I’m new....and im scared.: Hi Everyone... - Gynae Cancer Support

Gynae Cancer Support

1,648 members417 posts

I’m new....and im scared.

Caryland profile image
3 Replies

Hi Everyone. Im post-menapausal, recently noticed white patches on vulva with itching. Thought it was thrush so bought some canestan. Itching stopped but white patches ( looks like scar tissue) still there. GP mentioned Lichen Sclerosis and referred me, i have Gynae appointment in 2 weeks. I have made the mistake of going on the internet (!!) so many awful things this could be. I am so frightened. Just need to talk to someone.

Written by
Caryland profile image
Caryland
To view profiles and participate in discussions please or .
3 Replies
KTSt profile image
KTSt

Hi Caryland,

You have been referred and getting it seen to- that is the most important thing.

We all are guilty of using dr net and worrying ourselves, but the fact that you've got this referral quickly is a good thing.

i have had ongoing checkups for 20 years or so, starting with smear tests that showed pre-cancerous cells and for the last 6 or 7 years, vulval changes. let me assure you that these problems tend to be slow developing and once you are "in the system"- referred to Gynae for investigation then you will be well looked after and closely monitored.

Not all lichen sclerosis develops into more serious conditions, it is just one of several risk factors... and at this stage it sounds like it's just a possibility, not a definite diagnosis.

Good luck!

Caryland profile image
Caryland in reply to KTSt

Hello KTSt,

Thank you for being so kind and reassuring. I am trying to put things into perspective. Your reply has really helped. I rang my GP this morning and am going in for a reassuring chat later. Its wonderful to have support from this site, I don't feel so alone.

I hope that everything goes well for you. Thank you again.

AskEveTeam profile image
AskEveTeam

Hi there. Thank you for your post and we're so sorry that you're feeling frightened, it's a horrible feeling and please know that you're not alone. When you're feeling worried, please do remind yourself that even if it is Lichen Sclerosus, this isn't a cancer, or an automatic pathway to vulval cancer - it's really important to remember that. A previous reply is absolutely hits the nail on the head - we worry ourselves so much by going on the internet and reading horror stories. Remember the internet is unbalanced, and the happy/success stories aren't posted about nearly half as much as people who have had bad/sad/negative experiences.

You're having the gynae appointment in two weeks, which is brilliant and means you're being looked after.

Best Wishes

Ask Eve x

Not what you're looking for?

You may also like...

Concerns re hard painful vulva lump

Hi all, newbie here with some concerns...about 10 weeks ago I noticed a hard lump on my vulva. I...

I’m scared about having my op and hoping I pass the pre op.

Awaiting total hysterectomy with salpingo oof and lymph dissection, scared what might have changed...

Normal smears- but spotting mid cycle

Hello, this is my first post. I’ve found this site after searching all night for answers. I suffer...

Worried about cervical cancer, help please?

Worried about cervical cancer, help please? For the past few months I've been getting alot of...

Biopsies results waiting

Whats the longest anyone has waited for biopsy results that have been bad news?.I'm waiting for...