Sorry for the short notice but this w... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Sorry for the short notice but this webinar for World Brain Day (22 July) may be of interest to people here.

210272 profile image
210272
•7 Replies

Join us on World Brain Day for a public webinar about #BrainHealthandPrevention.

Register here👉 bit.ly/41HCCfn

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Lady4 profile image
Lady4

Sorry missed it is there any feedback material from it.

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210272• in reply toLady4

I found it interesting since 'no patient left behind' was part of the theme. But a lot of it was repetitive and I didn't feel patient voices were particularly well represented especially when they were talking about prevention being better than cure. Unfortunately they only mentioned air pollution as a major risk factor so there was nothing about the climate crisis. 7/10 - would have been lower but there was a better mix of genders and ethnicities than usual :)

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Lady4• in reply to210272

The theme title isn't well researched as we all know from members on here, it isn't true but glad you found it interesting.

How can people prevent it because in my experience it just comes out the blue and we aren't prepared for it.

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210272• in reply toLady4

They weren't talking about the prevention of FND (it didn't get mentioned) but there are some neurological conditions like strokes that can be prevented. I think having a couple of patients speaking would have enhanced the webinar and although it's likely that some of the speakers are patients, they weren't presenting in that capacity. There were lots of slides that I would have liked to study in more detail but there's no way for people who signed up for the webinar to access them.

Lady4 profile image
Lady4• in reply to210272

Can you email them for access?

My friends daughter in law to be has stroke like symptoms but diagnosed with a special type of migrane. Although she didn't tell me the exact name, pretty sure she was talking about Hemiplegic Migrane.

I noticed the symptoms of this have been mentioned in other posts and you wondered if you had any advice/links I could share.

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210272• in reply toLady4

Unfortunately I can't email them for access. I think Hemiplegic Migraine is misdiagnosed as FND a lot (as does vestibular migraine) and there is good information about it on The Migraine Trust's site :)

Lady4 profile image
Lady4

Yes I thought that too. Thanks.

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