Unrefreshing sleep & insomnia is comm... - Fibromyalgia Acti...
Unrefreshing sleep & insomnia is common with Fibromyalgia, therefore a community member asked 'What helps you get a good night's sleep?'
Mdaisy378 VotersAlcohol
Hi Neonking
Thank You for your comment.
You may find this gets you off to sleep, however I would like to mention that my concerns for using this method would be a) any pain medication contraindications and b) research that points to Alcohol affects your sleep meaning it is disturbed and therefore adding to the problem of unrefreshing sleep of Fibro. This may mean it could impact on the Fibro symptoms you experience the next day, causing them to be worse than if you had used another technique to help you sleep.
But saying this, it is obviously your choice as an adult and it obviously works for you personally
All the best
Emma 
I read till I am so tired I fall asleep with my book I sometimes wake up after a few hours as I suffer with restless legs I can't say I ever get 8hrs that would be bliss
Have you tried the old wives tale for RLS? - I'll try to find the post on here.....some people say it works for them and some not
healthunlocked.com/fibromya....
There are many others that mention this method, might be worth a try ?
Thank You for your comment admin...This has been my 1st comment/post since joining....I have read most of the following posts & felt compelled to reply....Firstly,fellow sufferers...Sadly, I may not be able to contribute much longer...after 4 heart attacks,a heart bypass, fibro,chronic spinal arthritis(which has now trapped nerves to legs thus unable to walk & many other associated illnesses....Well....let's just say my body has decided it can't cope no more...I have been on max amount of painkillers for almost 20 years which has now caused liver failure(& still only in my 50,s)...I was a paint sprayer much of my working life...spraying the dreaded "red oxide" on steel & always involved very heavy lifting....Besides that, I move on....If you are on meds...PLEASE, PLEASE, don't put alchohol into the mix...I tried that when all else failed & Trust Me....You Will Destroy Your Liver Prematurely....I have tried all remedies & recommendations over the years but nothing has worked for me...I suffer from PTSD as well from doing my bit(you know score).....As for the illegal substances mentioned...I don't know if they work?...but the word here sadly is ILLEGAL!!!....and Yes, I agree that more research should be done to aid us suffering people if a substance will work....However, at the moment, I personally know I could not sleep if I went down that route....wondering/waiting/ for the proverbial knock on door. Also, as a parent I could not condone this action.Dont get me wrong....if it works for you & you are willing to risk a criminal conviction....go for it!...It is soooo sad that people just trying to get pain relief or sleep will be demonised by "the powers that be"....I am almost 10 years Post bypass & the grafts are failing(my body naturally produces 6-8 times more cholesterol than a normal person)...and I am not a candidate for another. I don't wish to scare anyone awaiting a bypass but I just know my body could not cope again(I have technically died 3 times)...& btw....Yes, your life does flash from childhood right through & Their is a white light....I just hope & pray that God will forgive me....I have learned to rely on His Grace A Lot Recently....Still holding out for a miracle but as most of you will know....This is not a life but merely surviving & I don't fear death at all....seeing it now as a sweet release but not wanting to put my kids & loved ones through the pain....btw....for anyone looking to try presently illegal substances...health shops are now LEGALLY selling CBD oil which you take orally....downside is it is extortionally priced & tastes revolting lol!!!...but you can LEGALLY try it??...the only thing that used to help me as I'm on a "shopping list" of prescription meds was "rescue remedy"...Most of you have probably tried it & I suspect it worked for me as it was topping up the other meds...but PLEASE try it...it can be bought in most health shops or chemists...You may find this strange but we have an old Irish saying "Ground Yourself Before Sleep"....it actually originated from ancient China...I now have little feeling in feet or legs but when I could walk I would walk barefoot on the garden grass...if mild enough for 15-20 mins...It actually worked!!!...another recipe that helped for a while was 2 bananas mixed with milk & whisked then heated & drank directly before bedding down. I REALLY wish you all GOOD LUCK & I hope some of my tips work...I honestly can't remember the last time I got more than 3-4 hrs sleep at night & I HOPE & PRAY FOR YOU ALL..
CBD oil is legal because there is no THC content in the cannabis strain grown for it.
What a heavy burden you have, I'm so sorry. Amazing of you to send out such caring words.
All my best wishes xx
THANK YOU For your uplifting words...God Bless You....
Thinking of you. I have to be careful with alcohol and my anti depressants too.
Ditto..& THANK YOU....Try to remain positive...I won't try to offer advice because you have no doubt heard it all before...Everyone's depression is different & complex but you will at some point come out a stronger & happier person...God Bless..
I have found that taking 20mg Amitriptyline at night gets me a good sleep. When I first started taking it I was so cosy and pain free when I woke up I didn't want to get out of bed! Before that I would wake up in pain so couldn't lie in. Alcohol can be good for getting off to sleep but I have always found that I wake up after four hours and the rest of the night is disturbed. (No alcohol with Amitriptyline though!!)
I cant seem to tolerate Amitriptyline it makes me feel as though I have a bad hangover 
Have you tried a low dose? 20 or10mg and taking it earlier in the evening say 8 o'clock? Regular turmeric extract can also help. After taking turmeric for several weeks I realised I hadn't had to take ibuprofen for my pain for many days.
Listening to rain & thunder on iPod 🌩🌧
Cannabis gets me off to sleep. I've tried all the other med's, but they're not as effective and have negative side effects. I still wake very early with severe pain and fatigue, on all drugs.
I find it makes my mind more active, and stops me from sleeping. It increases my enjoyment of music and fires my creative side, so I find it more stimulating than relaxing, which is great when I want to be awake. It may be that a different strain would be more calming, but while it's illegal in the UK it's difficult to chose - I have to just take what I can get, and the general preference is for more psychoactive strains than sedating ones. Wouldn't it be nice if we were treated like adults, and allowed to be educated to make choices about something that has been shown to be relatively safe and widely beneficial to us? One day, maybe.
It gives me the boke and a migraine coza the fibro and strong smells
Quetiapine. A total godsend. 😊💛💚💛💚
P.S. quetiapine can only be prescribed by a psychiatrist
I use 175 g a day, but regularly use more, just don't like the morning after effects cause I have little or no motivation as it is
I take 400mg at night (and 50mg during the day sometimes) 😊
I also take phenelzine gabapentin and cocodomol 50/300 at night. Xx
I always have 1 or 2 nights that no matter how much meds I take my head will not shut down & this just messes up my week every week, upsets the functioning of the house & my daughter bless her she's only 12 & has too much responsibility & has become really rebellious & gets into trouble at school & home.
What is this and where do I get it please
It's an anti-psychotic medication which can only be prescribed by a psychiatrist. X
P.s I also repeat the following in bed "I am calm" into myself n then am asleep xx
ZOPICLONE!!!!!!!!!!!!
My sleep is appalling! I have a maximum of 4 hours a night, but it's usually between 2-3 hours and that's with relaxing prescription medication!! Trouble is that I have Fibromyalgia and a crushed disc in my lower back. For the last 6 months, I have been getting severe cramp everywhere and the worrying aspect was that all the muscles in my chest would go into cramp so I couldn't breath!! My Fibromyalgia consultant prescribed Tizanadine....it's VERY relaxing and half an hour after taking it I'm out of it for a minimum of 2 hours, so helps me sleep a little! I'm just so tired all the time. I have tried and still do my 'routine', I stop TV, iPhone, iPad and computer work an hour before bed and I do a guided meditation too....what's left???
Bless you sweetheart that's a very frightening thought. Have you spoken to anyone about the likelihood of your chest muscles cramping. You have my every sympathy living with the illness is bad enough without living in fear like this. Talk it over with your specialist if you haven't already done so. Take care. Sending love x
Sorry, but very little. Occasionally I take hayfever tablets-drowsy as the doctor said. Sometimes they work. Could make you drowsy the next day. I lay awake for hours not sleeping then am knackered at work evemost days. How cheerful
I take nortriptyline in the evening (100mgs) plus diclofenac (25mg) & I take two co codamol (30/500mg) at bedtime to help with pain. I have plenty of fresh air in the bedroom & find a warm bath helps in the evening before bed. I have started using a soft triangular pillow too to wrap around my head & neck as it helps me be more comfortable than with a standard pillow. Waking up is my problem!!!! Mornings are so painful & I need a few hours to feel able to face the world.
I like your pillow idea. I get awful neck pain at night
Omg ano. turning in bed n getting up in the morning is agony. I don't like things round my neck in bed I feel I can't breathe x
Yes I use this pillow too and it is more comfortable and a cushion between knees sometimes depending on pains
Quiet disturbed to see most would use prescribed meds...most make me still dopey in the morning. I occasionally take 1/2 a codeine if my back is hurting very much. I mean once a week by that... not regularly.
Why r u disturbed ? Each to their own !!!! X
Yes. My response is my own too.
Hi bunnyroni & Hidden
All answers to the polls are the personal opinion of the community member/s and as with anything in life....people my agree or disagree but everyone is entitled to their opinion as always
I will be interested to read others comments as it is a very interesting thread. Thank You for your contribution
All the best
Emma
I said I was disturbed by the result because of MY OWN experience which I went on to explain- it was clear enough and expressed clearly. This was the first comment I have ever made on this forum. It is bad enough having fibro.If it isn't friendly here I will try elsewhere.
Everyone has different ways of expressing themselves, and varies greatly according to geography etc, and we don't always understand each other. I don't think any offence was intended by the comment. My experience is that this is a very friendly place, with very understanding admin and contributors. I think it's worth giving it a chance.
I use Bentonite clay. Redmond daily detox. It has massively helped my Fibromyalgia pain and sleep. It clears toxins from the body.
Where can I buy this ? Sounds good
Well this is interesting CharlieAngelStar
Mindfulness, a very occasional antihistamine tablet, CBD oil. Not all together may I add!
Hello.....how do you use the CBD oil? Do you ingest it?
I'd like to add to my own comment, about needing sleeping tablets, that access to cannabis (preferably hash) would solve both my insomnia and the desperate RLS. (I'm damn sure it'd be better for pain too that blasted horrible Lyrica)
I bet they legalise it when I am gone 😫
I first bought it in mouth spray form, but my latest purchase is oil to be placed under the tongue. It tastes absolutely revolting and I contacted the supplier to see if I was using it properly! They assured me I was, but that I may prefer capsules to avoid the nasty taste, but I haven't purchased them yet.
Sorry to ask but is it sourced from outside UK or here? We could continue the convo privately if you wish.
CBD oil, Sammicat? It's on sale in all health stores here in Ireland.....and belive you me, with our strict anti-supplement laws that must mean it really is 'neutral'! It's online around Northern Europe I know; look up any companies vaguely connected with 'hemp' in their names.
I know but it's a matter of trust. Without recommendation, you never really know what you're buying!
Ah sorry, Sammicat I overlooked the point of yr query.
The stuff I want to buy here (€25) is grown here in Ireland.....and I know there are many Dutch domestic brands too, so no doubt there *must* be some in the U.K.
It's a great crop too, good for the land and other hemp products of course.
The literature all claims that the heavy CBD (rather than THC) content is the thing that is good for pain. (Odd, given how good THC is, but it seems to be a serious claim).
Really looking forward to trying it, anyway. Pretty sure it won't harm, and that's big consideration
xc
I've sent you a private message x
I understand the issues faced with so many medications, Lyrica did wonders for me but it is mere curiosity, why so many fibro meds cause weight gain. I stopped Lyrica, savella, and cymbalta for those reasons alone. Best wishes for you x
Thank you Lovely xc
Yep I am not continuing with Lyrica (too damn dear anyway) It has just too many downsides I can't be doing with
Sadly Lyrica didnt agree with me. I took it mainly for my migraine condition. I got what might best be described as lightning storms in my head while taking it. Very disquieting so I stopped it!
That's dreadful, better yet very scary! I take fiorcet for my migraines, but nevertheless, I am so glad you got away from the Lyrica. Gentle hugs x😇🌷
Nothing helps me to sleep as I have epilepsy and I can't take sleeping tablet's because of it I just have to ride it out
(((Hugs)))
I use a relaxation technique, I was told to find something you do routinely i.e. Play Golf😂 Walking to work/shops and go through every pace that you walk and carry on walking through this activity in your mind and you fall off to sleep without realising
Chamomile Tea
Oh no pure boggin lol x
Ugh, hate the taste lol. IMO it's like drinking wee!
I do too but I get the Apple and cinnamon ones and you can't taste the chamomile too much.
Thanks for the suggestion. Will look out for it.
I also have chronic pelvic pain and have just had surgery so I'm on more painkillers then normal. I've taken trazadone for a few years and it helps me sleep. I also have a 12ft body pillow that is awesome. I cuddle right into it as it wraps right round my body.
I like that pillow idea a lot.....I think of my bed as a rack of torture when I cannot sleep. Every touch point hurts.
That pillow sounds amazing!
I take my pain meds plus 50mgs Amitriptyline at 10.30pm and read, and listen to quiet music until I can't keep my eyes open. I usually get 6-7hrs sleep.
GP. 😊😊
I have 50mg Amytryptyplyne (can't spell it, just stick y's in everywhere!) every night and 5 or 10mg of Temazepam most Fri and Sat nights to get a solid 4 hour stretch of good sleep, but no more. I have no phone, laptop, TV or pets in my bedroom at night, but have Radio 4 Extra on very low all night (dramas, comedy and entertainment). I wake somewhere between 6 and 10 times from pain and every time I turn from L to R side and back. Not for long usually, which is something to be thankful for.
Listening to rain sounds on a device or machine 🙂
I'm gony try this x
Must admit that would wind me up, not relax me....
Prescribed medication can only be used when absolutely desperate, otherwise it's too easy to get used to it. I do use it, but never more than twice a week, and often much less than that. I follow a standard routine at bedtime, which includes having Radio 4/World Service playing very quietly through an earphone, all night unless the earphone falls out. It's so quiet I have to make an effort to hear it, which serves as a distraction from pain, worries etc.
However, I no longer believe there is such a thing as a good night's sleep, even when I think I have had several long, undisturbed nights, I'll still be tired and unrefreshed in the morning.
Each to their own re meds x
With respect and a smile....so what if one does get habituated? A damn sight better than being used to about 3 hours' sleep a week, which is far more of a health risk.
Having said which.....older hypnotics used to have a miraculous way of preventing st least the need for increased dosages....I took the same single tablet after ten years as I had right at the start.
Not so with the modern weedy-but-nasty versions!
*ggrrr*
Try actually massaging lavender oil into the soles of your feet, obviously take care if walking barefoot in wooden or lino floors afterwards but get into bed and then massage it gently in and out light Cotten bed socks or similar on
Lavender gives me a migraine. I must avoid strong smells as a condition of my fibro.
Should you dilute the lavender oil or not?
Initially if you are sensitive, place a small amount of a carrier oil like almond oil in a small dish and add about four drops of lavender, you can increase gradually as and when you feel you want to.. I use it neat as it works like Magick that ways for me but I'm aware of the way essential oils work. I then sit back and sip a chamomile tea and try to relax my muscles one by one... I hope that helps sweetie.. Y
I also rub lavender oil on the soles of my feet along with a couple of sprays of magnesium goodnight oil. I can feel the effects within 10 mins. I usually put some on my lower back when my osteoarthritis is playing up. Overall, my sleep has improved, I do wake up to visit the little girl's room, but tend to fall back asleep quite quickly. I average about 6 and a half hours each night.
No, pure essential oil of lavender can be applied directly to the skin. However if you want to ensure that you're not going to have a sensitivity to it then first of all pop 1 drop, just 1 drop somewhere, say the crook of your elbow or inside of wrist and see if there's a reaction. If not then go ahead and use the lavender as you like but be aware that whilst lavender is a relaxing oil, used in excess it can be a stimulant too.
This is my favourite of all essential oils as it has so many uses. And, yes I do use it at bed time. I look like a vicar/priest 😃 anointing the bed sometimes when I am weilding a bottle of lavender oil just before bed 😴 Keeps the midges away in the summer months too.
My GP refuses to give me any sleeping medication seeing as I'm "On so much for one so young". Drives me nuts. I'm currently doing a course on aromatherapy and have started making my own mists. Especially for sleep that is the pain one. Its great and my carers love it so much that I'm making it for them too! Its not completely fool proof and there are nights where I can't sleep at all. I've only had 3 hours sleep and I'm knackered. I also have CFS/M.E. so I can sleep during the day but I really struggle at night. And during the day its crap disturbed sleep as I have carers in 4x a day. I'm ALWAYS knackered.
The only thing that helps me get good sleep is good sex. Sorry but nothing else seems to work on me.
Lucky you lol
Best idea so far Kerry!
Far too painful for that unfortunately
It certainly works for my OH!
Hi everyone !
Has anyone ever tried using a Floatation Tank as a session can be equivalent to X amount of hours sleep and apparently can encourage more regular sleeping patterns!
I found it a wonderful form of Hydrotherapy but as with all complementary therapies it costs and not all of us can afford this regularly even if it has great benefits
I once spoke to the GP about a personal health budget (PHB)and she looked blankly at me, see link;
england.nhs.uk/personal-hea...
Anyone else have a PHB?
Best Wishes
Emma
CBD Oil works for me, along with mindfulness and relaxation.
I have major trouble sleeping in my own bed because of severe pain so I sleep on the sofa and the pain is much less,not ideal though but if I get more sleep that way then who cares?
Yes I've done this on occasion and got through the worst of really painful times ..but then pain goes somewhere else
I find I can get wonderful couple of hours on sofa during evening, especially when a documentary is on tv. I think it's either boring topic or the monotone droning of narrator that does it. Very soporific.
I also take magnesium supplements and Holy Basil before bed. Still waiting for a diagnosis after 18 months.
I like to have a shower before bed time and fresh nightwear.
And I always fall asleep watching tv
Usually family guy as it makes me happy and relaxed lol 😁
Angela x
Lifelong insomnia, literally. Exacerbated in the last decade or so by dreadful RLS. (I'm 60)
I need drugs for it without question, but honestly they are getting more and more ghastly. (Same with pain meds in my opinion.)
For example....I get Zolpidem.
Poor quality of sleep and nasty side effects/withdrawal. Used to get Rohypnol....it was just perfect. Transformed my life for ten years until doctors got scared of it because of its use in date rape. God DAMN it. A superior and cleaner compound, better for long-term use by miles, replaced by a much nastier, less effective one.
I've been a lifelong insomniac too. Chemical changes in the brain etc. Migraines often break through sleep or its RLS driving me mad with stabbing pains. Hard also to block horrid mental images from years of animal rescue work. I've had CBT. My gp gave me a phone number for an anxiety helpline. Even with chemicals, I still find that tv or games on my tablet engage that troublesome part of my brain which wants to implode!
Staying up or in bed reading until I begin to get sleepy. Having extreme fatigue during the day does not mean that I will sleep any better.
Me neither
A cup of ovaltine.
I find a cuppa tea sometimes helps, or a bowl of porridge, which I liken to a baby finding comfort in warm milk.
A bath with some Epsom salts before bed is good, or taking a magnesium supplement. Reading always helps me, it takes my mind away from the stresses of the day, and the pain.
As long as I have my meds I can get off to sleep, but am awoken by pain in the the night & never feel refreshed after any amount of sleep.
Being more active is the only thing that makes a difference for me. I do use Lavender Oil but it never helps me sleep.
Best wishes
Debs
They don't always work I read a lot as well. 😊
Mindfulness.....attended a Pain clinic course a few years ago....although occasionally I have taken Boots non prescription sleeping tablets..
My pain management clinic at Amersham Hospital was awesome and very helpful in making sense of pain issues.
I find Ampitriline 30mg usually gets me off to sleep for a good few hours. The problem is I am like a zombie the next day so trying to get up and drive to work is impossible. Zopiclone didn't work for me either. It's night time cramps in my legs and feet that keep me awake most nights. I try to listen to the iPad storms or seaside sounds which do relax me but as for getting a good sleep once those cramps take hold forget it!! I have tried quinine tablets and the bar of soap under the sheets trick all to know avail. Sending love x
I hear you on the leg pain, especially after hours manning my stall! Can't take quinine, and am now back at 75mg Amitrip per night. Mixed blessings. I wish medicinal weed was legal here cos it has given me beautiful 2-3 hours of deep sleep in the past... sigh...
There is obviously no financial incentives for our government to legalise the use of these drugs for those who benefit, it can be the only reason. I understand perfectly, when in pain,made so much worse by the lack of sleep,why people will resort to anything. X
I so wish I could have a bath to,relax, but our hot water has been shut off for 18 months thanks to a daft decision by my OH! Meanwhile, sleeping tabs and gruelling days at my market stall only work two-thirds of the week. RLS, pain surges and horrific images (animal welfare) put paid to restful sleep on the other nights, so I distract myself with bingewatching favourite tv programmes or playing games on my tablet. Having a snack of porridge or a cuppa can often help me nod off, either in chair or in bed. Catnapping has become a necessary tool now to get thru the week's challenges.
I can't get out of the bloody bath 😄😄, jeeeeeźzzzz you have to laugh sometimes! !!
I don't get to sleep very early at all despite trying different things. If I do get to sleep I am awake in a few hours (usually in pain) I take tramadol and although this helps a little I am like a zombie during the day so limit this to extreme pain days/ nights. I also use magnesium spray but have just found out that I may have been using too much as its given me the poohs. Although I have fallen asleep at the most unusual times. Like when Im eating dinner or as a passenger in a car and even once fell asleep while on the phone.
Melatonin. Make sure it's a reputable source. Also,low,dosage clonazapam prescribed by Fibromyalgia Clinic at St Thomas's Hospital.
Try a CD with whale & dolphin calls. C.x
They always make me giggle!
I am very sensitive to meds. So am struggling with everything. I have fibro and bipolar for which I take lithium. Tried so many pills over the years (24) and I can only still to this day take only lithium. Was given tramadol recently, took 1 tablet and was so ill my son nearly called the doctor out. Just started taking pregabalin. ????
I have just cut out caffeine recently . And have found that has helped my sleep a lot. No perfect mind but has definitely improved my sleep.
Take care everyone.
These things are sent to try us and try us they do. 😩
hi, i am very sensitive to medication also- then it turns out also to lots of foods, have been a lot better since cutting out wheat and dairy, only been a few weeks x
I use diazepam it helps me to relax and my pain isn't as bad although it doesn't help me sleep all the time as I can go 2 nights without sleep sometimes. It can be frustrating. I don't use pain killers any more as nothing seems to take the pain away so I stopped everything I was on . But really would not advise anyone to do what I did. I had a mental breakdown. Always ask GP before doing anything drastic. Best wishes sweetie xx
It took a long time to find the mattress that was right "for me". And it wasn't cheap. $3200. But within 2 days I would routinely sleep all through the night, except for the occasional nature break. I should add that I no longer have back pain, however, the incredible fatigue from Fibro is still present. The mattress is a Tempurpedic. Before they build it for you they ask which side of the mattress you sleep on. If you sleep alone or if you have a partner and do they snore or toss and turn. (And a number of other questions.) Then the mattress is custom designed for you. I initially thought they were setting the hook and reeling the fish (me) in, but I was mistaking. Still, mattresses are very subjective. Works for me, but possibly not for you.
Also red wine!
A friend brought me back Melatonin 3mg tablets from America and I use these if I really can't sleep, but no more than twice a week. Does anyone know if GP's will give us a prescription for this? I've been afraid to ask. I use Epsom salts baths, buying in bulk from an online aquarium supply company so its way cheaper and I can be generous with it. I take Tryptophan most nights as this is supposed to help, and Magnesium which means I'm getting both transdermal (from Epsom Salts baths) and oral Mg
I listen to music on my MP3 player. Doesn't send me to sleep but at least distracts me from the pain and not sleeping.
May I add that I have always been an extremely poor sleeper but Fibro has knocked sleep out all together several times a week and I get at the most three disjointed hours at other times.
I do take half a sleeping tablet perhaps once per wide a week and then get a bit more sleep but now pay for it with astounded king headache the next day. Only tend to resort to it now when the pain is especially bad.
Don't know whether insomnia or the reverse of the coin sleeping most of the time which happens to some forum members is worse.x
To help me sleep I am on 175mg Amitriptyline to which takes an hour to work and even then I still wake up through the night. This also helps with pain, depression, anxiety.
Hello precious garden of fibro flowers. Each night can vary on methods that are useful to help sleep. Some nights are tossing and turning with IT bands ( outer sides of things ) hurting so badly with pain. I use a maximum strength muscle rub that comes in a nifty roll on. The RLS is put at ease with anxiety meds, and very warm Epsom salt soak. Aromatherapy is good and meditation or prayer. My faith is a Big part of each day. Please note that I have an assortment of things that help, but I respect everyone and their choices. I also take amitriptyline, and Robaxin. Step out of comfort zones periodically, and look to what calms you. The ocean is my serenity and I have a sound machine with ocean waves. I have carpal tunnel in both hands, but I was a makeup artist and cosmetologist, so hair, and makeup or that outfit that makes you feel good, sets a day of strength which can make you tired and ready for sleep. Tea time with a nice herbal blend with honey and maybe a good read or sketching, painting, or coloring. Sometimes some light cooking of a savory soup of beans and veggies ( again aromatherapy) but palette satisfying. I wish the best for all of us, and our garden is a lovely place of comfort and support. Alternate your regimen to how you're feeling. Sorry for the epistle here, but my hands tingle and numb throughout, but we are here to help each other. We are all unique in our own way, but so similar at the same time. Be blessed everyone, and gently rest and know that insomnia plagues us, but restful sleep heals us! 🌷🌻🍄🍄😘🤗🙋♥
hi, what is the soundbox with the waves called please, i would like something like this x
I have a couple of them. Homedics has a really good one. You can also find apps on a smart phone for sound machines. You can find them in stores with relaxation and aromatherapy products . X
Outer sides of thigh... Lol!!
I do mindfulness meditation and a reiki self treatment at night to help me get to sleep
I use 5 htp, which helps sleep and mood.
The best thing I have found for a good nights sleep is too go to bed earlier, watch a film in bed so that my body - esp my back adjust to mattress and I turn lights of but have a film on in back ground. When I really struggle I take a quarter of a 20mg promethazine tablet which is enough to help me get to sleep and stay asleep . They are an antihistamine that my doctor prescribed for anxiety and to help me feel calmer xx
An American friend of mine told me that a peanut butter sandwich before bed always gives him a good night's sleep. I've never tried it myself, as I don't like peanut butter, but it might help some of you.
Caffeine free diet, not too much sugar or chocolate - none after 6pm. Vindicated that prescribed meds are most commonly used. Something within this illness changes your brain / its ability to lose consciousness. It would be wonderful if one day there was a RESOLUTION to this very obvious and widespread problem...
Listen to radio or podcasts too.
Kava (kava) is amazing. A Fijian herb that comes in pill form
Not sure if this is where OTHER: comments should go but a vibrating massage bed & white noise from an AC unit help a little. Also I ticked off prescription meds even though it was qualified as sleeping tablets but mine are not. They are pain meds, I also use OC pain meds, both help somewhat.
hi, which vibrating massage bed do you have please? x
Hi wow this thread is hard to find the replies because there are so many. Im not sure you'll find the brands helpful if you aren't from the US but I put in a description of what it does so you could compare with any you find.
I bought the support base which has a vibrating motor from Tempurpedic in the US before I moved to the UK. So far it is still working very well. I have to use an electric current converter here.
The top mattress is a Sterns & Foster also from the US and is supposed to be one of their best but I wish I'd chosen another because it gets too hot for me. Sadly after 8 years it now has weak spots that don't support my weight anymore and will need to replace it soon. Because of this, as of late I've been suffering more with my Fibro, plus my arthritic hips and back.
I would recommend always buying a top brand and suggest trying a medium firm support mattress with a pillow top as it supports your spine but allows comfort for sore muscles and sensitive skin points. Also check the label to see what the mattress is stuffed with and ask the vendor if the material holds heat ...if they aren't sure then check online before you buy. That way you won't have to suffer with the heat that lingers in some mattresses or if you're always cold then that could be a bonus.
My bed is able to be raised up and down, then it can adjust the position of my head, hips, and feet. The motor has three areas that it covers for an all over massage or just for a specific portion of the body... 1. the neck, shoulders & mid back; 2. lower back, hips & thighs; 3. knees, calves & feet. The vibrations vary from a slow wave massage to a percussive massage. I put them all on at once and it feels great ...along with my pain meds, of course. I find the humming noise it makes somewhat like a white noise so I'm lulled to sleep. Since I suffer with quite a few ailments and conditions I found it important to be able to adjust the position of the mattress as well as the use of the massage features.
I hope you will be able to find this information useful in your search for a bed with a vibration feature and wish you a good nights sleep.
Sex
One thing I havent mentioned is regular reflexology. Can't afford it now but it was an awesome tool in my pain/sleep armoury for about 7 years til I had to discontinue.
Cut out caffeine or at least don't drink any 6, hours before bed.
yes!
My consultant prescribed Imipramine but unfortunately I haven't got on well with it. Can't tolerate many of these anti depressants. Once my sleep pattern is under control then I can have hydrotherapy treatment. But that's when......
Unfortunately even though I do not totally agree with sleeping meds it is the only way I can get any sleep at all
400mg magnesium bis-glycinate, and 3000 iu vit d3 an hour before bed really helps
Melatonin, cherry active capsules, amitriptyline, frankincense oil, Head space app
how is the space head app, i was thinking of trying x
My "other" is using tools I have learned from Access Consciousness classes and telecalls etc.
I have just discovered that anti acids like omezprazole block the intake of magnesium,B12,Vit A,Vit D and more... Whilst omez can be vital in avoiding issues like throat cancer, I was getting bad leg cramps increasingly. Decided to self medicate with magnesium/B8 from a health store and within 2 days felt great benefit in overall leg health. This led to reading the label in omez box which stated magnesium deficiency may well result, particularly if taken for more than a year, which then needs medical supervision. I have taken them for 25 years and my doctor has never mentioned any of this; simply repeat prescripting for 25 years !!! I promise all anti acid users not just omez, adding supplements is amazingly helpful e.g. the anti acid can prevent the B12 from separating from the protein. This info was gained from a scientific medical site and is far too complicated for me to explain, but trust me, adding magnesium definitely works and quickly. No longer am I having to massage my own legs every evening to get muscles to work better. I just wish I had discovered this years ago, which is why I am spreading this out to you all. I will not say good luck, because I know this cheap additive will definitely help those of you like myself. Users of common anti acids count into millions in the UK alone, I believe :-)) Kind regards - Alan.
thanks for the info! x
If I take painkillers one hour before bedtime, read till I can't keep my eyes open, I generally get a good sleep. Taking high doses of magnesium, Vitamin- D3 and B12 helps during the day.
Listening to lbc radio
Amitriptyline and magnesium oil
TAKE 3/4 G OF VITAMIN C POWDER- on an empty stomach before bed- i am a lifelong insomniac- i read this in dr sarah myhill book- i could not believe i slept though, i usually wake for the toilet a load of times, please do try it!! x
When in a flare diazepam is great
I voted "other" as I take 5-HTP. I've also found that my insomnia has reduced since I started addressing thyroid and adrenal issues.
I have a piece of ambient white noise music which has the sound of the ocean playing and it is the best thing for me to go off to sleep. I play it every night. I have it on my headphones and take them off later when I am more relaxed and semi-asleep.
Might sound random but last few weeks, using headphones to watch Die Hard 3 and listen to it with my eye mask on. But doesn't always work. (Favourite film) lol.
I have tried many other things like, reading, listening to relaxation music, lavender, Horrlicks to many to name! Nothing will keep me asleep more then 3 hours and started snoring too.
Clumsy 🎀
I sleep within a large body pillow (feels like a cocoon) wear compression gloves and a light weight quilt. Head set on listening to meditation music. Helps me sleep a bit until pain in legs kicks in.
I suffer from night sweats and found an hour before sleep going to my room and being completely left alone until morn and pressure points
magnesium bis glycinate, breathe clear, chinese detox tablets.
If my muscles are really bad before bedtime , I tend to use warming sprays /lotions to help a bit. They seem to help a bit .
