I make myself go for a daily walk. I use my stick and I can honestly say it's not always pretty. But I'm fairly steady with my voluntary movements now. So when I stop and I sit down for a minute or even while standing, if I stop the twitching begins.
It seems that if I can put a pattern in place for the muscles (walking for instance) I have severely reduced involuntary movements. But once I relax, well, sadly my body beats to a different drum. One that I have no control over.
This isn't seizure level twitching but intense momentary jerks...sometimes the same jerk five or six times in a row. Other times it's a leg or an arm, maybe a combination of limbs....you never know.
The twitching seems to amplify with the intensity of my exercise. The more I do... the more I feel the twitching. Though I can wake up bad some days without any movement. And I really have to say the word twitching is not quite strong enough to fully express the experience.
I know I have to keep moving because I don't dare lose that skill. Now I won't see the neuro until July. Still no Physio as the hospital is locked down. I just didn't know if anyone else was experiencing or maybe had experienced something similar. I hope I'm not messing myself up, but I don't think continuing to move is a bad thing. I really hate the twitching.
Blessings to all.