Has the cold weather been affecting a... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Has the cold weather been affecting anybodys symptoms , my legs, arms and hands are really painful especially at night...

jellybean49 profile image
27 Replies
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jellybean49
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27 Replies
jendogues profile image
jendogues

hi iv only jus joined the site and your the first question i saw and yes the cold weather is affecting me really bad ,i have constant pain in my legs ,arms ,fingers and ankles and no matter how many sets of clothes i wear im still cold and in pain

in reply to jendogues

Hi I've just joined yes the cold affects me just the same

gypsycrafter profile image
gypsycrafter in reply to jendogues

Oh yes!!! cannot wait till the warm weather comes. Last spring when it was hot, was on holiday and managed to walk the whole week and didnt use the wheelchair once. Today I cannot even get down 4 small steps to use the wheelchair.

Spirit profile image
Spirit

Hands..... and if I rib them is like I'm rubbing crushed glass in.... Found sitting them on a hot water bottle in my lap helped. Also I have microwave slippers.... yes really! xxx

YES! Man do my bones know its cold! everything just aches all over, and usually its just in random places. Everything feels stiff to move and my skin is SO sensetive! i passed something across my bare knees the other day and caught my knee slightly with my nail, and it drew blood! that was almost a week ago and its still a lumpy purple scab :/ I hope it gets warm soon! x x

Kathgary profile image
Kathgary

Cold, wet weather is terrible for me. All my joints hurt.

crissy profile image
crissy

Me 2 christine, i am the same as you we both suffer the same ohhhhhh the pain, i really do not know how i get through the day i wk p/t as a carer, i think sometimes i need one, but i stuggle on, iv found out that people just do not understand, so i do not bother anymore just suffer in silence!

Brujah81 profile image
Brujah81

Hiya, i think that fibromyalgia is like most other arthritis style conditions and is very much effected by the cold so we tend to suffer alot more.. if you think about it alot of us are made to feel better in the heat (not all of us) so the cold makes us feel worse.

kitty1 profile image
kitty1

the cold is really aggrevating my fibro, am so sore, bought an electric blanket for my bed, best thing ever, wish i'd of got one years ago,

ichelle profile image
ichelle

HI ive just joined, yes the cold weather is a nightmare, my fingers, toes and nose are the worst always icy cold. My nose is very worrying, painfull to a point i could cry, when it dose warm-up it feels like it's on fire, but i look in the mirror and i look the same. I don't understand how you can be in such pain and look so well normal, if anyone asks me whats wrong, i don't say anything as there's no point in trying to explain. If you can't see it, your fine.

shazzll profile image
shazzll

the cold has always effected my fm really seems to get in all my joints and bones i ache everywhere and like Jendogues it doesnt matter how many layers i wear im still cold even with the heating on 26 degrees... i go out dressed up like an eskimo...lol

ichelle profile image
ichelle

I have exactly that same, and yes i get confused which is which.

new here but yes i hurt when its cold bought a warm blankey it works sometimes ... i also use a cuddle pillow so my arms are supported leke a pregnancy one but mine is only a single

Ginnykinny profile image
Ginnykinny

Hi ive just joined the site ... yes the cold affects me very much the pain is worse :-(

crissy profile image
crissy

Just to say thermal undies are good, also a memory foam bed or topper helps in bed

susiex profile image
susiex

hi, im the same, my legs arms, feet , infact everywhere.also my shoulders, where my neck meets then, hurt like hell.its so painful to touch. i cant bare to touch my skin, it feels like someine is sticking pins in me all over and its so sore. just got to grin and bear it i suppose lol x

missmonroe profile image
missmonroe

Hi. just joined the group. I have rhumatoid arthritis as well as fibro and find the cold weather makes it worse.Find myself wearing thermal leggings under my jeans,scarf and gloves in the house.

cobweb profile image
cobweb

Just the same, my GP suggested using heat pads, but I can't use them & hold my sticks etc. I use a mobility scooter as I can't walk far, but sometimes my hands get so cold & sore that I lose control of them.This has happened a couple of times while I've been trying to cross the road - I just come to an abrupt halt, half way across! GP says not to go out when it's very cold, but I REFUSE to become housebound. Trouble is even with 2 pairs of gloves & socks & really warm clothes & boots, it still happens. Roll on spring

sleepyD profile image
sleepyD

Hi I also suffer dreadful in this weather my legs and arm was sore then went to friends 2 hours later I could not move had to be helped to get ready for bed and put into bed I do have electric blanket an I could not feel it on I even checked thinking its wasn't on every part of my being is sore and feels like I got block concrete attached to my joints I am a little more mobile today but pain keeps u awake at night an I hate it as the rest of house is sleeping I have just got a puppy and she is my bed buddy so I don't feel so alone in my room or bed x lots of gentle hugs to everyone who can understand this Oh I also have ostioartritus

Burr profile image
Burr

I find that the cold definately make my symptoms worse. I have memory foam mattress topper and pillow which help until the cold weather arrives then it is less effective. roll on the summer when hopefully we will all feel slightly better.

JaneBG profile image
JaneBG

I was getting a lot of pain in soles of feet and palms of hands and sharp twinges on the back of both. Medication has helped a bit but since the cold my hands hurt more again and the feet feel cold for ages after getting in bed

gandalf profile image
gandalf

Yes I sufer too I know before I get out of bed if its cold and damp as I ache all over with Fibro .

lizal profile image
lizal

i ache all over,this weather upsets arthritis and fibro.

ZoeH profile image
ZoeH

My fibro symptoms are like a thermometer. They recognise any change in weather. The cold makes me stiff and the heat makes me swell! Oh the joys!!

Sampride profile image
Sampride

Hi I'm new to this site, my experience of the cold is usually a positive one if i'm feeling well and positive, however, when i'm in a flare up or feel generally drained/worn out or depressed I do feel like my bones have been replaced by ice cold steel, my muscles feel like they provide no warmth, it is even to painful for my cat to sit on my knee or thighs, the pressure points become more apparent and my ribs ache, I do rate hot water bottles, and a blanket, they are life savers believe me. I also find my face goes really hot and red yet the rest of me is cold...don't know what that is all about? I do get restless legs and that is more upsetting to me that the day to day pain. HOT WATER BOTTLES FOLKS!!!

jodycookie profile image
jodycookie in reply to Sampride

r depressed I do feel like my bones have been replaced by ice cold steel, my muscles feel like they provide no warmth"

Yes! This is how I get too. Wish something could be done for it. I take super hot baths when I get like this. And I wear several layers in my legs. But my upper body can be warm while my legs cold.

moonstonebright profile image
moonstonebright

Hi jellybean49, yes the cold weather makes my pain much worse and seems to do that to most Fibro sufferers, it's horrible! Take care

April

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