mum has hughes, im 45, last 2 yrs had ibs symptoms, roaming head + body pain, bouts of feeling all my energy has drained, should i get test?

[coo67]

[MaryF Administrator]

Hi there, no harm in getting the tests done especially if you have it in the family, even if just to rule it out, please also be aware that Thryoid problems, also Sjogrens also can tend to come with this disease. Also some people have a host of other autoimmune conditions. Please find here our Hughes Syndrome Foundation website, with the tests clearly shown, that need doing, plus a UK data base of clinicians who understand the condition, if not in the UK please let us know. hughes-syndrome.org/

Mary F x

[coo67]

thanks Mary, love the pic