so I’m home from hospital, its coming up for 4 weeks since my bleed. I’m still very fuzzy and finding light and noise difficult. I am a mum to young children and want to be able to return to some sense of normal, the guilt of not being able to do much is huge.
My mobility is much better than it was in hospital, speech good. I just can’t explain the processing and fatigue in my head? Just trying to type an email or make a packed lunch wipes me out! Anyone got some stories of positivity abd hope to help me? Or tips for how to rest/ aid recovery?
Thank you x
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Jen-SubAc
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Thank you, I know it’s early days. I’m just normally 100miles an hour, busy at work, home abc socially. So now things feel so slow and still. I’m trying to find things to do that will aid my recovery and avoid triggers like screens/ noise.
I essentially rested for first few weeks I then tried to do stuff! Including go Christmas shopping with my wife which resulted in her parking me in the cafe telling me not to move! While she sprinted around JohnLewis I bought her a very nice dress for Christmas that year! Expertly chosen!
And she then poured me into taxi and I slept for few more days before attempting something else ridiculous!
If your brain telling you to rest then you need to rest.things will improve over time bit don't expect miracles.everybody who has had a bleed is different.some recover better than others.The best way I describe it is you look the same in the mirror on the outside but your not the same on the inside.you need to let the new you do what it can and what it can't then just leave.you are different now after the bleed and could possibly never go completely back to the old you.once you accept that you can build on the new you and find things that help you now.
I'm glad I lost some of the old me.but don't get me wrong I'm 4 years after my sub arach and I still struggle day to day but I just do what I can.
Hi Jen. Most of us here 'get' it. I remember so clearly my family being told I'd probably be a different person from then on ; not so dynamic or cognitively sharp.
But I refused offers of ongoing support, saying I'd survived the worst and would prove my capabilities once discharged.
Once home I was eager to shake off any notion of incapacity and, the following day, I insisted on taking the 10 minute walk, alone to Tesco, to prove I was fully mobile and cognitively sound.
I was soannoyed at spotting my partner following me at a distance, but then relieved when my legs caved & he supported me home.
At this early stage you need all possible support in place and to take every available rest break. It's so hard after an independent and outgoing lifestyle to accept the changes but, longer term, we do learn to find compromises which allow a different but good quality of life, . . . usually by trial & error. 🤔
It's only by looking back a few months, we see how far we've come.
Stay around Jen ; I've learned so much here. . . .
Thank you, it’s so nice to be able to hear from people who have lived it. I’m trying to see the small steps as progress and just enjoy bring home and watching my girls play. Then the frustration kicks in.
Still early days, I’m trying to be patient and not over do it.
Thank you, it’s so nice to be able to hear from people who have lived it. I’m trying to see the small steps as progress and just enjoy bring home and watching my girls play. Then the frustration kicks in.
Still early days, I’m trying to be patient and not over do it.
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Struggling with life following brain injury
Rehab
My mum 
Feeling alone with just my thoughts
