Armour thyroid: Hi all...again. I... - Graves Disease Su...

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Armour thyroid

Shredder29 profile image
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Hi all...again. I struggled on Levothyroxine since RAIO for Graves several years ago. I managed to persuade my GP to write private scripts for WP Thyroid when it was available several years ago and responded well to it. When it became unavailable I struggled. I didnt do well on Naturethroid as I felt under medicated. I did better on NP though found it quite strong. I was then put on Levo plus t3 and felt a lityle better but not as good as on WP. My health provided has now provided me with Armour which I am finding ok but on large doses but still have some hypo like sympyoms. I read that it has been reformulated. Any advice please (currently on 4.5 grains of armour split into two doses a day.

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Shredder29
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pennyannie profile image
pennyannie

Hi there Shredder

I'm with Graves post Radioactive iodine treatment 2005 and up until late last year treated with Levothyroxine, my doses only having been 100 - 125 mcg per day.

I have been ill these past 4-5 years from the long term consequences of this treatment.

I'm now self medicating with NDT as have been unable to secure a NHS prescription for anything other than Levothyroxine.

So, part of me is jealous, in that you managed what I couldn't, namely, NDT and or T3 from a doctor !

Where are you, just out of interest ?

I think for you to receive a considered reply, it's necessary to support your post with full blood tests and vitamins and minerals, as these need to be optimal for any thyroid hormone replacement to work effectively.

I appreciate when on NDT one doses " to the relief symptoms " - I've read of people on more than your current dose, split into two doses a day.

I don't know about the reformulation of Armour, but since you have changed brands, this could be the " difference " your are experiencing.

Shredder29 profile image
Shredder29 in reply to pennyannie

Hi thanks for the reply. Wales and luck you I struggled greatly after radio iodine treatment for Graves, indeed its been the biggest mistake of my life as it almost stopped any form of life and as a male found it even more difficult as most info is aimed at ladies.

pennyannie profile image
pennyannie in reply to Shredder29

Well, irrespective of sex I found available information is non existent.

I read Graves Disease is poorly understood, affecting approximately a quarter of 1% of the population and that everybody's symptoms and journey with Graves is different and unique to them, so hardly occupies any space in mainstream Nhs medicine.

I have purchased a couple of books you might consider:-

Graves Disease - A Practical Guide by Elaine Moore - this lady has the disease and went down the RAI route. She found no help in the late 1990's when diagnosed and treated in the United States and apart from writing the book, has devoted the rest of her life into researching this disease. She now runs a very comprehensive website and a Graves Foundation in the States for everybody and anybody to use and ask questions.

True it's Stateside so medical protocol slightly different, but is an excellent resource.

Barbara S Lougheed - Tired Thyroid - from hyper to hypo to healing :- another book and also there is a blog - this lady is again with Graves and treated with RAI - amongst other things she debunks monitoring Graves patients with a TSH - again, USA based.

Dr Barry Durrant Peatfield - Your Thyroid and how to keep it Healthy is a very good book on all things thyroid. Written by an English doctor with the hypothyroidism, it's a relatively easy read and though we may not now have thyroids, we need to know what they do in order to make up for all that we have lost.

Yes, knowing what I've learnt in past few years, I too regret my medical intervention.

But we are where we are, and with this website we can try and learn from each other how and what to do when primary care fails us.

Shredder29 profile image
Shredder29 in reply to pennyannie

Thank you for the kindcresponse and info.

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