2nd Opinion from JHU: Hi all: I had... - Fight Prostate Ca...

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2nd Opinion from JHU

witantric profile image
12 Replies

Hi all:

I had MRI-guided Uronav biopsy on Dec 7, 2022 at UW-Health. Showed one core GL 6 at 5%.

Second opinion from JHU has the same finding as UW-Health but increased the percentage of GL6 to 10%.

This is higher volume than before:-(

Still AS? Or should I contemplate treatment?

I chatted with someone from Epstein's lab (a junior pathologist) because they offered:-) He said any treatment at this point he considers to be over treatment. I guess I am reacting to increase in the volume.

Confirmatory biopsy will be on Dec 7 of this year.

Thanks for your feedback.

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witantric
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12 Replies
marnieg46 profile image
marnieg46

Hi witantic,

I've not posted this podcast previously because I thought it wouldn't be relevant to most of the 'visitors' to this particular hub of the HU website. However, after reading your post today I think that if you have time, you might find the content very informative and relevant. It might also explain why some are advising that any treatment would be 'overtreatment'.

With these podcasts there's always a bit of chatter and friendly banter which I quite enjoy because I know the people involved but you can easily skip over bits and move forward more quickly.

Trust you find the answer that's right for you...whatever that is...

Marnie.

youtu.be/s2dYwatKQU0

maley2711 profile image
maley2711

yes, overeacting.....10% is still very low volume> did you have a multiparametric MRI to spot any trouble area that biopsy may have missed? That podcast should help you!!!

witantric profile image
witantric in reply tomaley2711

Had MRI first and then MRI-guided biopsy. Will watch the podcast. Thanks for sharing

Scout4answers profile image
Scout4answers

Be very vigilant, I had Gleason 6 for many years and was told that it seldom becomes aggressive, I was lax on PSAs and follow-ups. see my profile for my history.

Hope for the best but plan for the worst.

witantric profile image
witantric in reply toScout4answers

Yes, I plan to be very vigilant. Once it is out of the capsule, it is a different ball game. Your story is very instructive indeed. Thanks for having such a detailed profile. Hope you are doing well. God bless!

j-o-h-n profile image
j-o-h-n

Confirmatory biopsy will be on Dec 7 of this year. <----- 2023??? If so, don't forget my Christmas card....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/22/2023 3:46 PM DST

witantric profile image
witantric in reply toj-o-h-n

How about the annual "holiday letter" have images of the biopsy?:-)

j-o-h-n profile image
j-o-h-n in reply towitantric

Smart Idea...... in fact use Santa's.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/22/2023 6:18 PM DST

witantric profile image
witantric in reply toj-o-h-n

Does Santa have elevated PSA?:-)

j-o-h-n profile image
j-o-h-n in reply towitantric

Yep, ever since he found out he can't have children....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 03/23/2023 3:54 PM DST

I would be interested to know the size of the prostate and how many “sticks”? In other words, sampling universe...... Your results so far are excellent.

GD

witantric profile image
witantric in reply to

Thanks, sir. Two suspicious spots on MRI and so 4 pokes from each those spots. 24 additional pokes from standard areas. Total pokes 32. Not great symptoms for few days after the biopsy. Prostate mildly enlarged (65-70cc). MRI showed signs of BPH and prostatitis.

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