It's Hard to Pick....

Community Friends.

I remain perplexed by the misinformation flowing out of the esteemed medical system.

To explain a simple point to use in conversation with any doctor who may be "fluffing the pillows" with you, I had to choose between the concepts of "pain" and "nausea.'

I choose nausea to demonstrate... mostly because the notion of pain has so many interpretations of how it feels.

So, when you have nausea, what do you feel?

If anyone is simple like me, you say you feel sick, probably even sick to your stomach to be more specific.

But the sources of and pathways leading to the initiation of nausea are so complex that its elucidation remains unclear.

What, exactly, made you feel nausea?

It is not as simple as reasons often given. Yet nausea is the quintessential way for the body and brain to say-

"Hey buddy Something has gone wrong here"

My point:

Nausea tells the story of why FND is unknown as Amallia posted.

It is very much the reason why it has to be fully investigated. Would you get an MRI for just nausea? Probably not. Wouldn't be first line test because it might only show the cause by chance. But you might get a whole battery of tests if it was accompanied by other symptoms such as fever / pain, seizures, swelling, etc. which might worry the docs.

So next time the doc tells you that you have FND and you are experiencing nausea, ask them would they do more for you if you had the nausea without the FND label.

FND stands in the path of investigation.

Remind those folks in medicine that they would treat you with more care without that bias.

We have to get out of being medical mysteries.

Best to you all.

Dan / Seattle

[englishmumof2]

So true! My monthly visit stopped so I saw gp and he said well your young it's probably the FND... me we'll can we rule out early menopause as that can be treated and save my new neighbors from me in tank tops and shorts trying to keep cool 🙈. He agreed to time bloods! If all ok it could be fnd but I'd rather rule out everything else 🤗🤗🤗

[Hidden in reply to englishmumof2]

Louisa.

Well said. I thank you for being thoughtful about all of this. It shows that you really want to know what is happening. For all you go through with this, you continue to stay centered on why....

Such a friend.

Dan / Seattle

[patti86]

I love this....such a great way to state it. I do just that. when I asked for a hip MRI since the pain is increased and the X-rays identified a change...he denied me..I believe it was # 2 neurologist...I asked him, and I will quote..." If I did not have "functional" gait in my records would you ave denied me then? Dr B replied that "the first line in testing would be an X-ray and PT and sense both are done and happening there is not a sufficient enough reason to order that test now...if the pain continues then we will reconsider that". Will be interesting to hear his reply since I will be asking for the MRI again..pain remains and I'm denied PT . He may hate that he said that in an email. I save all my emails. lol

as always...great insight! Happy Thursday.

[Hidden in reply to patti86]

Patti.

No, I think he will not hate it because you are exhausting the treatment avenues with lack of positive outcome and increasing pain.

I think you are just paving the way for the obvious next step which is to have an MRI on the hip. He will have no choice because of your documentation trail.

Hope it improves.

Dan / Seattle