Don't forget the Headway helpline is here to help!

Don't forget the Headway helpline is here to help!

The Headway helpline is a confidential service, available to anyone with a question about brain injury - from survivors and carers to students and professionals. We can discuss a wide range of issues relating to brain injury, from the initial injury and its effects, to long-term rehabilitation and support.

Contact our helpline free on 0808 800 2244 or

We're open from 9am - 5pm, Monday to Friday. We look forward to hearing from you!

You can also get a wealth of brain injury information and details of Headway services near you on our website at

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19 Replies

  • It good to see an email address included as I find phone calls rather challanging 😀

  • Hi Lew-ann,

    I agree, I find phone calls can be challenging too.

    If I talk to someone I know, then I mainly have no problems but if I am talking to a complete stranger then I struggle.

    It's usually about processing what someone has said on the other line and I hate the automated system. "Press 1 for... So an so".

    I try to limit myself from phones and whenever the house phone rings I avoid answering it... Even if I am standing directly next to it and my mum is upstairs!

    I don't really want to sound racist here but a part of me doesn't really care but I cannot stand it if I was ever talking to a Pakistani or Indian person and they had very poor English.

    It isn't just about the language but also the speed they speak.

    I just don't have the confidence in me to politely say "Can you put someone on the phone who actually speaks proper English, please".

    I just don't understand how our government works sometimes, if they let these people in then they should at least learn to communicate well and understand our needs.

    Take care,


  • Hi Lewis-Ann pls see my reply to Matt, I know talking after a BI can be difficult, because many of us slow down in our speech,

    in English I think I must have a sort of BI verbal diarrhoea now, :-) but I can relate to you because when I have to speak to French here about anything. specially on the phone, they speak far too fast for me, because with thinking in English, translating many words to French that I don't remember can be a nightmare, especially as I can't master the accent.

    When I was 7, I'm retired now, I had a Scottish accent, but was sent to boarding school in Surrey, and dad paid for me to have elocution lesson to change to an English one because he thought I might be bullied! Looking back now, it was a bit like being Eliza Doolittle in My Fair Lady, and ended up talking slower than I had, through correct 'enunciation' . We lived over the years in many different parts of England and I could always pick up the local accent, quite quickly.

    Since the BI over here, my speech did slow again and still is in French, so take heart, give yourself a chance or have a go at talking to the Helpline, may be good for your confidence also with them.

    Bon chance! Shirley xx

  • yay! the helpline pepole are amazing

  • So grateful for the Helpline it really is so helpful not just for excellent information but support too.

  • ...absolutely to above, but to Matt and Lew-Anne, I say especially, if you can get over the fear of, it's great, cos someone answers , gives their name and all you have to do is say Hi, I'm ???, and because theŷ do see the posts and open replies also, you won't be a stranger to them!

    It's not like phoning a company where a telephonist answers, and you have to say I want or would like to talk to someone, and sometimes have to tell the telephonist what you want to tell the 'helpline person'

    It's the helpline person who Answers, I haven't put the names of some I know now, cos I don't know if its permitted on here, and also if everyone phoned and asked to talk to same person, there could be a telephone log jam I guess.

    So if you can pluck up courage pick up the phone when you need. I have Headway phone number all ready in my phone, complete with UK code, and I'm lucky I get free calls to UK via Orange from here. The Headway number is worth it's weight in gold to me, and makes a good change from typing all my 'conversations'.

    Matt, they're based in UK, all speak English, I haven't tried my French out on them:-)) yet!

    Good luck to you both! Shirley xx

    Contact their helpline free on 0808 800 2244 or

  • I don't mind making phone calls it's just no one can understand I get 'this is a really bad line can you say that again ' and repeat and I use gets worse then the good old brain refuses to engage fully it's frustrating and sometimes amusing when people scream down the phone thinking it's a prank call I sound like a complete drunk (I also don't drink. Alcohol)

    I made a phone call last week because I had too it has taken me 12 month to write a script in case my brain failed me it did and the person at the end of the phone was let's say I think she was having a bad day and she made me repeat myself 7-8 time that was the good old PIP claim line

    So I won't be making anymore phone calls for a while

    Lewann xxx

    Ps sorry this was so long as it's the only way I can rant on for so long xxx

  • Hi Lewann and Eleanor, I'm really sorry and surprised to read of your experiences with the Helpline, we've all always found them understanding. Certainly I've never had a problem using that phone no, here from France. Silly question from me, is it possible Lewann the number was misdialled or that there were problems on the line, hence the scratchyness /screaming?

    They are there to and do listen to the problems you are experiencing from your brain injuries, or other causes, of course they are not doctors, but are so familiar from posts made on here and phone calls to them can sometimes and do point you in the right direction of which medical professional to ask or seek help from.

    Have either of you looked At their downloadable PDF Factsheet booklets and you may well both also see things in those that will answer some questions.

    PS Lew-Ann, sorry to keep spelling your name wrong, but you keep ranting here about whatever if needed, :-) Shirley - good weekend both. x

  • Sambs, people wont be able to understand my badly worded reply. I was trying to say that the helpline is super helpful. I would re write the reply but ive got to give the brain a rest now. have a good weekend!

  • sorry Eleanor, see I hadn't even fallen in with that fact, even though I'd probably read it :-) frustration has to the worst side effect of anything we end up having diagnosed!

  • ah SAMBS, apologies not necessary & dont worry about it. im havin another bonkers day , im frustrating my family more than myself :) (feelin brain fatigued with daily life etc, hope i dont konk out before end of the day :) going to push on through. take it easy, sun's been shining :)

  • I have loads of those -bonkers days and friends or families that don't understand so get frustrated also :-) sleep well! Shirley x

  • Ah thanks for your understanding Shirley, i guess we'll all get there...hope you have a good saturday x

  • Hi Shirley it was the pip claim line

    I had a tracheotomy and my speech has never Been the same the throat muscle don't syncranise with the brain I also I cannot think of the word but I can discribe it NOW WHATS THE NAME OF THAT GAME lol best medicine avoid these situations

    I did have a lot of help in 2009 including speech therapist was not really much help

    But as for headway I would alway email as I would not be able to remember the convesation anyway

    Have a good evening

    Lew-ann ps don't worry about the name 😄

  • about Synconicitry ? don think it's right, but Lew--Ann we are here for you, and that's one good about still having our minds and being lucid! sometimes :-))

    wow you have got a lot to cope with, but you are doing really well, good on you......

    just got in from the village social comite tonight, sorry that's spelt in French, I don't understand half what they say either when they talk too fast for me.....duh! but at least they accept me for who and what am I am, they seem to like me as well, which is most important for my morale. then they make sure I don't fall over in the dark when we leave the village hall, it's a good job I live opposite it...

  • I called the helpline for bouncing around ideas and stuff and answers to specific questions , which i got, where i tried finding an answer elsewhere but thankyou very much! And also for the pointers and help tht i didnt know i needed, and wasnt calling about, but i really did need and find extremely useful. So no pressure then! No, seriously 'answers' nd suggestions are not expected,its just good to bounce the ideas around if youre perhaps finding a route through something practical to do with b i for example, thanks again

  • Hi, 

    Thank you for your post. The helpline is here to provide support, information and a listening ear to people with a brain injury. In many ways we are like The Samaritans for people with brain injury, although there are differences in the way we operate and the service we provide.  

    You can always give them a call to see how they can help, they're always happy to hear from you and will support where they can.  

    Best wishes, 


  • Hi I am new not sure if I have the right webpage. I have substained concussion after a head injury that occured at home on 14/05/16. Would like to talk to other suffers that are going through it or have suffered concussion as i feel like a prisoner in my own home or any expert

  • Yes you have found the right place. Many of us have gone or are going through much of the same.

    Post a message on the main board, we would all be delighted to help

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