Currently, I'm going to bed with Raynaud's. My hands look grey, bordering on blue. But when I wake in the morning, my hands are OK but my cheeks are flushed in a malar pattern.
Is this common? And what's the explanation?
I have Hughes and SS but have not been diagnosed with Lupus (tho I wonder if it's brewing).
Hi there, hope you manage to solve your puzzle, it may be that you are warming up in bed, and do check out whether you have changed any fabric conditioner or washing powder of late, and perhaps get a blood test when next at the rheumatologist.. as my systemic lupus has only just decided to show up in a test! Despite clearly having it for years. Mary F x
MaryF, that's so interesting you've finally been diagnosed with SLE. That's good - in our weird way of thinking! I'd lay odds that's what'll happen to me one of these ol' years too.
Meanwhile, still not sure what's going on with the hands/cheeks, tho I strongly suspect somethng chemical/organic rather than environmental/behavioural. Even when I'm sitting 'still' at night watching telly, I'm nearly always knitting, so hands are constantly moving. Who knows? Another mystery to add to the list.
Lots of investigations coming up over next couple of months so maybe answers will emerge. Maybe!
Why aren't my legs working properly?
Cerebral APS just getting worse a rant
Bruising of Fingers
Possible Hughes?
Don't know what is wrong but feeling the heat worse than hot flushes!
