Just to say Hello: Hi, I have just... - Gorlin Syndrome G...

Gorlin Syndrome Group

Just to say Hello

Coconuts3 profile image
2 Replies

Hi, I have just joined. I have had Gorlings for over 30yrs first starting off with jaw cysts and then 4yrs later was told I had skin cancer. I have had a lot of treatment on my skin but have regular checkups. Because of all the treatment I have just started taking a drug to stop the BCCs appearing. It has side effects but its a matter of weighing up the options. Wish me luck

Written by
Coconuts3 profile image
Coconuts3
To view profiles and participate in discussions please or .
2 Replies
gragra62 profile image
gragra62

I have been afflicted with Gorlins and Rodent ulcers for 65years, My photo shows off my prosthetic nose with losing half with a cancer. I don't worry Just keep visiting my medical for check-ups. Just be happy, keep dipping your bread and have faith in God.

Coconuts3 profile image
Coconuts3 in reply to gragra62

I agree, just go with what you have and be thankful its not a lot worse. Best wishes and take care.

You may also like...

Gorlins throughout life

am a Gorlins sufferer. Recently my BCCs are appearing more frequently and are growing at a faster...