Productive Experiment

[bexx87]

So on Sunday night I decided that while I was waiting for BIRU to get back to me I wanted to be take control somehow and be productive I didnt just want to do nothing and potentially get worse so I called up my gp and explained to the reception that since early jan I have been getting this weird tingling/numbness sensation and Im sick of feeling helpless and she said the practice nurse has had a cancellation if you wanted to talk too her so I said yes, later that day was the nurse and explained how I was feeling and that this sensation was making live alot harder and more of a struggle and she went fine Im booking another emergency appointment in for tomorrow with the dr who you saw in jan as he has a better understanding I said fine, told work fyi Im havign a early lunch as I have a emergency dr appointment to deal with this tingling sensation, My main manager thanked me for telling up (omg postive after november dismal threat and if it isnt to do with your work load Im not interested) told his manager (who actually does care about stuff other than my workload) and I explain to him in more depth what I told the nurse and he said thats a good call so I went to the surgery (today) explained the tingling he asked some questions and said he doesnt think its epilepsy but doesnt have a reason whats happening and I said I was meant to mention in Jan but forgot and I want the satisfaction of at Im have made you aware even if you cant do anything and Im trying and he said since neurologist can take their sweet time I would like to a minor experiment but if you dont feel comfortable you do have to (his words not mine) I said I will try anything while Im waiting so it was the agreement that I reduce my dosage of pregablin from 75mg to 50mg for 2 months to see if my body changes and then do a review (and hopefully I would get my biru appointment in, i did say I have a feeling that biru will say lets reduce the dosagea nd see the outcome so if I go there and they suggest that I can say well Ive started) he did suggest another tablet he could put me on to see if that calms down the tingling/numbing sensation but may do that at a later date but I am semi-happy that Im not doing nothing and am being pro-active

And I still made it to work on Friday despite Bristol being grounded to a stand still only 6 people in our office (50 people out of 1,600 in the entire building of different departments) made it in a majoring of people were WFH or working from home and we had sooooooo many calls about not being about to WFH so now because Im still recovering from doing a full day of saying the same thing I have starting sighing before picking up the phone and saying "Good morning ICT Service Desk, Rebecca speaking how can I help" - Bruce dont you dare wind me up !! and management have rewarded me with tacking on a extra hour on to my time sheet and between that and the data centre heat overload a few weeks back I explained to the dr why I havent been in sooner due to lack of enegry and we had a little talk about what I do as a job

[brumatmed]

Hi Bex,

I am concerned that you think I would wind you up about your efforts on Friday, to be honest I think they are to be applauded, I tried to get in but no trains or buses so that was that, fortunately on Thursday I made plans and took my highly technically advanced laptop home, which obviously didn't work, I phoned IT for direction (apart from turn it off and then turn it on again) with no reply, I assumed that you were all snowed under (forgive the awful pun) with a billion 'my laptop doesn't work' calls, as I tried quite a few times and couldn't get through at all, I (sort of) gave up so I didn't get the chance to wind you up (as if I would!).

Any road up - (true Northern grit that is), I think you should chill out more (I too have had experience of numb/ tingling bits of my body - I say bits because the areas are random as are the periods of experience - from a couple of minutes to an hour or so - I thought it was just me sleeping funny, or bad circulation - I hadn't even made the connection between this and any possible link of medication but it does make sense as it has been happening for years).

Since my brain injury, I have noticed a more obvious physical effect of the BI. I am referring to flatulence. I have decided to do something about it without involving MORE medicines (drugs) and I have, with a bit of research, found that peppermint or ginger tea, can help. I don't have the bottle to go herbal on Epilepsy or anything else, but there are web pages so I can only assume that there is a possibility of success.

Take it easy Bex - see you this PM?

[bexx87 in reply to brumatmed]

Im not saying you would wind me up over Friday (but I just re-read that and saw that you have hinted at the possible wind up) Im just saying that because of Friday my brain is sick of taking phone calls. we worked 7-3 (3 people on the phone myself included 2+me) no one would have picked up after 3 so you should have gotten a email response between 3-6 (or from 10 - 6 as they were dealing with email at home while we were in the office taking the calls) like I said we have been noted by management but only get more flexi given (I would have preferred a payrise but that's to be debated)

I am a bit confused about the email from Paula I thought it was only 1-2.30 not 1-3 regardless I cant stay for 3 hours (as Im sure you cant either) the min of a hour and it takes a hour round trip (30 min there and 30 back) and I saw Rosanna and Olly at Headway last Monday and I had to leave quiet sharp because I had to get the hire car back (and another person (Suzy) was making me feel uncomfortable) and I did sense Rosanna following me (I felt like I was being chased) out and shouted good bye as if she wanted to talk but I couldn't stop and she text me this Monday:

Hi Bexx Sorry if I have done anything to offend you? You seemd a bit off with me when I was trying to say good to you at the HIYA event last week. Hope you are well.

Im guessing it because I haven't been repling to her texts because I feel she wants to make sure I don't flirt with Olly (which I have said many times not intrested and the fact that Olly talks to me without me looking intrested feeds this) course I could be completely wrong so I just text her back saying

Hi no you haven't I wanted to get away from suzy tbh im having a hard time coping with life so its nothing personal against anyone I was just tired from work and she hasn't replied so it will be interesting if she if there and how I react as I am mentally exhausted and have very little patience for anything non-work related

In other news Marvin is in the building as I briefly saw him while the lift door were closing and exchanged a Hi

and Im still waiting on a new backdoor to be fitted but the landlord (private rented flat) said they have a backlog of work to be done due to the snow so my backdoor is low on their list so it looks like I will sleeping in my living room on the futon for a few more weeks people have suggested withholding rent but that makes me feel uneasy

[brumatmed]

Hi Bex,

Just wondering - do you have a list of contact addresses for BIC people

Cheers

[bexx87]

No I don't I can see if I can get contact details by posting on the facebook group is you want?

[bexx87]

I have asked if Emma (thebrokendoll) or Danny (Lloyduk) via the FB group can get drop you a PM on here

[bexx87]

just to let you know Danny has seen the comment on facebook