How many post SAH people find their balance gettin... - Headway

Headway

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How many post SAH people find their balance getting worse not better. Had SAH July 17. Shunt fitted Oct. now on highest setting of 2.5.

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7 Replies

Shunt Balance problems

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Barnspops
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7 Replies
Irmina1983 profile image
Irmina1983

To be honest my balance getting really bad. I’m 2 years after SAH and unfortunately getting worse 😞 I hope it’s only temporary and one day I’ll start improving

Mikey48 profile image
Mikey48

I had my SAH (total collapse) in 2015 which was coiled and a stent put in. I've had no balance problems whatsoever and I'm sorry that you have. What is this setting of 2.5, I don't understand?

Take care and I hope things improve for you.

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Barnspops in reply to Mikey48

I have a vp shunt. Started on 1.5 low setting drawing more csf now four years later on 2.5 highest dating least csf. But balance worse over last two years. Coped v stressful time with son divorcing and think that ripped my head over the limit!

maureen103 profile image
maureen103

Hi. I had my SAH in 2016 and I find my balance is getting worse but I am getting older (74 next month) so it could just be that for me. I also found not going out much this last year didn't help at all in many different ways. I hope yours improves again soon

Barnspops profile image
Barnspops in reply to maureen103

The last year has been dreadful with having to stretch the brain zoom meetings etc and no laughter! Hopefully things will improve and lift my spirits

lcd8 profile image
lcd8

I haven't had an SAH. But I do have a congenital BI and a Shunt. As I'm getting older I do feel my sense of balance is getting worse. I'm very conscious that sometimes I sway without noticing. And I struggle to walk in a straight line now. Losing my balance is also starting to become more of a problem. I'm 48.

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Barnspops in reply to lcd8

I know. Looking drunk at 9am. Not good! By the evening I’m tired so balance is worse.