Moorfields Reseach

[muddledme]

In a recent Glaucoma UK webinar a Moorfield's Doctor mentioned some research concerning Vit B3 which may commence this autumn. Interested patients with glaucoma were invited to fill in an online form and ask their G.P to send copies of their notes to the hospital.

Today I asked a G.P receptionist and gave her a letter with my request. She was very helpful and said that as long as I included a secure E mail address, then that should be fine. I only asked for a summary to be sent, hopefully that would be enough !

[Dave_H1]

I have just signed up on the Moorfields site as well muddledme. Now to see if I meet the criteria needed.

[SpaceBend in reply to Dave_H1]

Link please ?

[Dave_H1 in reply to SpaceBend]

research.moorfields.nhs.uk/

[SpaceBend in reply to Dave_H1]

Thank you I’ve signed up

[Beecalmed in reply to Dave_H1]

Yes, I’ve signed up and emailed my GP! Wondering what the criteria for selection is too! Worth a go though!

[GardeningDorset123]

That's great.can you keep us posted ??

[Dave_H1 in reply to GardeningDorset123]

Will do.

[SpaceBend]

Interesting! Wonder what the trial is looking to achieve

[Spanieldoglover]

That’s great muddledme, please do keep us updated. Have you started taking the supplement yet or are you waiting to see if you are contacted by Moorfield?

[muddledme in reply to Spanieldoglover]

Yes , I have started taking 500mg Vit B3 in capsule form( without all the additives) I realise this could rule me out of the trial, but I was also tempted to start as Nicotinamide is supposed to lower cholesterol. Will get a blood test in a month or two to see !

[Sunshine88888888]

Hi Muddledme I would be very interested in this, however I can’t find the webinar nor any webinars ! Probably me! Can you send me a link please 🙏

[muddledme in reply to Sunshine88888888]

It took me a while to find it, but if you google :" glaucoma uk webinars you tube", you will find a lot of webinars. The last one that mentioned Vit B3 was dated 23/2/2022 and called "Everything you ever wanted to know about glaucoma" All the ones I have seen have been excellent.

If you want to book up for future webinars, they are often mentioned on the forum, in the right hand column. Sometimes I search for glaucoma uk digital support groups.

If you watch them live you may be able to ask a question and listen to other Q&A's.

Good luck

[Redshoes15]

I have signed up and wait with interest! Thank you x

[Helen_GlaucomaUK Administrator]

Good luck everyone! I realise how important this is to all of you. For anyone who may not fit the criteria, with any luck you will benefit in some way from the research findings.