Hi, does anyone have tried CBD ( cannabidol) oil or any information about it?
CBD oil: Hi, does anyone have tried CBD... - Glioblastoma Support
CBD oil
We are trying CBD & THC mix from wellfordclinics.com/
Hello there. I think there are some really good benefits to CBD when used to help ease symptoms from Glioblastomas. There is still a lot of research to be done but many trials are showing the benefits of cannaboids in conjunction with other treatments. For my dad we used Koi CBD - I did a lot of research, too much probably, and found in some early stage trials on animals that inhaled CBD found it’s way through the blood/brain barrier and actually could attack the tumour. Of course this is all very very early stage stuff but we combined the inhaled CBD with some prescribed Fluoexitine (aka Prozac) which did wonders for him. He was a 79 year old who already had quite a late stage tumour and was bed bound and spoke rarely but he lived a further 6 months after we started this combination of treatment along with his standardised prescriptions for the tumour (anti-seizures etc). Somedays he would come back to us and talk lucidly and we felt that these more alternative treatments really helped with this. He remained in great spirits, laughing and smiling which to be honest was worth anything. Sorry for the ramble, basically Koi CBD (Inhaled) was what we used and would highly recommend. Obviously I am not a doctor and know there are know supported CBD treatments apart from the exciting developments with Sativex, but personally, we feel that this was more successful for him than radio and chemo which has been the prescribed course of action post-op for the last 20 years without any real change. I wish you well on your journey. James x
Ah that’s great news, I think it really helped my dad. His was via an inhaler which can be purchased from the Koi CBD website. They are U.K. based easily found on google. We did not see any private clinics, I fortunately was able to spend too much time reading and researching, reading medical papers, journals, and understanding a bit more about the biology of the brain and why typical treatments are not more successful. I really feel that with the number of positive looking trials going on globally at the moment there must be a breakthrough in treatment around the corner. The problem has always been breaking through the blood brain barrier which is why chemo and radio is more effective in other parts of the body, also the GB4 cells mutate and evolve in such a way that they disguise themselves as healthy brain cells which is why operating is difficult as well, especially achieving total removal of the tumour and its spiders. I am not a doctor I just wanted to give my dad as much time as possible and I at least felt we did that for him.
Thanks James for your replying. It is very helpful for me.
Thanks for asking. I take CBD/ THC (a tiny bit of "Rick Simpson Oil") every night before bed. It seems to help me sleep. Since I'm sleeping I don't notice any reactions. I also take CBD drops every morning.
my dad was diagnosed with GBM officially in June but we knew it was there from at least March as clearly visible on scan but mistaken for a stroke. With Sativex now moving to Phase 2 trial we feel there is definitely something positive going on with the use of CBD/THC. My Dad has been using cannibas oil every night under his tongue for the past 3 months. He has tolerated it well, it helps him to sleep and his first scan post chemo radiation was really quite positive. We are not medically trained at all but when facing a diagnosis of 12 months or less we figured we would take our chances.