Zebra's have long been the patron symbol for rare diseases. MPNs are rare enough; pediatric MPNs, even more so. This is a story about a young lady named Anna who suffered through 7 years of misdiagnosis before she was correctly diagnosed with PV. Do you know any families dealing with pediatric MPNs? Connect with other MPN families here.
Pediatric MPNs: Zebra's have long been the patron... - Fight MPN
Pediatric MPNs
Written by
mcints
To view profiles and participate in discussions please or .
Not what you're looking for?
You may also like...
Update 7.0
Things have been coming along pretty well. Iron levels are gradually increasing, resulting in an...
Risks in taking and not taking aspirin with hydroxyruea, especially when older
I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thrombocytosis, my...
Overheating at night
Hi All
I wondered if anyone else has been suffering with overheating at night time.
It’s not hot...
Sign up for our next Living Well with MPNs series!
Join us May 23rd for a live webinar on how to manage symptoms of MPNs, including fatigue, itching,...
vegetarian with pv
hi everyone,
six months ago i was diagnosed with et by local hematologist. his diagnosis and...
