I have hughes but mild hemophilia as ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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I have hughes but mild hemophilia as well. does anyone else have this or heard of this?

lovemyheart profile image
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lovemyheart
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jessielou profile image
jessielou

Hi lovemyheart

Welcome to this site. Im glad you found us.

I have aps, fibromyalgia and lupus symptoms overlap. I don't know much about thehaemaphelia. Im sure someone will be along that does, so many conditions that go along with aps.

I hope you feeling well and things are under control.

Take care, gentle hugs jessielou xxx:-) :-) :-)

Hanna profile image
Hanna

Hi love my heart I hope you find what your looking for. Take care xxxx

paddyandlin profile image
paddyandlin

Hi Love my heart i hope you find someone else who has the hemophillia but as a starting point did a bit of reaserch and found this group that might also be useful for you.

uk

haemophilia.org.uk/

america

hemophilia.org/NHFWeb/MainP...

hope it helps and happy to help if we can.

paddy

Have they said what type of hemophilia or is this caused by the APS? APS can be a clotting as well as a bleeding disorder as it can affect platelets and cause bruising and bleeding, a side effect I get a lot.

lovemyheart profile image
lovemyheart in reply to

Hi Kristina. I was born with the hemophillia and acquired the primary aps. Been to many drs. no one knows what to do other than to keep me on the baby aspirin. I just feel like its not enough

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