[hifi in reply to hifi]

Admission if the count is below 20000.