About FND does your brain change with the signa... - FND Action

FND Action

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About FND does your brain change with the signals how we receive pain and temperatures

Tracey0101 profile image
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I have had symptoms of FND since 2020 to do with a big knock of change of how my brain worked normally before the stressful event that ended up in traumatised and I no longer knew the my body temperature was dramatically changed and my pain levels were drastically painful to extreme. I no longer could even walk or even bend a finger my brain didn't know how to do movements on my body anymore even my neck wouldn't move from side to side and my Community nurses was torturing me with using cold solution to clean my wound from a burnt chest really torturing me just by touching my skin very gently was extreme pain unbearable pain and despite their efforts to be gentle with me it was torturing me to the extreme and in the end I taught them that they need to warm the solution up you cannot apply anything cold to my skin unless it's been heated up to very hot temperature and they suddenly realised that was the only way that they could touch my skin and clean my wound with their solution is by hot water and no pain levels too high once they did this it was an eye opener for the nurses. That they at to change the normal way of cleaning the wound up with hot water.

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Tracey0101 profile image
Tracey0101
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Littlecook profile image
Littlecook

Hi Tracy I know how you feel i was on the waiting list for 5 years before I got to see on ,

Keep phoning and don't give up make pest of your self .

Tracey0101 profile image
Tracey0101 in reply to Littlecook

I'm not giving up I'm trying and my care company is supporting me with the Doctor to see if they can help me as its such horrendous pain as well as the brain changing and not working has it should. We have all got enough to deal with most of the time and we need help.