Anyone only get siezures upon being upright and walking

[Charts]

The neurologist I'm seeing thinks I have fnd as I started having siezures 4 months ago. I've just been diagnosed with pots syndrome also. I'm just confused where these siezures are coming from fnd or pots. I only get them upon being upright and especially from walking and that can be just 10 meters. Do anyone else get siezures only from being upright and active? The first thing that happens is I can't speak and then comes a siezures.

[Jofachiz1]

When you say seizures, what is happening when you start walking?

[Charts in reply to Jofachiz1]

My legs go like jelly, then I can't speak (literally my words won't come out) and then my whole body starts fitting for about 30 seconds

[Brokendeer]

Hi I have Motor FND, so cannot personally speak about POTS. However I know someone with POTS and they started to be investigated for FND too, but were unable to undergo the tests as their Addisons was too bad.

Addisons Disease was classed as the trigger for their POTS. But the seizure/blackouts related to POTS do happen when they are standing, walking, fatigued and to relieve the symptoms they have to lay down (wherever they happen to be) sometimes for several hours until it passes.

To go out and actually not have an attack for important activities, they were given an Adrenline Injection to be administered by who ever they are with during the social/medical trip. This delays the attack, buying them time to get through the event until getting to the car or even home again.

Now Adrenline obviously raises the heart rate and blood pressure, so I'm guessing that might be an avenue you could explore with your Doctor or Specialist purely for the POTS management?

As for the FND, it is a condition that can be alongside other brain related conditions and is actually commonly found even in Parkinson's and MS patients. FND brain problems stem from nerve signal overload or confusion, and I can see how plummeting blood pressure in POTS could confuse the Brain processes - so it is possible you have two conditions going on?

Although I only have Motor FND, I do believe in trying to level out Adrenaline levels in every day activities i.e pacing physical / mental tasks - it seems to help my walking be less dramatic or distressing and helps me to finish tasks, if I have done the pacing right for that particular symptom affected day?

Be kind to yourself, keep positive!