Starting to notice a change after 16 months!!! - Headway

Headway

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Starting to notice a change after 16 months!!!

Reeve77 profile image
18 Replies

Morning all, after suffering a TBI in sept 2015 I thought all was well, just lately (in the last couple of weeks) I have noticed my short term memory is getting terrible, just last night I went in to the kitchen and by the time I got there I could not think for the life of me what I went in there for!! That's just one example, has anyone else had the same effects months after thinking all was ok? My "clots on the brain" where at the frontal lobe area which I believe does control memory, let's hope I don't forget to pay my bills.............

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Reeve77 profile image
Reeve77
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18 Replies
StrawberryCream profile image
StrawberryCream

If this is a new symptom 14 months on I would suggest you go and see your GP. It is more usual that the memory problems are apparent at the time of the brain injury. Developing at a later date like you are describing suggests possibly another reason ?related to age, or a new organic cause etc.

Reeve77 profile image
Reeve77 in reply to StrawberryCream

Age, I do hope not I only turned 40 last week, don't tell me it's all down hill from here lol, thanks for the reply I may well make a visit to the GP )if I can get an appointment)

StrawberryCream profile image
StrawberryCream in reply to Reeve77

Everybody has those forgetful moments even without a brain injury where we forget what we went into a room for etc. However, if it is occurring a lot e.g. daily and is persistent memory problems throughout the day then you do need to get checked out as it sounds like you haven't had memory problems since your bi so possibly not the tbi in 2015. It is obviously worrying you so best to get an appt booked with GP.

Reeve77 profile image
Reeve77 in reply to StrawberryCream

Very very true

Broken-head-girl profile image
Broken-head-girl

Def c ur gp huni you can never be too safe it's always worth a quick call to them atleast to get a professional opinion xxx

Reeve77 profile image
Reeve77 in reply to Broken-head-girl

Yep I will and see what they say, may even give addenbrokes a call

StrawberryCream profile image
StrawberryCream in reply to Reeve77

If that is where you were treated then I would suggest ringing the consultants secretary and asking her to seek the consultants opinion. Probably better than asking the GP because his knowledge of bi is most likely limited.

RogerCMerriman profile image
RogerCMerriman

I did notice things as time when on, for myself, my assumption is that as life calmed down I noticed, slowly, ooh my memory isn't great is it? Is that as before or worse etc.

Only thing that I think developed after was twitching when tired and/or asleep but all others I'm sure where there just masked by the events of the time.

Reeve77 profile image
Reeve77 in reply to RogerCMerriman

Yes that makes a lot of sense

DTBI profile image
DTBI

Hi, I was 50 last year and I'm 3 yrs after my TBI this month. I do still have a short memory challenge, but don't worry about it. The extra exercise caused by it isn't to bad and I use my phone for memory reminders on anything important.

Rayrob profile image
Rayrob

How long after your TBI did they follow with a check up on the Neurology department?

Thanks

Reeve77 profile image
Reeve77 in reply to Rayrob

I know a very late reply, it was about 14 months after discharge but I did go private in between for scans etc, they would not have known that tho

Nutkin33 profile image
Nutkin33

I was almost 2 years before I really noticed my chronic Fatigue!

Now, 4 years since my TBI, I have bad short term memory, and my Ataxia is much more noticeable to me! (I had all those within 6 months, so they're not things that suddenly appeared)

I suppose my Acceptance of my TBI, was a huge battle I conquered!

All the best with your recovery!

Yes my memory has deteriorated in recent years but my Consultant thinks that it took so long to diagnose Central Alveolar Hypoventilation Syndrome - MRIs are expensive but almost useless for neurological damage that is not venous... But they think it is Vascular Dementia after so many years of low blood oxygen. Sadly I do not breath often enough but instead of breathing or even yawning I simply felt an overwhelming need to sleep. A cheap test wearing a battery operated finger oximeter was all they needed but until a new GP referred me to a Respiratory Consultant no-one could do this apparently!

It is irritating when folk chime in with 'oh my memory' is terrible examples. It is totally different - as though the experience was never recorded or saved to memory.

BeckyT77 profile image
BeckyT77

Hi there x. My son had his accident in july 2015. Hes 13 now. His memory seems to fluctuate. Sometimes good sometimes terrible. Forgot his badminton match last week and cried 😢 He had a bleed and surgery to remove clots. In a coma for a while but so so lucky xx things change for us all the time but we are all still here!! Hope it works out for you x. Play every day as it comes and have fun x

Reeve77 profile image
Reeve77 in reply to BeckyT77

So glad to hear your son is doing well, by the way badminton is a great sport, encourage your son to keep it up, we need more stars in that area (very energetic as well) 😀

Elenor3 profile image
Elenor3

Hi :) I wonder if it's the case that as you recover / start going out alone / start back to work again, that you notice how you're no lknger doing things the way you did before ? For a long time I had help to do evrtyhihg / help to go to things / general support. But now I'm 'let out' alone and trying to resume some kind of normal life - I realise I find lots of thngs very challenging now that I could do without thinking previously. So maybe (like me) you're just be coming aware that things are not the same as they were before? Do go and seek help and get checked out, and do things to help improve recall and thinking skills - like crosswords and puzzles. Good luck

Reeve77 profile image
Reeve77 in reply to Elenor3

Hi ya, really sorry for the late reply, however given the late reply I think you are 100% spot on, things were different then, people were different towards me l, it just all seemed different, like I was expected to forget things or mess up if you know what I mean, now I’m back to Normal ish it’s all good, I think lol hope your well x

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