Who Prescribed The Medications That Y... - Fibromyalgia Acti...
Who Prescribed The Medications That You Rely On For Your Fibromyalgia Pain? The February Poll Is A Question By Member ''skit''.
TheAuthor520 VotersPlease select all that apply:
My medications were prescribed by a mix of my GP, Neurologist and a Private Consultant. I have never seen a Rheumatologist as many others have. There are now a few hospitals who have their own specialised Fibro clinics, and I wonder what kind of Consultant you see in one of these? And what their classification would be deemed?
All my hopes and dreams for you
Ken x 
I have never been sent to a pain clinic or rheumatologist Dr mentioned it one time said that I have been diagnosed with arthritis I am in constant pain getting worse today I received a letter from the Dr surgery saying if I miss anymore appointment i will have deregister I missed 3. Appointment you are all in our prayers and thoughts daily
so sorry your GP being unsympathetic as it should be obvious to them that u wouldnt miss or cancel appointments for any reason other than essential health ones. unfortunately nowadays its all statistics driven and the 'system' flags up regularly missed appointments in short time intervals without looking into the obvious reason why they would be missed ie you were too unwell to do it!! talk about hitting u while u already down. Maybe when u feel bit better u or someone on your behalf would be a better choice if u have one so u dont get more upset by having to deal with this when u ill and therefore presumably very tired, would fone the practice manager as explain your situation and say that it doesnt help u any having someone threaten to deregister u. Dont know if any of this will be of any use to u and it does very much depend on the individual GP practice, but especially if uve been with them a long time and they are familiar with your meds and needs its worth trying to get round this stuff before its allowed to progress any further
Please WRITE A SHORT NOTE ADDRESSED TO YOUR PRACTICE MANAGER & YOUR GP BY NAME, MARKED STRICTLY CONFIDENTIAL ON THE envelope TO YOUR CLINIC. Explain your condition and ask that your GP put a note on your file for the bookings receptionist.
I'm pretty sure this will help. It did for me.
Bless you
Hi BarbAE16 I want to sincerely wish you all the best of luck and please take care of yourself my friend.
thank u very much for your good wishes - just to say ive not been well enough to be on this site for a long time but it seems even better than i remember it! and apart from lots of v helpful info u cant always source yourself, especially if like me the "brain fog" is the only thing in full working mode! i also enjoy everyones friendliness and also v good s o humour which is v hard to maintain sometimes but i find absolutely vital to try and get us through on those v dark frustrating days!
thank u very much, i appreciate your contact and good wishes , Ive only recently rejoined your site as ive been acutely ill and too unwell to go on either to contribute or even just to read stuff. One thing i will say again, altho sure u probably v aware of this already. and that it is never ceases to amaze me the level of contributions informationwise that are out there on a regular basis and also that nearly everyone despite massive difficulties manages both to maintain but also to generate humour in these circumstances - long may it continue
Best wishes to u and also all the forum members
BarbE
Our GPS practice sends a text out the day before with a reminder of the appt. which I find very helpful. Gives the person a chance to cancel if they feel too ill to attend. I can remember having what I call a snarky letter from last GPs practice when I missed an appt only because they changed it as I went out if the door and I went for the original all date! I told them I had not missed an appt in 30 years and it was only them making a mistake and messing me about that made me miss it and I didn't like the tone. Shut them up!x
My gp had me on all my medication before I seen rhymatoid Doctor so on 1st visit she discharged me back to my gp
Bam xx
Mine did too...left Keiser first of Jan. Went with AARP United Health. I'm jumpin through hoops because I need my meds...hydro,Roboxin, imitrex, ambien and reg stuff....I go into Internist.....he says he can't give me these. But....will send me to arthritis clinic, his Reumatologist, and for me to pick pain specialist!!!...I leave with no meds!!grrrr...do you know how long it will take to get appts and etc??? What the HELL do these GP do???....Referral Svc???...guess I'll get meds in different countr!!!
Some of those drugs listed are listed as dangerous to abruptly stop
GPs in UK can be liable for not giving already prescribed drugs that can be dangerous.
I've seen some big messes from Pregabalin withdraws, people unable to remember the name etc, complete memory fuss
Hi Snowy87978 I want to sincerely wish you all the best of luck and please take care of yourself my friend.
That's what happened to me too x
Me too x
Hi Bambamsnan , I want to sincerely wish you all the best of luck and please take care of yourself my friend x
My primary care doctor did when first diagnosed. After more meds needed I was sent to pain clinic.
Hi peck I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Homeopath
I am coming off all prescription Meds and going down this route now. Big learning curve as only 6 weeks in and still detoxing but feeling so much better.
Any tips appreciated on what you do.
Patrick 😁
am going down same route as u ref withdrawing from longterm prescription meds and very hard esp if u been on them long time. One thing friend of mne whos a nurse but also had longterm ME?CFS like me and Fibro suggested which workd well for me is to take low dose 500mg - 1000mg split dose of Vitamin C - high grade and soluble if poss from someone like Biocare, no disrespect but doesnt just work with Boots ow brand in these circs, and this helps alleviate and counteract some of worst detox effects. Wont work for everyone as the immune system is a complicated beast and everyone reacts differently but worth a try. U do have to sign up to Biocare as a customer as they dont just sell online but they accept anyone with a health condition and u self refer. Think they may have a min order amount of around £30 but not sure. Hope this info might be useful and very well done for riding out coming off prescription meds cos thats incredibly hard to stick out. Good luck for a relatively drug free future too
Hi Hartleyhare2
I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Hi all. I'm in Australia so may be a little different here. My GP started with opioid meds for pain & referral to Rheumy. Rheumy added Gabapentin & suggested Milnacipran (think it's known as Savella over there?). She's also since added Plaquenil, Methotrexate & Prednisolone for 'Lupus type symptons' Interesting cocktail.
GP will prescribe for me if I run out between 3 monthly visits with Rheumy. I'm quite lucky as she is head of Fibro Clinic at one of Melbourne's largest teaching hospitals.
Be interested to read survey results
My GP prescribed my gabapentin after I read and discussed it here with other members, I then discussed it with GP and we managed it between us and I then informed consultant ! ☹️ Who was use less.
Hugs
Chris X
That's typical. Consultants do not take us seriously enough. It's not fair. I had never heard of this disease until diagnosed by rheumatology. And she was very abrupt. Leaving me really confused as if it was all in my head.
Well we know it's real or this group wouldn't excist . I had heard of it but that was because my ex husband is a nurse and unfortunately I was led to believe fibromalgia and chronic fatigue or ME was all in the head , so it took me quite a while to come to terms with what I have ! As well . Because I was brain washed .
Hi cheerichick I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Hi Shadows-walker I want to sincerely wish you all the best of luck and please take care of yourself my friend x
My Psychiatrist prescribes my duloxetine that helps with my Fibro pain because it's also an SSNRI and I do need it's antidepressant properties also. My Rheumatologist has never been assertive enough to diagnose my Fibro. Another Rheumy has diagnosed it. My Rheumy TOLD me about the class of drugs like Savella and Cymbalta/duloxetine that are antidepressants as well as effective for Fibro pain, but he's always left the prescribing of them to my psyche Drs. Interesting, no?
Gabapentin is prescribed by my Neuro for neuropathy in hands and feet.
Hi my gp prescribes my medications
gentle hugs Rosie xx
Hi rosie-2015 I want to sincerely wish you all the best of luck and please take care of yourself my friend x
By the time I got the rheumatologist, my gp already had me on the right tablets. Rheumy suggested gabapentin, which my gp suggested first, but at that time, wasn't ready to try it. I since have, and seem to be one of the lucky ones, pakes my pain from an 8 to a 5 on a good day, 6 on a bad, doesn't seem to help a great deal with the fatigue, but can't be sure, can't always remember with the fibro fog!!
Lol. Fibro FOG!! omg. I have to laugh mine is so bad. Is it a real thing? My memory is terrible
Same I couldn't even remember my granddaughters name the other day when I did I couldn't remember how to spell it 
Hi My-chinaman I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Hi , I was on several medication trial and error from gp before he decided I need to see a rheumatologist but instead of going on waiting list to see one on NHS which was going to take around 9 months or more , i was lucky enough that I had private health care through my work saw rheumatologist with in a week medication suggested after a couple of appointments then saw doctor at pain clinic and mainly gp found through trial and error of medication, this was years ago now though, gp now generally reviews my medication.
Hi Loraine121 I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Trialled the usual with gp only to experience all kinds of side effects before referred to see the pain clinic. At this point, alternatives were looked at and found.
Hi Cuddles1979 I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Specialist pain nurse - I've never seen a pain consultant.
You missed out anyone who is not taking any medication :o)
Me too, x
Hi Angiedeaks I am so sorry but the poll only allows me to enter 7 questions. I want to sincerely wish you all the best of luck and please take care of yourself my friend x
Hi gracesgrandma Yes, you are quite right but the poll only allows for a maximum of 7 questions, so I had to leave it out my friend, sorry. I want to sincerely wish you all the best of luck and please take care of yourself my friend x
my gp is the main person who precrides my meds im on mophyphime and amtatriperline tryed the chill cream tryed the patches had gadapentin gave me pancertyeus sorry for spell ing
Hi stanleytransitman I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Having come off all prescribed medicine which I feel I was chemically sensitive to and which was rendering me incapacitated, I now purchase supplements and pay for them myself. Medicines previously prescribed by GP and pain clinic.
Don't take any meds apart from supplements, tried them for years and none of them help or take the pain away so I'm better off without them and managing pain in other ways xx
My gp prescribes me now but I was seeing a pharmacist who was hopeless. She gave me Co codamol 8 over 500. Joke. I'm now on dehydracodine and amytriptaline . At the moment it's helping to take the edge off the pain. But that's all we can do. But I seriously think we are not taken seriously enough. If only they knew. Hope you are all as well as can be. Sending big hugs . Cat.
My GP diagnosed me and started the tablets referred me to a Rheumatologist who have after two visits and an x-ray discharged me with out even telling me, it was only when I went back to my Dr to find out what were the results he checked and was shocked that she had written me off. First person who diagnosed me was the person I have a massage of.
Love & Hugs keep smiling
Hi Mackembabe I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Nobody. All medications, prescribed by rheumatologist and doctor didn't work. Some had very nasty side effects
I was just at my GP yesterday when physio didn't help. She has prescribed Dihydrocodeine. Anyway, I told her that the physio had said if his course of treatment didn't work I should be referred to the pain clinic. Her theory is that you go to the pain clinic, they prescribe one of two different strong pain medications and one other then discharge you. She is very helpful and is working with me to get the right fit for me. My problem is I don't want to be taking tablets if I don't have to and my GP agrees. So fingers crossed my new regime helps
Hi Hidden I want to sincerely wish you all the best of luck and please take care of yourself my friend
I was on Amitryptilline for years which was prescribed vy my GP until I was sent to Pain Management, the lady there did a medication review and said that Amitryptilline had some nasty side effects and she suggested Pregabaline, so I went to my GP and he changed my prescription.
Hi Brassylady I want to sincerely wish you all the best of luck and please take care of yourself my friend.
The Medications where suggested by physio but Prescribed by my gp
Hi Hidden I want to sincerely wish you all the best of luck and please take care of yourself my friend.
I rely on supplements now that I find more useful than pain killers.
I was originally prescribed my Gabapentin by a pain management consultant, but obviously all repeat prescriptions come from my GP. I don't get seen by anyone on a regular basis, and haven't ever since I got fed up with 6 monthly visits to a neurologist, who was very nice and friendly, but admitted he couldn't do anything to help, except monitor me. Occasionally when I am having particular problems or feel that something has changed and I am not confident about its cause, I go to the GP. occasionally that results in a referral somewhere else, but invariably it is a waste of time! Now I just look after myself and steer well clear of health professionals of all sorts as far as possible. I am a useful person for any GP to have registered, apart from repeat prescriptions, I make no demands so don't take up much of their time, I doubt they see me on average as much as once a year. I am 61 and have lived with being disabled since the very early 1990s.
Sleep specialist consultant
I don't use pain relief medication as the ones (several tried) prescribed by my GP made me more ill.
When I'm in pain I rely on a hot bath with Epsom salts which sooth and relax me. Other than that, I put up with the pain!
I was already taking medications for nerve damage and Arthritis, prescribed by both Rheumatologist and Pain Clinic
PM and Rheumatologist first for me with modfications from my GP
Hi Peace-yogic I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Neurologist put me on gabapentin for migraines, and it had the added effect of relieving a lot of my fibro/chronic pain. I was on that for a while but maxed out and am now on pregabalin. My pain management consultant prescribed duloxatine for depression, which also helped a lot with some of my "residual" pain.
At my first meeting with a chronic pain nurse, she suggested magnesium. I took it for a few months with no effect. That was a few years ago, and I figured last year I'd try it again, now that I pretty much had my meds sorted. I take a magnesium/zinc supplement from Holland & Barrett, and it has helped a lot with my nerve pain in my fingers and toes and my right sided headaches.
My pain is mostly sorted; too bad I cannot find something to help with the fatigue and achy feeling.
Hi aristocat143 I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Meant to add, I also take paracetamol, 1g 3x daily. I was originally on tramadol, but changed out after talking with the chronic pain nurse and a GP w/special interest in orthopaedics. I'm also on a vitamin D supplement - as most of the dark and gloomy UK should be during the winter months!
I've recently been prescribed low dose naltrexone by my pain consultant and it's really helping with sleep, stiffness and my mood. It was me that asked if I could try it rather than him offering it though!
It was initially prescribed by the rheumatologist, but now my GP does the repeat prescriptions.
In addition to my GP and Rheumatologist, I took advice from a pharmacist that was attached to the pain clinic that I attended. He suggested drugs to my GP.
Hi lizashfield I want to sincerely wish you all the best of luck and please take care of yourself my friend.
I rely now on natural painkillers such as natural anti-inflammatories such as turmeric and garlic, and I've felt so much better since cutting right down on co-codamol tablets. The pain meds have been causing a lot of the pain (rebound pain) and by cutting down (nearly off for good) I've hardly any pain now.
I should add, I mean fibro pain, I still have some back pain, TMJ and knee pain, but the all over stuff has almost gone.
alot of older, not too up to date male GPs sadly do not all recognise fibromyalgia to be the acutely painful condition it actually can be and it took me years of "shopping around" for suitable drugs - actually used your site to see what other people might be using and then asked a more "enlightened" gp if i could try then for a while. Unfortunately as im now approaching an older age,ie 63 the usual other line is "theres nothing pro-active u can do etc etc"
have pain management team in few weeks..at the moment on max dosage for gabapentin,along with codeine 60mg every fours hours and paracetamol high dosage we can have,had acupuncture , 8 sessions only. should be 1 x a week,it does help.
Rheumatologist diagnosed my FIBRO as it should be,it carry's weight when needed ,its written evidence.
my GP stated it was morphine next for myself since i have tried everything going over 6 month period.
Hi Hidden I want to sincerely wish you all the best of luck and please take care of yourself my friend.
ive been down similar route to yourself and if i may, one thing would suggest re morphine if u can and want to and dont know this already is it comes on the NHS prescriptions in special patches whose trade name is Butec and the beautyof these is that u can actually apply the patch to the physical area that hurts most acutely and often eg i put mine on my lower spine and the morphine goes straight in there as well as also getting into your whole system as a painkiller. U change them once weekly but u need a very sympathetic and informed GP to locate them and prescribe them as are a v expensive item i understand from my local pharmacist- but if uve energy and inclination to push your GP for them will say u'll definitely find them very beneficial and also i found them less hard hitting side effectwise than liquid morphine solutions
My Cocktail is Pregabalin 150mg x 3 , Codeine Phos 60mg x 3 , Sertraline 150 and quinine
I'm reluctant to go with stronger opiate based however my GP as offered to switch me up to oxycodone or MST .
Previous mixs have included gabapentin, Tramadol
No chance of getting to a pain clinic with my doctor
Hi Hidden I want to sincerely wish you all the best of luck and please take care of yourself my friend.
My Psychiatrist prescribed Modafinil (Provagil) for me. It's a med usually prescribed as an anti narcoleptic and is used more often in the US in treatment for Fibro. It helps me with clarity of thought and with staying awake, but is not a cure for either.
Hi Lizzielizzie0
I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Back home Two years ago i felt like my world was ending. I Had all the syptoms of Fibromyalgia. Not knowing what that was and with no Doctor able to tell me what my problem was i was devastated. All i recieved from Doctors were pain killers which i never took because i know them to be very dangerous. I took it on my own and did a Reumatroid examination , the results , i had neither Reumatism nor Arthrites. I did a a few other scans like Heart, lung, back, chest , waist but they told me all was alright. You can only imagine my frustration.
So i decided to do some research about this mysterious illness and for the first time i came Across FYbromyalgia . I also realised that i was not the only sufferer and that there were millions around the world suffering from the same illness. I was particularly inspired by one lady who wrote an article stating she will never allow any Doctor to brainwash her into thinking that she will not feel better or that she will have to live on pain killers all her life.That gave me courage
I decided to try a few food supliments which i took continuesl for six months . I did research on every food supliment i took to see if there were any side effects or anything of the sort. These supliments were simply wonderful but you have to have the money to afford them. They were very expensive. Spending a hundred thousand every month on food supliments in Africa is not a joke.
So i had to look for Altenatives. I prayed to God for Guidance. I started looking for Natural pain killers and Came across APPLE CERDE
R VINEGER and WARM WATER - Simply fantastic pain killers and Organ Cleasing Agents.
Another great Organ Cleanser is CASTOR OIL, the AYURVEDA style.
I also refused to take any sleeping pills so i set out to search for anything Natural that could help me sleep.
I came across Essential oils like
YARROW OIL
LAVENDER OIL
FRANKINCENSE OIL
I just blended the three together because i read blending was possible and i just drop one drop on each side of my pillow to get the beautiful and sound sleep i need.
I am also very strict on my Diet. I use Virgin COCONUT OIL for all Cuisine
I avoid Glutten. White suger ia now my enemy. I use Honey as suger and coconut oil as fat in everything i eat. Vegetables good ,Processed food out.
I THANK GOD for MOTHER NATURE. I hope many others will find relief as well without necessarily getting bankrupt or having to deal not only with SIDE EFFECTS From medications all their Lives but also more trouble from these Medication.
God Bless you all.
Was taking Lyrica and venlafaxine. Lyrica stopped up my digestive system--no bowel movements. While they helped with pain, I don't think not having BMs is healthy,( duh!). I've signed up for Fibrolief supplement blend ($57 per mo) and have tried them for two weeks. No side effects that I can tell thus far. Bowels getting better but not like pre-Lyrica. Still take Venlafaxine for depression. Lyrica seemed to help just a little with that, but, again, at this point not wanting to take that stuff and pay $70/mo co-pay so I can be constipated! LOL! Good luck to you all.
My GP and theven Pain Clinic prescribed my medication
I was diagnosed when I went for my check-up in the Rheumatology clinic. I was told to take amitriptyline. I refused as they knock me out for 4-6 hours after one tablet. Never been told to have, take or try anything else.
Just carry on.
I was under rheumatology but I moved and I was then told by my GP I don't need to see them so they have done my meds but waiting for pain clinic.
I was prescribed by GP never seen a Rheumatologist mainly because I don't go to Drs until I'm on my knees .Been to pain clinic which gave me a bad knee which 13 years is still hurting ,I did learn to pace and stick to that and it really helps me .😇
I pay privately for low dose naltrexone as my GP won't prescribe it. I still get duloxetine from go as I can't get off it without severe illness
I think sufferers of sever ME and fibromyalgia are left to rot with nothing being provided to help us. The pain clinic was a joke asking me to fill in ridiculous diaries that half the time I had no energy or focus to complete. I was warned repeatedly I would be discharged due to cancelling, ridiculous, of course I would be cancelling as mostly I'm bed bound!
We need centres like sufferers with ms steered towards hyperbaric chambers, acupuncture, people who know about our conditions PROPERLY and provide services that do help. We have one of the highest percentage of sufferers in the U.K. but are overlooked as Malingerers. So fry frustrating. I have laid in bed for five years now my life stripped from me but society or the NHS don't appear to care
I I would like to say that i no longer know what fatique is ,Formally i used to take Reishi Mushroms and Cordyceps against fatique but all i used now is Apple ceder Vineger. The vineger and warm water and as well as Castor Oil clean my Bowels and simply chase theFatigue away. I no more have stomach upset. I go to the toilet normally. I dont remember when i last had join pain back pain , shoulder pain or the eery feeling i frequently had like a heart Attack was on the way. I wake up now and put on the light without having to cover my eyes because i cant face the light Formally going to bed was like a nightmare but thank God i can now sleep.
I Miss the Natural Food Back home because i had to move with my husband to his home country but i try hard to eat onl healthy ."LET YOUR FOOD BE YOUR MEDICINE AND LET YOUR MEDIINE BE YOUR FOOD " So said the Father of Medicine. Its is true we will never be completely well in this World full of Evil , that can only be under Gods Kingdom ,but i am grateful to God for Helping me get grip of the right medicine MOTHER NATURE. I met a woman with Arthrites who told me the only thing she has been taking against Arthrites ever since she was dignosed many years ago is Apple ceder Vineger She said " With ACV i have my Arthrites under control".. An American Woman who told me she had suffered from Fibro for twenty five years told me what finally helped her was the Natural AYURVEDIC medicine which she took for two years and she no longer has any symptoms. I just have to thank God for Apple ceder Vineger , water, beautiful plants and everything he has put in place not only as Our Food but our medicine as well.
Just Like the Indian Ayurvedic Dr told this American woman though i cant remember all the words well A damaged system takes time to return to order, the ROOT of the illness must be treated not the symptoms. That is exactly what mother nature does.
God bless You all.
uve just shown what a lot of people believe that if possible natural is always the best first choice - can i just ask as am not familiar with using it how much apple cider vinegar do u take on any one day and i it on its own or with food - also if u have acute sensitivities as i do does the acidic part of the "vinegar" irritate your stomach, or is its makeup designed not to do that? any further info when u have a mo would be very much appreciated as only have v little time during day to extensively search the net for such info- also does it in any way interact with essential prescription drugs?
My doctor prescribed my medication also pain clinic recommended additional treatment, my dentist has prescribed high fluoride tooth paste and artificial saliva spray due to mouth dryness....
I am an 80 yr old lady, still very With It who has fibro and in a lot of pain I was diagnosed by a rheumatologist after going to the doctor and telling Him what I had. I do not have a lot of Faith in any of them, as they really couldn't care less (I was at one point actually pushed out of the surgery by one doctor because i refused to take the medication she wanted me to take as i knew it would make me worse - I don't respond to medicines very well, they make me quite Ill )so I now have got the doctor to give me what sort of works for me ( diazepam, paracetamol, oramorph, sumatriptan, zolpidem) taken only when I feel they are necessary, as they are also used for another problem ( TGA - transient amnesia) but in the main, it is a question of what works for us as individuals. I am mostly in a lot of pain daily, but really do try to put up with it as much as possible ( it is not easy ) because, years ago I went to a pain clinic in Liverpool which I stayed in for 6 weeks and their motto was = IT IS ONLY PAIN AND WON'T KILL YOU which is very true SO = all you out there who are suffering = CHINS UP, do the best you can each day to make your lives the best you can, live for the day (I know how difficult that is) lots of love to all of you and God Bless, I am sending out positive thoughts to you all. Lyndia xxx
Hi lyndia I want to sincerely wish you all the best of luck and please take care of yourself my friend.
My GP but most useful medication (Quetiapine) by Psychiatrist!! If you look into what this medication is for don't be alarmed or put off by the fact it's used for things such as Bi- polar - its given in much bigger dosage to treat these type of conditions - I started on 100mg to 'kick start' and I'm now only on 25mg which I take in the evening for 'almost' always nights of unbroken sleep. I can't say I wake up feeling refreshed but at least I don't have to spend 'dark hours' during night feeling desolate and lonely - so I'd say that's a positive. From my GP I have Tramadol and Diazepam but only use when I'm having a 'Fibro Flare'.
Warm gentle Fibro hugs x
Hi DiddyDovah I want to sincerely wish you all the best of luck and please take care of yourself my friend.
I meant to put in my post that I'm also prescribed high dose VIT D from Dr - I'm sure most of you if not all are aware that people with Fibro are mostly found deficient in VIT D - it appears to help mostly with the fatigue side of Fibro. If you're not already taking it ask your dr for a VIT D blood test - I never thought it was something I was deficient in.
my muskoskelotol specialist asked my GP to prescribe some of my meds
GP prescribed majority of my medication, but some was changed by pain management Dr just before Christmas, all because apparently a letter they sent to my gp in august only turned up in my record 2 weeks before Christmas, so when ordering my pain medication, among other things, the week before Christmas the took me off my 4x30mg dihydracodine tablets that i took 4 times a day with immediate effect, which i was told should never be done as its dangerous, and changed onto 20mg MST twice a day, as they are meant to be prolonged release. this left me going through withdrawal over Christmas and when i say my pain management doctor on the 29th dec he was horrified that they had done it and to 35mg but now i have to show them that they are helping me do more and be more active to let mr stay on them. they dont liten when i say that its only been a few weeks so need longer to see if they are working or not. i just think hospital doctors and GPs need to communicate better between themselves
Hi Hidden I want to sincerely wish you all the best of luck and please take care of yourself my friend.
Thank you so very kindly!
Doctors but they don't want me to have them
did not like the doctors medication suggestions so decided to trial and error my own diet,supplement,herb,excercise, meditation path. so far fairly happy with the way things are turning out. expensive but effective.
Hi Ken it so so lovely to see you back. I am sure that I can speak for everyone that we have all missed you so much. You where very much there for me when I first joined and helped to guide me. I also hope that Julie is well and you are doing well too. Please take good care of yourself my good friend. Love and hugs 🤗🤗🌹🌹xx
