Dear friends. I know many or most of you suffer from fatigue. For many of you its debilitating. I've never thought I had it but now I'm afraid maybe I do and the disease is progressing. For the past two years things can tire me out that wouldn't have in the past. It's not frequent or daily but it's happening more often. It's most apt to occur if I've been on my feet too long (standing and talking to a neighbor for 45 minutes, walking in the grocery store that long) or being outside in hot & humid weather. For the past month or so I also get short of breath from those things so that people around me can hear me breathing hard. Once I sit down I catch my breath within 3-5 minutes. Can you please tell me if you have had this and if you know what it is? It's not so bad it sends me to bed for hours like many of you experience so I'm not feeling sorry for myself as I know how lucky I am. I'm just trying to understand what it is. (And yes Maz, I will be asking my doc when I see him in two weeks.)
Thanks Folks. I'm so glad I have you to turn to, you have no idea how much it means. Katie
I am 64 with a three year diagnosis of PV, though platelets are more of a problem.