A New Video!

[TheLarryAndy]

Happy Monday! Decided to make a new video for your viewing pleasure. Xoxo

youtu.be/Odo5Tq0lzvE(Not working as expected?)

[Leesaloo]

Hi, long time since seen you, like you struggling on, had improvements but once fatigue sets in back to symptoms. Sleep is awful like yours, awake through night for hours, some nights just unable to get to sleep and the nights my legs ache and unable to get comfortable are soooo long. Mornings I could sleep all morning but get up to try to have some routine. Beautiful weather in England and am enjoying sitting in garden, great to be outside. Still unable to drive, walk far so am isolated at home still, partner at work most days. Blessed with sunshine though. Gotta enjoy while sun out. Great to see you again. Best wishes.

[bagpuss1963]

I'm exactly the same with sleep, fatigue, and eating. I am trying to keep a pattern going because of my medication. I also have my own vocabulary and at times I have to say pictures of items I'm talking about.

I also have MS and dystonia so we never know which one is playing up.

I like the way you described walking through the grass to make my own pathways.

I always try to stay positive, I meditate, but when I'm in a lot off pain my husband always calms me down by doing breathing exercises.

I've listened to your video and you've described everything that I'm going through I thought it was just me

From Cheryl in England