Gluten Free Guerrillas
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Hate this diet!

Hi friends...Ive bin on a gluten free diet for a while now and slowly getting used to.but starting this lactose free diet is horrible..some of you told me it's not difficult and there's plenty of things out there. But not everything is nice!even little things snacks like chocolate I still haven't found any I like..lots of things I have to now think of lactose all as gluten free. It's not getting easier like many told me. Maybe it's just me....

One question I wanted to ask is after eating lactose if you don't get any symptoms is it OK to have something which has lactose -not very often of course

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Hi SID,

Adapting to new a diet is hard - both mentally and physically. Too many people underestimate that fact. It certainly was hard for me. It quite literally did my head in. I'm a dairy and soya intolerant vegetarian Coeliac. And for a while I was also intolerant to eggs. In the end, I had counselling from the NHS to help me to come to terms with it all. These days I would describe what I experienced as like a grieving process. You do come out the other side - but it takes time.

It seems that over the last few months you have done a lot of good work and positive experimenting finding out what you do and don't like (and what you can and can't have).

For the record, it's definitely okay to miss the stuff you liked to eat. In many ways it's not fair that we have to miss out on foods that other people can eat and take for granted. For us though, feeling well has to come first.

If you want to reintroduce dairy foods, then do (of course listen to your doctor's advice instead if necessary!). You may have a reaction or you may not. Trying them again is going to be the best way to find out. Probably not a good idea to binge out on them though. If you react, then obviously you must stop eating them again.

Some people find the enzyme lactase useful when eating dairy products, because it breaks down the sugars into something the body can digest much more easily.

Many Coeliacs can introduce dairy products and be fine. This is because the villi in their gut has healed enough to cope with it. However it depends on how bad the damage was to begin with as to how many months after diagnosis this is. Some people I believe have to go for around 12 months before they can reach this point.

Take care. x

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Hi Regalbirdy

Thanks for your reply it makes do much sense and everything you said is exactly how I feel and to your advice was 👍🏼...your last part about some coeliacs can introduce dairy products slowly sounds great - they're the lucky ones 😞

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I am Coeliac too. trying to be Lactose free. I find it very difficult.

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Exactly how I feel

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Hey

Im not coeliac im highly intolerant , so i dont get anywhere near the stuff. Always been dairy intolerant so yeh it pretty hard goin. I also have ibs so theres other bits i cant eat ie eggs onions garlic red meat.

At first i stood in aisle at supermarket and cried.... had full on breakdown then a strop!!

Now 16 months on i dont think about it...

It so natural to me now i do my shop as a normal person would, i eat lots of fresh fruit and veg and chicken/ turkey.

They do lots of gf and dairy free cakes. I dont feel i miss out anymore. I even have a chinese takeaway now and again if u have good one they should b able to do gf free.

It is a steep learning curve BUT im 2 stone lighter, healthier, my pssoarisis has gone. My skin hair and nails look fantastic and i dont get ill all time which i was always ill with stomach pain

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You have done really well Lulububs

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I agree with everyone here, it's hard but it does get easier. I'm gluten, dairy, soya and alcohol intolerant. I've been off dairy, soya and alcohol for 6 years and gluten for a year. I am much healthier (kidney disease improved and all sorts of GI and other issues have gone), leaner and have loads more energy than I have for years, so I know it's worth it. However, even now I still have moments when I feel really cheated! Its all about finding what works for you - I always have some 70% chocolate bars in the house so when everyone else is pigging out on choccie snacks I can join in - I've discovered that lattes are fantastic with oat milk - I can make fantastic creamy puddings with avocados, peanut butter, coconut cream and cocoa powder - and coconut yoghurts are actually better than cow's milk. There are also things like nakd bars which are gluten and dairy free (but watch out they have high sugar content), and they're a nice indulgent treat. I think the only thing I haven't found a good alternative for is cheese, I just don't think vegan cheese works, so I do miss cheese but I've adapted. One thing that may be good for you if you're in the U.K. and can have dairy without lactose is the Arla lactofree product range. You can get cheddar, cream cheese, yoghurts and milk. All are cow's milk but with lactose removed. They're great if you're lactose intolerant but if you have a problem with dairy not just lactose then they're no good. Good luck!

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Hi Sid

Lactose doesn’t damage your insides like gluten can, so you can have some occasionally. It’s just a question of finding your tolerance level.

I think that many of us end up eventually eating a lot differently. Hang on in there and keep trying new things.

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So that means eating or drinking food containg lactose wouldn't have a side affect as bad as an item containing gluten?Penel

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It depends on what kind of side effects you have. If I eat any gluten by mistake it causes pain and diarrhoea, lactose just makes me feel nauseous.

I would never eat gluten because of the damage it does to the body, and I prefer not to have any lactose but I know I can tolerate a small amount.

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Sid not everyone with Celiac disease is Lactose Intolerant. Lactose does not damage your villi like gluten , however, it can cause discomfort on a damaged gut until the gut is healed. Some people eat dairy with no problem while others have to avoid it. If it doesn’t give you side effects indulge all you like!

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Hi praticia1040..im one who is lactose intolerant with coeliac disease.i really can't think of any symptoms after having dairy foods. It's the gluten that's the main problem for me which is what I definitely need to avoid.

So if I don't get any symptoms with lactose would you suggest it it's ok to eat what I like including dairy?

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I just assumed that being lactose intolerant means avoiding all dairy just like having coeliac disease means avoiding all food containing gluten

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Sid if you were lactose intolerant it would give you bloating, gas some plp diahrea! If dairy doesn’t give you any symptoms you can’t be lactose intolerant. Intolerant means dairy gives you negative symptoms. If dairy doesn’t bother your stomach just enjoy it. Gluten is what you need to avoid.

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I have two daughters with Celiac disease. One is lactose intolerant and when she eats dairy it gives her diahrea. My other daughter who is celiac eats all dairy with no problem . She has no symptoms whatsoever so she continues to enjoy dairy!

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To patricia1040

The only symptom I suffer is bloating - constant bloating. That's y in afraid of eating dairy

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When I ate dairy I had exactly the same symptoms bloatiness but now since I cut lactose off iam much much better I drink kilo milk which is gluten and milk free and tastes good actually and there is koko yoghurt too which is nice .the changes are difficult to start with and acceptance is the most difficult part specially if you go out and dine somewhere.but in order to feel better we have to sacrifice so many things ....

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That's exactly how I feel. Ur message skins like myself talking. Thanks for that message

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How long did it take for you to notice your bloatiness symptoms to start going

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Can’t remember how long it took but it took couple of weeks I think to notice symptoms to disappear and now I feel much better ! It’s a jorney and u have to enjoy it ms rewards :-) everyone is different and the time it works also is different for each individual !

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Yes it is different for each individual. But my bloating for some reason since I started my lactose free diet seems to have reduced - I thought I was dreaming but some items of clothing are not as tight for me. Only reduced a little yet but I was soo excited and pleased and thought to myself it must be the lactose free diet I've started that has started to make a difference. Do you think it could be?

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To Patricia 1040-

It's the bloating that is the is the one symptom that still hasn't gone even after starting my gf diet. But I'm being patient and now thinking it's the dairy doing it

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Your dr can test you to see if your lactose intolerant and if that is what is causing the bloating. I think it’s some kind of breath test!

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Yes I've had both tests done - one for my gluten and one for my lactose. It's hydrogen test where you blow into mouthpiece several times. The results were positive

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Does gp in uk do these tests?

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Yes they do

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With any elimination diet, whether lactos, gluten, Autoimmune, usually a month to 3 months then add and see..but add slowly just one thing and see..you can repair your stomach with bone broth and digestive enzymes as well..

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Yes beemewr45...i think ur advice makes sense. Adding slowly would be the best thing only after a few months though...like others here have said

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My daughter was diagnosed two years ago with Celiac and she still can’t tolerate dairy. They say some people can tolerate once their digestive system heals while unfortunately others never can!😞

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What exactly happens to her?

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Bloating but mostly diahrea

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I'm on AIP and have been for the last year-and-a-half. Believe me, sister, I know what you're going through. I used to be an ice cream and cheese addict. I have found that it gets easier. You find other rich things to crave. I have recently reintroduced cultured ghee, which is lab-certified lactose and casein-free. Because of this, I can have something that tastes very much like cheese over my steamed vegetables. What I do is mix equal parts of ghee and nutritional yeast and then mix that with my vegetables. Tastes enough like cheese that I never miss it! And I used to buy a block of cheddar to eat by myself almost every week... Keep trying. The returns take time but are so worth it!

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