2nd Opinion from JHU: Hi all: I had... - Fight Prostate Ca...

Fight Prostate Cancer

2,801 members1,030 posts

2nd Opinion from JHU

witantric profile image
12 Replies

Hi all:

I had MRI-guided Uronav biopsy on Dec 7, 2022 at UW-Health. Showed one core GL 6 at 5%.

Second opinion from JHU has the same finding as UW-Health but increased the percentage of GL6 to 10%.

This is higher volume than before:-(

Still AS? Or should I contemplate treatment?

I chatted with someone from Epstein's lab (a junior pathologist) because they offered:-) He said any treatment at this point he considers to be over treatment. I guess I am reacting to increase in the volume.

Confirmatory biopsy will be on Dec 7 of this year.

Thanks for your feedback.

Written by
witantric profile image
witantric
To view profiles and participate in discussions please or .
Read more about...
12 Replies
marnieg46 profile image
marnieg46

Hi witantic,

I've not posted this podcast previously because I thought it wouldn't be relevant to most of the 'visitors' to this particular hub of the HU website. However, after reading your post today I think that if you have time, you might find the content very informative and relevant. It might also explain why some are advising that any treatment would be 'overtreatment'.

With these podcasts there's always a bit of chatter and friendly banter which I quite enjoy because I know the people involved but you can easily skip over bits and move forward more quickly.

Trust you find the answer that's right for you...whatever that is...

Marnie.

youtu.be/s2dYwatKQU0

maley2711 profile image
maley2711

yes, overeacting.....10% is still very low volume> did you have a multiparametric MRI to spot any trouble area that biopsy may have missed? That podcast should help you!!!

witantric profile image
witantric in reply to maley2711

Had MRI first and then MRI-guided biopsy. Will watch the podcast. Thanks for sharing

Scout4answers profile image
Scout4answers

Be very vigilant, I had Gleason 6 for many years and was told that it seldom becomes aggressive, I was lax on PSAs and follow-ups. see my profile for my history.

Hope for the best but plan for the worst.

witantric profile image
witantric in reply to Scout4answers

Yes, I plan to be very vigilant. Once it is out of the capsule, it is a different ball game. Your story is very instructive indeed. Thanks for having such a detailed profile. Hope you are doing well. God bless!

j-o-h-n profile image
j-o-h-n

Confirmatory biopsy will be on Dec 7 of this year. <----- 2023??? If so, don't forget my Christmas card....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/22/2023 3:46 PM DST

witantric profile image
witantric in reply to j-o-h-n

How about the annual "holiday letter" have images of the biopsy?:-)

j-o-h-n profile image
j-o-h-n in reply to witantric

Smart Idea...... in fact use Santa's.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/22/2023 6:18 PM DST

witantric profile image
witantric in reply to j-o-h-n

Does Santa have elevated PSA?:-)

j-o-h-n profile image
j-o-h-n in reply to witantric

Yep, ever since he found out he can't have children....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 03/23/2023 3:54 PM DST

I would be interested to know the size of the prostate and how many “sticks”? In other words, sampling universe...... Your results so far are excellent.

GD

witantric profile image
witantric in reply to

Thanks, sir. Two suspicious spots on MRI and so 4 pokes from each those spots. 24 additional pokes from standard areas. Total pokes 32. Not great symptoms for few days after the biopsy. Prostate mildly enlarged (65-70cc). MRI showed signs of BPH and prostatitis.

You may also like...

Aplautamide, enzalutamide: low dose opinions

who on here has experimented with reduced dose? Opinions please on half dose etc. Seem to have...

Orgyvx + alternative treatment

On Dec 1 I took two Orgyvx and dropped my PSA from 70 to 27.8 on Dec 15. I took one more Orgyvx...

8 Month Follow up Report from Lu-J591 

recovered.  PSA before treatment May 6, 2022 was 0.149. 0.176 in March 2022. PSA declined to 0.057...

New strategies against bone metastases from prostate cancer - Science Daily

different drug targets and suggesting different treatments . . . Importantly, both types of...

Consulting on next steps

practice in ref studies. Continuous hormone treatment also increases the risk of castrate...