It’s confirmed. It is Gastroparesis. Update

[AjaStar]

Hi everyone! I’m here for an update. I have completed the gastric emptying scan, which took 5 hours (thank goodness for cellphones and WiFi) . I had to eat some radioactive eggs along with crackers and jelly. You don’t taste the radiation but the scrambled eggs are not the best since it’s microwaved. Every hour they took a new scan and after being there for five hours I went home to wait for results. My doctors office called me and told me I have gastroparesis and they are mailing me a referral for a nutritionist. So the treatment is basically changing your diet. I’m still waiting for the referral but in the meantime I have made changes to my diet and it has helped. I eat small meals. I was mostly eating hard boiled eggs and crackers, toast and chicken noodle soup mostly broth….and nothing after 6pm. My nausea and bloating has improved. So I started to reintroduce some of my normal foods and as long as my portions are small I can handle it and still nothing after 6pm. I do notice the fattier and sugary the food is the worse I’ll feel so if I want that cake it has to be a small piece and eaten earlier in the day so that I have most of the day left to digest it. Everyone is different so you have to test each food so you know which ones are the triggers. Eat a few bites and wait a couple hours to see the reaction. I have lost 15 pounds already, but it’s ok since I am overweight, but now that my stomach has improved with my new strategy I have increased my calorie intake so my weight loss will continue but not as fast as before. When my nausea comes back I manage it with eating less for my next meal or skip it. If you drink a nutrition shake to replace a meal you have to drink it slowly. It sucks I have another part of FND I have to deal with but that’s how we deal with new symptoms…we get scared and wonder what is happening now, what is wrong with me…then we go through the symptoms, go to the doctors and take the necessary scans and tests…then we get told there is no cure we have to find a way to deal with it and manage it mostly on our own…then after a while we find our triggers and we find what helps us somewhat. We know this rodeo. Hope everyone is having a mild symptoms day…and anyone in a flare, know that you’ll feel better soon just hold on and you’ll get back to your baseline. Good luck everyone!

[cocoferraro]

Hi Hon,I was astounded to hear what you are going through with your diet.

I am sort of the same, I have started eating gluton free bread etc and lactos free milk etc,

got to say that I feel a lot better but the coitis symptoms are still the same does not matter what, but still feel better for gluton free etc.

I do not know if this is connected to the FND but have a feeling that it is,

It sounds like youare gettin good treatment, so it must carry on....

I was diagnosed with FND 8 years ago.and have somewhat learnt to live with it, but I am in England, it must be so very different for you,

I wish you best wishes, and please carry on xxxx

[AjaStar in reply to cocoferraro]

Wow eight years! Sorry you have suffered so long. It’s been over 3 years for me and overwhelming. Would you share your symptoms and what helps you cope?

[Jilly61 in reply to AjaStar]

Hi AjaStar

I knew about the small meals and softer easier to digest food but I didn't know about not eating after 6pm.

The last week my spasticity has increased in my legs to the point of having painful spasms twice a day .

I have figured out it's my stomach and it seems to be tolerating even less food.

So for the last 2 days I have been on the replacement vitamin drink.

The spasticity is still an issue so still trying to figure out what else is causing it to flare so bad.

Good luck with your gastoparesis journey.