What's it feel like

[Pat-rick1]

Back to fatigue again 🙄anyway IV been trying to explain it to others .what does it feel like , and bingo it came to me besides feeling tired and useless, I feel numb like when the dentist gives you a injection, but instead of my mouth it's my whole body that's numb.Rant over and out ✅

[halinbath]

The fatigue/exhaustion really scares me. Ever since my accident I just don't know when it will strike. Felt reasonably ok yesterday so decided to go out with a friend for lunch. ordered a double shot coffee and after drinking it felt great, really awake but half an hour later had a massive drop in energy. It feels to me like I am falling into a black hole and I just don't know how to cope with it. I felt so exhausted I began to get really irritable and bad tempered. Shouted at someone in the street for getting in my way. It feels like it can hit you at any time and leave you stranded. Got home and went straight to bed. Maybe strong coffee is not good. We all have limited energy and drinking coffee seems to use it all up in one burst and then leave you empty.

[malalatete]

I sometimes say to people that it is a bit like those battery operated cars my boys had when they were little. Sometimes I get gradually slower and slower until .... stop. Sometimes I have a stop, then go quickly again as if I have a new lease of life, only for that to be a complete load of rubbish because.....stop. Sometimes things start to go a bit wrong, like the signals are no longer getting through on the low power. Sometimes I keep going way longer than I would have thought I could! It is a complete lottery. But when it comes, there is no arguing with 'stop' - that is it. It is time to recharge the battery.

[dillyd in reply to malalatete]

That's just what's it's like. No good trying to fight it as that just makes things worse!

We have found that routine, routine, routine is the best way to cope with it, & if anything changes that routine, prepare for it well in advance, by extra sleep rests beforehand.

If not everything just falls apart

[Hidden in reply to dillyd]

Completely agree with this, anything new to deal with knocks me off my axis. Anything that is out of the ordinary that I know is coming up has to be planned with military precision to help me manage/cope with it. Spontaneity seems a thing of the past after a bi.