Channel 4 next Tuesday at 10 - Can You Rebuild My ... - Headway

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Channel 4 next Tuesday at 10 - Can You Rebuild My Brain

swedishblue profile image
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channel4.com/programmes/can...

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swedishblue
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cat3 profile image
cat3

Thanks Blue ; it's now on my calendar............... Cat x

sealiphone profile image
sealiphone

Unclear what this is going to cover but I'll certainly be watching it.

One of the most interesting areas of research is the effect of microdosing with Lysergic acid diethylamide (LSD) & psilocybin and it's positive effect on neuroplaticity.

To quote Vaios Paragioutsikos, Specialist Neurosurgeon:

"Synapses in the brain are generated and dissolved, while others are preserved, in an ever-changing process of so-called neuroplasticity.

Scientists believe that LSD influences the level of consciousness thus the neuroplasticity."

!!Of course don't do this at home children!!

in reply tosealiphone

Can tell u from experience it doesn't help at all!

Kirk5w7 profile image
Kirk5w7

Sorry I missed it and it’s not on catch up yet, I think they are showing it again at the weekend.

J

swedishblue profile image
swedishblue in reply toKirk5w7

Janet, its NEXT Tuesday @ 10, so you haven't missed it. x

Kirk5w7 profile image
Kirk5w7 in reply toswedishblue

What am i like ! Injured brain strikes again xxxx

J

charlieab profile image
charlieab

Im currently rebuilding my brain in the basement. The neigbours have complained of course about the power outages and the sulphur fumes drifting across the lawn. But I think it will be worth it when its finished and ready to try out.

swedishblue profile image
swedishblue in reply tocharlieab

Okay Charlie Frankenstein, that's an excellent answer!

in reply tocharlieab

Lol

sealiphone profile image
sealiphone

It's also being shown 1 February at 2.25 am channel 4

Interview regarding content here:

channel4.com/info/press/new...

sealiphone profile image
sealiphone

Charlieab, I see 2 problems with your approach:

The size of the lighting conductor on your home will cause complaints from your neighbors.

Everything's on hold awaiting the next big thunder storm.

sealiphone profile image
sealiphone

Interesting interview with Lotje Sodderland - My Beautiful Broken Brain:

youtube.com/watch?v=WLB73nE...

sealiphone profile image
sealiphone

Having watched the interview, it seems her experience happened on a different planet, where you get help, rather than discharged and then seen 12 months later!

swedishblue profile image
swedishblue

It was an 'okay' interview, but I I found it difficult to believe she doesn't suffer more symptoms/deficits than simply word blindness and rt peripheral vision loss! Surely that wasn't the extent of it? Did I miss something? No doubt she has worked hard at recovery and has done well.

sealiphone profile image
sealiphone

Swedishblue ("What's that about?"), I've met people and regardless of the length of their coma or what significant cognitive symptom they have it may be only one.

I had no physical symptoms at all but a significant number of cognitive and if I understood the interview(?), rewiring (plasticity) is dependent on where the damage occurred.

But then again I've got a brain injury!!!

swedishblue profile image
swedishblue in reply tosealiphone

Ditto! Some of us fair worse than others. Its totally random and luck of the draw. A Neuropsychologist told me that two people can have the exact same area of damage/lesions (pinpointed on an mri) and suffer different outcomes. How come? Maybe we all heal and rewire differently?

Have you watched Lotje Sodderland's film, 'My Beautiful Broken Brain?'

sealiphone profile image
sealiphone

I'd never even heard of it before this thread, however I'm downloading it from Netflix as I type.

Probably watch it over the weekend, as I'm currently hooked on Netflix's Wormwood.

sealiphone profile image
sealiphone

Well I watched My Beautiful Broken Brain and found it both frustrating, confused and surprising.

Having said that I'm obviously biased, as Psychology was my favorite A level and I got up to speed when my daughter took it 4 years ago so I was frustrated by simplistic explanations behind the symptoms and treatments.

The the whole thing is presented in a way that tries to convey Lotje's world, so you've got distorted voices with psychedelic images, this makes it very difficult to follow the thread of the story. Then you get Lotje playing to the camera, what are the symptoms at a particular point or is she playing the part of someone in total confusion to try to give some insight to others, I couldn't tell.

Surprising as she appears to be out very quickly and by weeks 5 and 6 she's performing much better than I was (my friends and relatives tell me), however I didn't have her dysphasia and visual distortions by week 6.

For someone with her symptoms it could be helpful to watch this but again I always feel if you can get some understanding of the what's actually going on it does help. I guess Lotje knows but the producers decided the general public wouldn't be interested.

The film says patients with a large bleeds are referred to rehab units, WHAT??, I've met hundreds of TBIs with purely cognitive symptoms and I can't remember one who had such support.

NightBird profile image
NightBird in reply tosealiphone

I saw the Channel 4 programme, and it was interesting but skated between subjects too much for me to get anything from it. Maybe "My Beautiful" will be more useful.

I am seriously considering making my own film, even just a short one. Me-too projects are not my thing, but it sounds like hers are so different that mine would be okay :) . 13 years of misdiagnosis and psychobabble, then finally discovering stimulants - but not being able to access them because of the law and the crap on my medical records! I don't think anyone's made a film of that stuff yet :)

sealiphone profile image
sealiphone in reply toNightBird

Yet to watch the Channel 4 programme but your film sounds interesting although many diagnosed TBIs would have a story of woe and lack of help.

Perhaps we should write the script!!

NightBird profile image
NightBird in reply tosealiphone

Based on my book? I'm tempted :D

sealiphone profile image
sealiphone in reply toNightBird

I think we've already got a problem as I'm unable to give up any editorial control!!

RogerCMerriman profile image
RogerCMerriman in reply toNightBird

I blog, for various reasons mainly to just express myself, she was in the film industry which clearly helped her.

I think Headway have been asking for folks stories, if that’s your thing?

I’m unconvinced that the various folks attempting to raise awareness for brain injuries will be successful, in that narrow goal the internet tends not to work like that, ie you get shown stuff you know, and so on.

NightBird profile image
NightBird in reply toRogerCMerriman

Yeah, I can't see how someone without money or influence could get their work widely known. Occasionally things go viral but it's too random to rely on. I wrote my book as a screw-you message to those who misdiagnosed me, not with an eye to sales or anything. Any film version would probably focus on the perceptual and philosophical elements, rather than my big fat anti-psychology rant. There's no point in doing the same thing twice.

If I did a film, it would purely be for the hell of it :) . And to play with After Effects.

in reply toNightBird

If u want interviews for book about inactivity of NHS & how they'll stoop at nothing to not refer,i'm there! LOL

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