What Has Your Experience Been With Generalized M... - Fight MPN

Fight MPN

847 members268 posts

What Has Your Experience Been With Generalized MPN Diagnoses as Well As Misdiagnoses? Check Out our Blog from an MPN Patient.

aking90 profile image
0 Replies

What has your experience been throughout the journey of your MPN diagnosis? Check out the blog below where Elizabeth Gross epitomizes the frustration inherent to cancer patients, and particular to ET patients, who find themselves in the in-between world of being a cancer patient but being diagnosed with a more benign version of an MPN. In Elizabeth's case, the lack of understanding of generalized MPNs among family practitioners as well as oncologists led to multiple misdiagnoses as well as extreme frustration on everyone's part. What has your experience been? Let us know in the comments below!

patientpower.info/blog/pati...

Written by
aking90 profile image
aking90
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Update 7.0

Things have been coming along pretty well. Iron levels are gradually increasing, resulting in an...
hunter5582 profile image

Overheating at night

Hi All I wondered if anyone else has been suffering with overheating at night time. It’s not hot...
Jansap profile image

Pain aches interferon

Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon...

Anyone else with MDS/MPN suffered compression fractures?

Just found out the pain I have had in my back for over four months is due to compression...

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.