New to the site

[Kaz1981]

Hi all, my name is Karen. My partner had a brain injury in 2015 following a fall. We have a 4year old son. I am his full time carer. Hoping to meet people who are in same situation as us. We have had very little support from anywhere until this year.

[deborah27]

hi Karen, this forum is exactly where you will find support. I don't quite know where else I would turn! keep in touch, you can be supportive of others too. x

[Kaz1981 in reply to deborah27]

It's just the sort of thing we need, really hope we can offer some support to others going through similar situations that we have had x

[deborah27 in reply to Kaz1981]

yes, apart from getting support for ourselves, the forum is a great way to offer encouragement and a kind word or two when others are struggling. in a way, that also helps us as it puts things into perspective. good hearing from you. x

[StrawberryCream]

Hi Karen

Welcome to the forum. Sorry to hear that your husbands fall has resulted in a brain injury. How is he doing now? I sustained an ABI and was single parent to my son who was then 5 rs old and will now be 12 yrs in a few days time. It has certainly been a challenge to parent with an abi!

[Kaz1981 in reply to StrawberryCream]

He still struggles on a daily basis, he relies heavily on me to support him. I'm so sorry to hear that, it must be a real struggle for you, my partner really finds parenting hard since his brain injury x

[sospan]

Hi and welcome.

Your story is very familiar to us all - your family has encountered a life changing event and there is no one to help you through it. A head injury is often described as one of the loneliest injuries because very few people including the carers, family and friends can understand what it is like especially if the partner "looks ok",

One of the huge plus point of this forum is that we have both "survivors" and carers whom can relate to what you are going through via our own experiences and you have both sides of the problem.

If there is anything specific you want to know or to just let off steam please feel free to make other posts.

Seasons wishes and all the best on your journey.

[Kaz1981 in reply to sospan]

Thank you. It's really nice to find somewhere where people really understand what life is like on a daily basis.

[sospan in reply to Kaz1981]

No problem, it is equally hard on the carers as survivors.

[Kavib]

Best place to be

[jodr]

Hi Karen welcome 😊

My husband had his bi sept 16 and we have 2 boys 5&6 years old. My husband also finds parenting really hard now and our boys have had a hard time adjusting to a 'new' daddy one who needs to sleep lots and shouts a lot!! There are children's books out there to do with brain injury that your son might enjoy..elvin the elephant who forgets and my dad makes the best boats.

I recently went to see the mental health nurse at my gp and for me it was the best desicion I made..in the new year I will be getting external support which is definitely needed. It's incredibly hard to have to take on the role of carer for someone who used to be your rock as well as still being mum and helping your little one adjust to the changes too. The weight on your shoulders is not a light one!

Message me anytime we are in this together 😊 jo xx

[Kaz1981 in reply to jodr]

Thanks for that, will look for those. To be honest our little boy was only 18 months old so he doesn't really remember what his Daddy was like before. Which is a shame as he was brilliant with him. Like your husband he now sleeps a lot and although he doesn't shout he does moan about the noise and mess he creates.

Thank you and likewise, it's nice to have finally found somewhere that people actually understand what you go through.

Happy New year to you and your family

Xx

[Pinhead01]

Hi kaz,

Welcome to the group, my name is sadie, we have 4 children (16, 13, 11, and 5). My partner was assaulted in our town 4 years ago now and has recently found out by his phycoligist that he suffered a brain injury. We didn’t find out until recently as after leaving the hospital he didn’t have much help or support at all until his gp referred him to a private hospital to try and sort out his back pain (which was also a result of the assault). The back pain is still ongoing and the private hospital have been good but seeing the phycoligist, being part of headway’s, having the support and input from others on the group have been a really big help to us and helped us cope with the changes after having a brain injury. I can’t say it’s been easy but having the support really does help.

I’m here if you would like to chat sometime x

Take care 🙂

[Kaz1981 in reply to Pinhead01]

Hi Sadie,

That is awful I am so sorry to hear that. Glad you have found the support you needed. It must of been so hard for you.

It is nice to chat to people who are in a similar situation as they get it without needing much explanation.

Thanks and same here anytime you want to chat

X