Does anyone on here have no bone flap? My husband, has a four inch gap would like to hear how others cope cheers xx

[razyheath43]

hi does anyone on here have no bone flap? My husband has a four inch gap would like to hear how others cope cheers xx

[sporan]

Hi razyheath43,

Welcome here. Unfortunately I have no experience of this issue however I am sure that there is bound to be someone here that will pop up with information.

You could also contact headway directly and get advice or contacts from them as well.

Take care

Sporan

[razyheath43]

Thanks for that,we do want to go our local headway hub so hopefully that will help x

[Hidden]

Sorry: know NOTHING of this. Why aren't docs available to answer/help you, THEIR job! ?

[razyheath43]

There are doctors I just wonderd as I said ifanyone else has the same issue.but thanks for the replies

[ZEBLET17]

SORRY AGAIN, I'M AFRAID I HAVE NO EXPERIENCE OF THIS BUT AS SPORAN SAYS THERE MAY BE SOMEONE ON HERE WHO HAS.

BEST WISHES TO YOU BOTH.

[razyheath43]

Again thanks,being on here is good either way x

[StaceM8]

t must be quite a rare condition. Have U contacted Headway cos I'm sure they'll kno all about it & they are very helpful - the contact details are on my profile if U wanna get in touch ;o)

[razyheath43 in reply to StaceM8]

Yeswe are in contact with headway theyare great thanks for reply

[Molly15]

Hello. I don't come on very often, but just happened to see your message. My husband had a SAH and stroke October 2012, and had a large part of his skull removed at the time. This was left until around July 2013 before the bone was replaced. It was worrying for those few months and he used to wear a special helmet, made for him via the re hab hospital he was in. It looked strange, as half of his head was obviously misshaped and people used to stare, as of course there were big scars. But once the bone was replaced, it all healed up quite quickly and his hair almost covers most of the scars. It is not quite as it was, and he has a "lumpy bit" near his ear, which apparently is fluid. Sometimes he feels some soreness where he thinks the screws are just under the scalp, but on the whole it is not a problem to him. As we always say, he is still here, so if he has a "funny shaped" head so be it!!

You don't say if your husband is going to have his bone replaced? Sometimes it is replaced with titanium plate if the bone has not been successfully retained, but I think this is just as good.

I hope this helps, and if you want to ask any more questions, please do message me. We are in Leicestershire now, but his operations and re hab were carried out in Hull, as we lived in East Yorkshire at that time.

Best wishes, Molly