POTS?

[jubemmeva]

so in march of this year i got diagnosed with Wolff Parkinson White. got an ablation for it in April which was successful. i went to see my electrophysiologist today because i still sometimes get chest pressure, elevated BPM when exerting myself or when i’m nervous, and headaches/visual disturbances. i handed him my note where i wrote my symptoms and he misread something i wrote. i wrote that i get a pounding heartbeat when i wake up abruptly/from napping - he read that i get a pounding heartbeat from standing. so today he told me i am borderline POTS. after my ablation he told me i had SVT and its not POTS. and then today he told me he doesn’t know why i’m having uncomfortable feelings in my chest still and that i have borderline POTS because he measured my BP and heart rate when laying down and standing. my BP was fine and my BPM rose to about 20 beats from laying down to standing. this is why he said i’m borderline because apparently your BPM needs to hit 30 from changing positions to officially have POTS. he said with endurance training exercise POTS can be fixed in 6-9 months.

now i’ve read many forums and posts on different websites including here, and many are saying they have similar symptoms. they still get ectopic beats here and there and some have visual disturbances/migraines even months after their ablation. and that it will all go away eventually. i’m not sure what to think anymore. can anyone advise me or tell me their experiences? thank you.

[2k2d]

Sorry you are dealing with those symptoms. I do know that sometimes ablations can cause other issues and what you are describing could be the start of IST - inappropriate sinus tachycardia. It's like POTS but not entirely dependent on sitting vs standing. Your heart rate can rise an exaggerated amount for normal activities like nervousness, eating, exercise, moving around the room, etc. Your EP may only identify IST with an average heart rate over 90bpm during the day, but there are two presentations of it. But in any event, I hope you do not have POTS or IST, as they are both similarly miserable. If you continue to feel bad, keep pursuing an answer with your doctor as there are medications to help. Good luck!

[TracyAdmin Partner ArrhythmiaAlliance]

Thank you for your post, please do not hesitate to contact our Patient Services team at any time if you would like supportive advice or information. I would also recommend registering for the HRC2021 Patients Day to view the many presentations available, including PoTs. For further details follow the link : heartrhythmalliance.org/aa/...

[doodle68]

Hi Dr Gupta has made a number of videos about POTS this is one of them

youtu.be/O932tRHsIOo(Not working as expected?)