Presiflo Shunt Op has anyone had this op ? I h... - Glaucoma UK

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Presiflo Shunt Op has anyone had this op ? I have been advised I need it in both eyes. Would be grateful for feedback .

Olivertwist24 profile image
17 Replies

I have had primary closed angle glaucoma for several years now need a Preserflo Op. would appreciate feedback .

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Olivertwist24
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17 Replies
Trish_GlaucomaUK profile image
Trish_GlaucomaUKPartner

Hello. There are a few forum member who have had the presaflo. I'm sure you will get a response to your post.

We also offer a buddy service, where we can put you in touch with a person who has had the procedure done. If this is something you are interested in, please call our helpline on 01233 648170, where we would more than happy to help you.

Astilbe profile image
Astilbe in reply toTrish_GlaucomaUK

Hi Olivertwist, I had a PreserFlo about 4 years ago. It didn't work for me at first, the tube blocked up and had to go back on drops to lower pressure. I had two remedial procedures a few weeks apart to unblock the tube and eventually it worked in lowering the pressure. I think I was unfortunate in that it works straight away for some people.I subsequently had a trab in my other eye with far less complications .

Anyway they will operate on one eye at a time so you will know if a preserFlo is going to be suitable for your other eye.

I hope that your operations go well for you.

It is brilliant not having to use eye drops with the side effects after nearly 20 years of using them and my sight and pressures are good at the moment.

Olivertwist24 profile image
Olivertwist24 in reply toAstilbe

Thanks very much for your reply very helpful. I am not sure whether the trab op is the best option in the long run after reading up. Some say they are less complications with preserflo than the trab? I am in my early 70’s would prefer just to go the best option first time ! My pressures are remaining high I have the added complication of being on steriod inhaler and the beta blocker eye drops which aren’t compatible with each other for treatment . I am glad you got it sorted in the end was the trab better for you on the whole ?

Olivertwist24 profile image
Olivertwist24 in reply toTrish_GlaucomaUK

Thanks very much Trish that is very helpful to know .

LineyJ77 profile image
LineyJ77

I had this surgery in my left eye in April. It brought my pressure right down - too far actually, so I had a stent (piece of mesh) added to slow the drainage. I had my right eye done two weeks ago, with a stent. My eye is tired and sore - all part of the healing process. I’d be happy to share my experience further if you’d like.

Olivertwist24 profile image
Olivertwist24 in reply toLineyJ77

Thank you Liney J77 for your feedback it all helps hope your eye feels better soon. It’s not knowing what effect it will have afterwards with any complications that is worrying

bakethat profile image
bakethat

Hi, I had a Preserflo op on my right eye last November, I also have closed angle glaucoma but only in one eye. I had become allergic to all eye drops and my pressure had gone up to 40 so it was arranged quite quickly. The operation went really well, and I had it under a local anaesthetic and the following day my pressure was down to 6 and has now stabilised at 10. My surgeon is very pleased with the outcome. I had no post surgery issues at all. I was very careful regarding no bending or lifting etc to start with and made sure I didn’t miss any of the post surgery eye drops, which is most important. Apparently for me a Trab wouldn’t have been the best option so I am very happy with how it all went.

Olivertwist24 profile image
Olivertwist24 in reply tobakethat

Thanks Bakethat good to hear all went well and thanks for the info on keeping to the post op eye drop regime & not bending or lifting .

Machicado profile image
Machicado

I too am in my seventies. I have open angle glaucoma. I had a Preserflo in my right eye in Feb 2023. Done under local anaesthetic and brought the presure down to 10 where it has remained. (Have a check in a couple of weeks time so fingers crossed as I type!) You have to be careful after the op to follow all the instructions but I did not encounter any problems. Happy to speak to you if it would help. Good luck.

Olivertwist24 profile image
Olivertwist24 in reply toMachicado

Thanks Machicado for positive outcome in our age range .Glad it went well for you and I am hoping for same result 🤞.

Bec8891 profile image
Bec8891

Hello,

I had both my eyes done last year at both my pressures were at 46.

I had one eye done and the other 4 weeks later.

My recovery time was so much longer than the information I read about.

I won’t lie, for me it was a horrendous experience but short lived. I couldn’t open my eye for 4 weeks and needed to wait longer for the other eye but would risk loosing sight so I couldn’t.

Many people had it and was not a bad experience and was back up and running within a couple of weeks.

I am now over a year on, my eyes get quite sore/tired. I can feel a pull in the eye when I I stretch them to look to the back of the car for instance. I can’t rub them but it is much better than the alternative.

My eyes are quite closed now since surgery whereas before I had quite large eyes.

I don’t write this to put you off or worry you, just trying to be honest as I had very little information before mine.

Day to day now is absolutely fine. It has caused very very dry eyes. Xx

Olivertwist24 profile image
Olivertwist24 in reply toBec8891

Hi Bec8891 thanks for your honest opinion and sorry it was not a better experience for you sounds like your on the road to recovery now . I am not looking forward to it but want to still have my independence & still drive so need to have the op. Not sure how long the shunt works for in years . I am glad to get all views.

Longwalks3 profile image
Longwalks3

I had a Preserflo shunt in my right eye in 2020. Unfortunately it did not work for me as the bleb never fully healed and my pressure remained too low for several months. In the end it had to be removed. I think you can tell, by reading the comments others have left, that everyone's experience is different! In the end I think we have to trust our consultants to choose the right procedures for us and then hope for the best. One thing I have learnt over the past 5 years is that if a procedure does not work, there is always something else to try. My pressures are now stable, and although I have lost some vision, I am now hopeful that I will retain my sight in the future.

Olivertwist24 profile image
Olivertwist24 in reply toLongwalks3

Hi thanks for your comments and sorry it did not work for you. I am not sure yet if I will be offered trabeculectomy or the Preserflo . What else were you offered when it did not work ? Appreciate your philosophy re comments & hopefully consultants choosing the right op. Glad your pressures are ok now .

Longwalks3 profile image
Longwalks3

I understand from all the consultants I have been under that my eyes are very difficult to work with. I have deep set eyes, a high degree of myopia and many years of glaucoma drop use has left the front surface of my eye very thin and difficult to work with. For these reasons trabeculectomy and preserflo did not work for me but I expect that your situation is very different. I have had baerveldt tubes in both eyes and I have also had cyclodiode laser treatment and canaloplasty in both eyes which has worked well for me. I wish you every success with what ever treatment you decide to have.

Olivertwist24 profile image
Olivertwist24 in reply toLongwalks3

Thank you for explaining and glad despite your problems you have now resolved best treatment for you . Thank you for your wishes much appreciated take care .

Karinetta profile image
Karinetta

Hi I had it done 1 month ago. Although rare,a blood clot stopped it from working effectively and 2 weeks later I had another op to flush it.The original op was done under local anaesthetic 2 I have to say painful injections around the eye. The op itself lasted 45 mins approx. There were a. lot of different drops to take during the day , and the main effect dor me was physical fatigue, a bit like having a virus. It lasted for about 10 days. I was signed off for 2 weeks.

I have now had the flushing, and this time my main struggle is that the 2 stitches ( which will be removed after 3 weeks) hurt so when I blink it feels like there is a large grain of sand in my eye. My consultant says that this can happen, though not always and prescribed a lubricant that helps a bit. The other effect is nausea, a weird one. Could be Predforte steroids I am taking. My eyes feel very tired and I have a headache in my effected eye most of the time. I have to add that my vision in my affected eye is very blurred downtown optic nerve damage, so I am hoping that once I get the go ahead I can get to the optician and get a proper lens.

I wouldn't hesitate to have this op though.

My pressure was 32 -35 for a long time I tried laser SLT x2 which was a waste of time. After the flush it was 5 and now 19, but we are hopeful to get that down as the Predforte has increased eye pressure as a side effect. I hope this helps

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