Does anyone have any experience with ... - Gorlin Syndrome G...

Gorlin Syndrome Group

Does anyone have any experience with the Erivedge pill by Genitech?

ashley12 profile image
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My brother has been taking this pill for 10 months and has had good results... We are looking for other opinions on the topic. Thanks!

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ashley12
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markknight18 profile image
markknight18

I've been on for 3 months and I'm having good results!! The side effects are sometimes hard to deal with! Musle spasams and loss of taste, still have my hair, so far!!

ashley12 profile image
ashley12

Oh Great! I am glad you are having good results... what does that mean for you? My brother has been on for 10 months and has seen a decrease in size of many of his basal cell tumors... some have even disappeared. He did lose most of his hair around 8 1/2 months though. Do you mind me asking where you are from and how old are you? What other treatments have you tried? Sorry for all the questions, we just don't have any connection with others with this syndrome. thanks for responding... look forward to hearing from you.

markknight18 profile image
markknight18

I live in northern michigan, I'm 48 yrs old! I was twelve yrs old when they started finding cyst in my jaw.and by the time iwas 18 the bcc started, I've had number moh surgeries. I've used aldera and flouracil .5 which worked.but I have lesion they found in my ear 3months ago , that's when I started erivedge .most of my bcc has almost disapeared!