Reminder- MPN Genetics Webinar Tomorrow! - Fight MPN

Fight MPN

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Reminder- MPN Genetics Webinar Tomorrow!

tclementi profile image
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What do genes, ones you inherit or ones that go awry, have to do with developing an MPN? Find out TOMORROW 1:00pm Pacific (3:00pm Central; 4:00pm Eastern in our live webinar with two noted specialists: Dr. Oh from Washington University in St. Louis and Dr. Moliterno from Johns Hopkins in Baltimore. Please register now and send your questions in to mpn@patientpower.info. A replay and shorter clips will be available afterwards if you can’t make it and are registered for alerts with Patient Power. patientpower.info/LifeWithMPN3

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tclementi
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Pkm52 profile image
Pkm52

How can I find out when Webinars and Seminars are scheduled? I am new to this site. I have been on the British site. I didn’t know about Fight MPN. I am JAK2 + ET x 18 months.

I take 800mg of Hydroxyurea and a baby ASA 2 x day. I struggle with multiple, wake you up hot flashes and the desire to stay home, watch TV all day because I don’t know what to do with myself. I am a health professional and pay my office rent each month but don’t feel like seeing patients. I do take an antidepressant and don’t feel anxious or depressed. I’m just “flat”. It is really hard for me to drink enough fluids and my appetite has moved to another country. Every tells me to just retire but I don’t feel ready to throw in that towel. I will look forward to seeing some educational programs.

Thanks

tclementi profile image
tclementi in reply to Pkm52

Hi there, the best way to find out about our webinars is to join our website here: patientpower.info/user/regi... and you will be emailed! Thanks for sharing your story and we hope you get the relief you need.

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