How many of you have been tested for Rocky Mountain Spotted Fever? Just curious...…...
RMSF: How many of you have been tested... - Functional Neurol...
RMSF
Written by
Heartofgold
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10 Replies
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Not that nor lyme. I dont live in a country that is at risk of those infections.
Where do you live?
Sadly Chronic/Neurological Lyme Disease is a worldwide problem that is not being recognized in the mainstream at this time, leaving many unwell not knowing the cause.
This is a good resource by a LLMD for a better understanding which might be helpful.
I live in NZ
At the moment we literally dont have ticks acting as disease vectors for lyme or the like
Yes, I have RMSF, Lyme, Bartonella, Mycoplasma as well other infections. Do you as well?
After being diagnosed with FND I felt led to continue searching for the underlying cause which led me to be seen by a Lyme Literate Doctor.
At that time I was not aware of the complexities of Lyme Disease nor did I realize about the coinfections.
Sadly the mainstream medical does not recognize Neurological/ Chronic Lyme due to the IDSA guidelines which they follow. I was not tested for RMSF, Bartonella, etc by four hospitals I was seen at and by the many doctors. I was tested for Lyme in the hospital being told my test was negative(at that time I did not know how unrealible that test is).
I often wonder due to some of what I shared, how many like myself are given a diagnosis like FND with no known cause, when these microbes could be the underlying cause which can effects ones body in many ways.
I did test positive, had a reaction to the treatment, and then was told by Johns Hopkins Infectious Disease that I never had it, and that I'm fine.... what a day.
I am sorry. How are you doing now? Did you continue treating under different care?
I’ve tested negative for Lyme disease
Western Blotter IgG and IgA are for Rocky Mountain....I'd get checked during your next routine blood test just to be sure. A lot of doctors overlook it, but it infects millions.
I tested positive for Lyme from Igenix & MDL labs after re-flaring of my FND to the point of disability (have had for 11 years, but was in remission for a lot of those & highly functioning) I also have CIRS biomarkers and they did find water damage in our home we’re in the process of remediation. At this point I’m a skeptic and will see what’s causing what once I start healing....I do have deficiencies too Vit D, Carnitine (which is necessary for mitochondrial to work), iodine, vit b12.
I hope you are feeling up to your old tricks very soon! 
