Help with getting care

[Charlie1988]

Hi. I am newly diagnosed with FND in the UK in England. I need care and my social worker is meant to be sorting things out. I currently have hospital carers coming in 4 times a day to help me with some things. But they are not allowed to help me with most things I need help with and most of what care I need will he based on their assessment of me and what they help me with. But I would need someone to take me to appointments and shopping and going out if I wanted to go out for some fresh air, in a wheelchair. I would need someone to change my bedding and do housework and general everyday things to keep things tidy and stuff that these carers aren't allowed to do. At least my social worker told me I wasn't allowed to ask them for anything other than personal care and to not ask for anything else from them. So I haven't because she scares me. Other than getting me food and drink because I need that and can't get them. So I am worried I won't get the long term care I need and I don't know what to do. Does anyone on here know? Or have any suggestions or has been through the same sort of process as me? Thank you.

[Hidden]

Hi Charlie, I will PM you if that's ok?

[Charlie1988 in reply to Hidden]

Yes no problem.