Just saying Hello....

Well....today is a dreary old day. It is raining and dark and cold. I guess our little bit of summer weather is over for now.

I thought I would write in and just talk about how I am doing and feeling during my treatment. As you may know, I am just ending my 6th week of triple therapy, Incivek, Peg and Riba. The first week or so was pretty good....wouldn't even know I was doing treatment. Ever since about the 2nd week of treatment I have been experiencing a lot of side effects. Pretty much every single day I experience nausea. It just feels like my stomach is upset and there are times when I really feel like I might vomit. I have not done that yet, but it is just the feeling. I also get a slight headache with it and feel like I should be lying down. I guess this is what they call the "flu like symptoms". From what I understand it is mostly from the injected Interferon. This is pretty powerful stuff and most people get this sickness for about 2 days after the injection. I do my injection on Thursday evening and usually Friday and Saturday are rough days. By Sunday and Sunday afternoon, I am not feeling so bad. I find that during the week, when I get this sick feeling, if I eat something, it tends to get better. I'm not sure why that is, but when I feel really sick, I'll go out and get a little snack, just something to make me feel a little full....that will make the sickness go away for a little while.

Yesterday I had a serious bout of diarrhea...sorry! I hate to be graphic, but it was pretty bad. I started to get pains in my stomach area and it was very bad. I wasn't sure what it was and was getting a little worried. The pains were getting real bad and I finally realized I had to go to the bathroom. Well......I was there for a while. It took pretty much the rest of the day to get over this. I made sure I was drinking lots of water....so important. By the evening I was feeling okay and it had stopped. Today I do not have it and I'm hoping it was something that might not come back for a while.

I continue to be able to have pretty good nights. I don't find that I am having trouble sleepiing. I know a lot of people doing this treatment find they have insomnia. This may come later for me, but for now I am able to have a pretty good night's sleep.

I have been told that these drugs build up in your body. This is the reason why most people don't experience too many bad things in the early days of treatment. It seems that as time goes on and we continue to take the meds, we experience more and more sfx. I am always wondering what I will experience today. So far I have not had anything that I would consider to be really terrible. I hate, hate, hate taking the Incivek....the reason being that I have to eat so much fat with each dose. It is a challenge to come up with something three times a day that contains a minimum of 20 grams of fat. That is just the minimum the drug company suggests. You should really eat more than that....at least 25 to 30 grams. I have been doing "shots" of olive oil. I measure out 2 Tablespoons into a shot glass and down it!!! I'm thankful that olive oil doesn't have much of a taste and it is easy going down. The only problem I have with this is I am getting sick of doing it. I need a change from time to time. I have been eating the premium ice cream with lots of fat and sometimes a very large cookie from Starbucks that contains about 26 grams of fat. I must remember to never, ever eat these once my treatment is over!!!!!

Well, that is about it for me. I continue to take my meds and do everything I'm supposed to do. As you may recall, my 4 week lab report showed that I am now Undetected for Hep C. That means that I do not have any Hep C virus in my blood. It is also called RVR. I am very lucky to have achieved this and I am so thankful. My next appointment will be my 8 week check up and I will have my Viral Load tested then. I expect it will continue to show Undetected. At this rate, I should be able to complete my treatment in 24 weeks and obtain SVR. That will make this whole nightmare worth it.

I will say bye for now and hope that everyone is well. I haven't heard from anybody for a while and assume that all are busy but staying well......

I will write my next blog when I go for my next appointment and get my newest results. Unless something comes up before then, I will see everyone at that time.

Love to all....

Believer

xoxoxoxoxox

3 Replies

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  • Dear Believer,

    sorry to hear that you are not doing as well. On the positive side you can always say that you are not doing so well today but there are better days coming.

    I'm sure for you there will be better days. Just keep the faith. :)

    talk soon and take care,

    Lucile

    (((Hugs)))

  • Hi Lucile:

    It is funny...some days are so terrible and others are so good. I cannot figure out a pattern to this tx or sx. Yesterday was such a great day and I felt almost human! At about 9:30 p.m. the dreaded nausea came. I guess I can't go a full day feeling good....oh well, I guess it could be worse. You are right, there are so many better days coming! I will definitely keep the faith and carry on. I am half-way through the Incivek and can hardly wait to end that. People keep telling me how much better I will feel once that is finished. I certainly hope so. I hope you are doing well. Look forward to your next blog.

    Hugs to you....

    Believer

  • Hi Believer,

    sorry you are having some not so good of days and I hope you will do much better once your incivek is done. I can't give you any comments on that one as I didn't have this with my treatment. I did hear that it is better and quicker. I am sending you some info on Positive. Think of it as a pyramid and start with # 1 I think you can use it for whatever you like. I think it makes sense too. Someday Believer maybe you and I can meet each other, would be nice. :) Here goes with the Positive Thinking and how to use it:

    1. Positive Permission:

    The question is can I and the only answer is "YES"

    2. Positive Goal - Setting

    The goals we choose define the kind of tomorrows we live.

    3. Positive Goal - Picturing

    What you see is what you get. Develop a positive 'round - the - clock' inner movie.

    4. Positive Thinking

    Create your own vocabulary of what can be accomplished.

    5. Positive Achievement

    Learn to assume that achieving your goals is just around the corner.

    Sure hope it helps is some way. It's all about staying positive and believing. i know I do.

    (((Hugs))) to you Believer,

    talk soon

    lucile