What Treatments Have You Tried For Yo... - Fibromyalgia Acti...
What Treatments Have You Tried For Your Fibromyalgia? (Multiple Choice Available On This Poll).
TheAuthor403 VotersPlease select all that apply:
I have tried most treatments going to be honest but I am still awaiting the one treatment that will do it all and without nasty side effects. However, I suppose we all are?
All my hopes and dreams for all of you
Ken x 
x
I have tried most things going, even elimination diets and positive mental attitude. I resent the drugs and feel them suck the life out of me but they are of limited benifit. Going on experiance I do not respond well to phyisio and exercise really makes me worse, it is more than enough just to try and get through a 24hr period.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
how are you going on with your pen. is it working and do you still get your headache. love to both of you x
Hi dillydaly1
It is going quite well thank you. We have just about got it down to having 3 to 4 inhalations so it works but not too much to give us a headache. The only downside we have both found is that it does not last for very long. It helps with the pain for about an hour at a time but you have to leave it a few hours between inhalations. So it is really good for emergency chronic pain but not too suitable for us for continued use.
I would like to know how everyone else who bought it is getting on also? x
thanks ken, lets all hope one day soon that research will find us something to help us with this awful fibro. x
Fingers crossed my friend x
looks like your having a sleepless night to ken. hello everyone out there whose wide awake when we should be sleeping. hope you all get some shut eye soon. even though wide awake I feel like I could sleep for weeks. x
Sadly yes. My usual night is bed about 4.30am. I am a little stressed though tonight as my greenhouse has become the victim of storm Desmond! I have lost a few plants and some trees as they are badly damaged. The only bright side to this is my coconut tree is okay!
I genuinely hope that you can manage some sleep at some point x
Have you tried the Alex Tech?
Hi,
In the "Other Treatments" option, people were instructed to type in the name of the other treatments.
Can you please share, the names of the 'other treatments' people have tried? I may prove useful to others.
Thanks,
B
Other treatments that members have listed include: Lidocane Infusion, Botox Injections, Hyberbaric Oxygen Treatments, Alexander Technique, Bowen Therapy, Infrared Light Therapy and Elimination Diets.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
Pain management clinic which included sessions on the drugs taken, alexander technique, physiotherapy assistance, psychology of pain - all of which helped towards a better understanding of the chronic pain. A good therapy for me was reflexology. Sadly I could not afford to continue it after several years of good results.
That sounds really good!
Yes I'd like to know what "other" treatment people have tried. I take a cocktail of drugs but nothing works. I spend hours trawling for answers, trying to find a reason for this horrible illness because if we have a reason/cause then it is easier to find a cure. In the mean time I will continue to rattle when I walk with all the pills inside me. 😜😘
Other treatments that members have listed include: Lidocane Infusion, Botox Injections, Hyberbaric Oxygen Treatments, Alexander Technique, Bowen Therapy, Infrared Light Therapy and Elimination Diets.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
Forgot in the poll diet, relaxation and music
I have had fibromyalgia for more than 20 years so have tried everything I could afford to no avail. Now I have reduced my medication as much as possible, got a good vitamin regime, healthy vegetarian diet, still struggling but at least I have cleared my head a bit from the drugs, I am just so allergic to them. I struggle to get out much now, especially since the weather has gone damp, don't know we're else to turn, GP is at a loss, but the pain is unbearable at time's especially at night.
Yes I agree the painful nights unable to sleep is soul destroying.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I have found Gabapentin to be very effective, although it doesn't get rid of all my issues. I also pace my life so as to maximise my activity and minimise the excess fatigue. It works for me although most people would probably find my life quite strange. I am finding that as I get older I am reducing my activity levels further, but it is all about keeping a steady state equilibrium. There is no point in pushing things to the point where I make things worse!
Everything the doc prescribed (usual meds) had horrendous side effects, making me very tired, lose my spatial awareness (I drove my car into someone else's), thirsty and fat. Just on 5 mg of amitriptyline now which gets me to sleep. Have found hypnotherapy reasonably good for sleep recently
I've undergone Lidocaine infusion
And how did that work for you?
I had 3 lignocaine infusions with the dose increasing each time. Unfortunately it didn't work for me but has done for others x
Sorry to say injections did not work for me either. But they do work for sum people. U cud give them ago. U GoT nothing to loose. Take care.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I want to gneuinely and sincerely wish you all the best of luck with this.
All my hopes and dreams for you
Ken
I was initially diagnosed with fibromyalgia by a chiropractic based on the 18 point pain spots and unrelenting muscle and surrounding tissue pain. That, together with a slew of symptoms, many neuro, found in FMS, my doctor concurred. 18 months later I was diagnosed with hypothyroidism, thyroid hormone replacement treatment reduced fibromyalgia syndrome symptoms including chronic pain and fatigue, and brain fog. Previous thyroid tests were showing normal but the final alarm bells were weight gain, body hair thinning, depression and dramatic mood swings. Myofascial trigger point release has been invaluable throughout. Vit D and Ferritin plummeted during that time.
Apparently there are now 21 trigger points. That is the 'score' I was given by my rheumy, 21 out of 21 🐸
....I bet there is more but 21 is common to the majority. It probably was before..but I forget
I suffer from fibromyalgia, but also have to have regular botox injections to control chronic migraines from which I have been suffering for several years. I have had limited success with all forms of medication, and I now never use any form of pain relief as they are all of limited benefit to me and I do not tolerate them well. Instead I take a daily dose of citalopram to keep my serotonin levels up, and supplement this with 5-hydroxytryptophan whenever I need to. For me, the single most useful treatment I have found is an extremely good osteopath. Most of my pain seems to result from extremely tight muscles and I now visit the osteopath on a weekly basis, as I have found that she is able to reduce the tightness in my muscles which significantly reduces my pain. In addition, I have found that any form of exercise that jars my joints exacerbates my condition. However I have discovered that cycling does not have this effect, and I certainly feel much better if I cycle on a regular basis.
I feel for you re. the migraines. Mine are left-sided and often occipital screamers. Have been trying Topomax and Lyrica to no effect yet. Next stop is referral to headache clinic for possible botox. How do you find the injections help you?
Botox works wonderfully. I have gone from 5-7 migraines weekly to 1-3 migraines per three month period. They are much less frequent and also much less intense when I get them. I thoroughly recommend trying them!
What dose of topiramate are you up to ? I've been on topiramate for some years now after having 5-6 migraines a week . Life was hell x
Now I'm down to one a month that lasts for 2-3 days but much less pain.
Love Sally xx
I was on 75mg topiramate twice daily but was still getting 5-7 migraines per week. With the botox I stay on a maintenance dose of 50mg twice daily but in the last six months I have only once had a migraine that I would rate higher than a 6/10, and when I do get one it is usually only about 4/10, and they mostly only last a few hours now.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
other treatment include oxygen treatments but got too tired going and coming back!
I have tried all of the above. The best results have come through the Chronic Fatigue Service at St Heliers Hospital. I went through their year programme and found myself in a much better position to cope with my Fibro and M.E. I still believe a combination treatment method helps most.
I have tried lots of different drugs and other things. I am at present receiving acupuncture for lower back and leg pains. Which consists of 9 needles in my lower back for around 30 minutes. I have this treatment every week for 4 weeks and then 2 more weeks after if the nurse thinks it's necessary. I have had 3 treatments now and my leg pains are not as often so I think it is helping a bit, only problem is the treatment is short lived.
Had fibro for over 18 years. Stopped work 5 years ago so I could pace my days.
Would be good to know what "other" treatments have been tried. Gentle exercise might work for some, but for me, swimming for example, leads to excruciating pain. Yoga is fine so long as I don't have to do anything the following day. Control always comes back to the drugs cocktail I take. As I've progressively lost weight, the doses have lessened, but my best friendscodeine and gabapentin are off the menu while I trial a drug for chronic migraines. Swings and roundabouts cos neither condition is being dealt with properly aaagh!!
Other treatments that members have listed include: Lidocane Infusion, Botox Injections, Hyberbaric Oxygen Treatments, Alexander Technique, Bowen Therapy, Infrared Light Therapy and Elimination Diets.
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
And nothing WORKS ?????xxxxx any ideas ??? x
I find aromatherapy massage helps a wee bit, if I can tolerate the massage
I forgot to mention that pacing is the biggest help of all. I would be totally useless if it wasn't for pacing. Not a treatment as such, but a coping mechanism 🐸
Marijuana
Low sugar diet
Alexander technique
Steroid injections
Tai chi pilates yoga
Energy healing
Meditation, chakra work
Thinking about hyperbaric oxygen chamber next!
Meds suck but I'm not offered any I have to beg for every and anything I've tried. Side effects usually bad!
I wish I had tried some of these options then maybe I wouldn't be in all this pain unbearable
Foam rolling and mysofacial release using tennis ball/ massage balls.
Essential oils eg lavender peppermint (I have loads)
Deep freeze/salonpas
Supplements inc l tyrosine, brahmi, gotu kola, ginseng, etc
Would do sauna massage and chiro if I have the money!
When pain clinic say massage had no effects for fibro I do have to laugh cos they have no idea! no one is in my body n feels my pain.
accupress -shiatsu cycling e bike just to keep limbs moving but always there is a price to pay exercise doesnt make it better . always stiff afterwards and more painful for days
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I have had pain clinic treatments and medication reviews......... After a year they said there is no more treatments for my condition.......
The treatment which has helped me most in the long-term is an NHS course in "Chronic Disease Self-Management" run by EPP Cymru. This has given me practical, physical, psychological and social strategies to cope with Fibromylagia. I have trained as a tutor, which helps me cope even further.
I been trying compression stockings for some time increases blood flow to my legs helps with mussels recovery it it reduces muscle pump so less pain and shorter recovery time wearing overnight increases muscle repair less aching in the morning
Having medium to severe CFS/ME and fibro I have tried everything above. As conditions exasperated by stress have done online stress Mgt and mindfulness course. I had many many chest infections whilst going through a three year period of work related stress which I believe we're the trigger for the illness. I am a level 2 reiki practioner but only practise on myself when well enough. At present following Dr Myhills programme as much as possible but cannot get appt with her to be monitored as she is not taking patients at present :'(. Stone Age diet, pacing, vitamins and minerals and good sleep regime (I wish I could sleep haha! - adrenals still not sorted plus pain intolerable!). Very expensive to fund this on my own though. GP's cannot do tests required ie vit b12, ATP etc as either only funded for specific illnesses or not available on NHS. I have to pay for these myself. GP doing magnesium check however but only serum check and not intercellular one. Thinking of buying my own b12 and magnesium and learning how to inject myself. Jax 💕💤💕
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I had a lidocaine IV Infusion in October and I feel it's working well
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
also tried bowen therepy
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
Others include elimination diets (to good success-for me a personal paleo diet works wonders-see Chris kesser), mindfulness meditation (great - wish I did more often), yoga - can't do this when I am really bad and s.times the addition makes me bad. I also follow Dr myhill's suggestions for supplements for people with CFS ( I was originally diagnosed with this, and later told it was fms).
I spent a long time doing research and found most practitioners treat your: gut health (super important); possible candida; sleep issues; and any deficiency in vitamins and minerals - just being on the low side of normal isn't great for some of us), also looking at your adrenal system and boosting this.
After a year of working on all of these I am back to work - not back to normal but unrecognisable to the person I was last year - and have been for 6 months or more
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
Hi Mjd, just wondering if you managed to get appt with Dr Myhill?
I am following stone age/paleo diet and taking sinatra protocol but no testing or appt available with her atm and for the forseeable future. Nhs GP happy to support within their remit which is very little unfortunately.
It has only been 6 weeks into Dr Myhills advised progranme and tbh i dont have much energy still so often have days when i dont eat properly but try to cheat only by eating more organic fruit. I have found i have been out of bed a little more than ive been but household tasks (cooking!) are still very stop and start and it doesnt take me much to be back in bed. So very frustrating and depressing to be doing everything the book says but not seeing instant results. I did email dr myhills secretary who was very kind to reply and said the whole process can often take years. I guess i just need to stick with it but it would be nice if more benefits were seen quicker! Jax
Hi - I haven't been able to see Dr myhill myslef but have been using her for a while to interpret my results - she also prescribes me with thyroxine. I have had great success with her recommended minerals and vitamins - but it did take a good 6 me nths to see real differences. I then read one of her articles that recommended d-ribose and this has really upped my energy levels enough to be able to take children ou and now work. It is a slow process though - so I wish you luck. Do you use her mineral mix? If not I would highly recommend. I am no longer paleo as I just couldn't sustain it long term but I now know the things I need to avoid (gluten and beans and dairy) to feel better and know I can handle rice and sweet potatoes. Hope this helps - good luck
Thank you., great you havd had good results. I have bought dribose but funnily enough havent added it in to my mix yet! Will do so today in the hope i can geg a lift. I was going to order mineral mix but have so many vitamins that are in it... Do you take that on top of the vits? I was wondering as she gives a stater pack for everyone but then another for fatigue? Do you take both? I wish i could have her tests done and be tailored like you as i feel i am stumbling along in the dark atm. Thanks for encouraging results though.. There is hope!!! Jax 💞
Hi also... (So many questions sorry!) were your TSH etc levels in the 'Normal range' with your GP. Mine have been on the low side for years but doctor wont prescribe thyroxine until ALL levels are consistantly under!! So annoying as i think i might benefit from at least a small dose of thyroxine. Jax 💞
Hello - yes all my thyroid results were 'normal' but my body had very many thyroid symptoms, along with mother and sister being hypothyroid. Now that I am taking thyroxine many of symptoms have gone - such as feeling the cold (to point I was wearing hats in bed and had heating on full blast; also I used to swell up and get odd wheels of soreness around my waist, bra line etc due to swelling - so all this has stopped. There are some natural thyroid treatments out there - i can't remember the names of them though!. (Worth going on to thyroid part of Health Unlocked - they have lots of information).
Re Dr Myhill minerals - I take her minerals and some multivitamins she suggests by biocare. On top of this I take high dose vitamin C - good for many things including low cortisol (I had a saliva test that showed I was low in this), glutamine (for gut health - I have IBS - so do many with FMS), co-enzyme Q-10 (expensive but seems invaluable to my health), high dose omega 3, good quality probiotic (again due to link between gut and FMS - also all of my stool tests have come back with a real lack of certain 'normal' and 'good' bacteria). I also take something glucosamine specifically for joint health (as my joints really are a problem).
HOping some of this helps
Thank you very much for info. I had biometrics test done privately and was told to take supplements l'carnitine, coq10, magnesium and zinc and probiotic.. Since reading doctor myhills book I have added in b12 and b3 and high dose vit c. I am hoping my doc helps me with b12 and magnesium supplements. I have had terrible chest pain in left side but Mri results show healthy heart thankfully. ECG,s show poor output 😰...Back to dr myhills theory of lack of ATP given the percentage of it which is in the muscle. My mum is hypothyroid however despite my sister and I displaying many symptoms have never been offered thyroxine due to strict regulations and docs looking at results not person. I will keep an eye on dr myhills website. Still hope to be monitored but your tips are very helpful in the meantime. I shall order the mineral mix tonight and start taking my dribose! Thank you again Jax 💕
My other treatments include massage, Epsom salt baths, & Yoga. The breathing and relaxation part of Yoga is very effective for me. It seems as though being able to completely relax helps to ease some of the pain.
Diagnosed in 2001............. No treatment!
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
I was curious as to why you were no in receipt of any treatments? Is this by choice?
All my hopes and dreams for you
Ken
I've tried most things too ! Currently I'm having sports massage on my neck because it got to a stage where I couldn't move it one way. I'm pleased to say that it's working at the movement but I've only got to have a migraine or some stress and the stiffness creeps in again. We also have the expense to bare too it costs me £27 a week and ok it is really helping but it's £27 that I could do without spending.
I'm still praying for a cure
Love to all
Sallyanne xx
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
5HT, Vitamin D also
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I have tried infrared light therapy which is great short(ish) term relief. The effect last for days which is much better than tens.
I have been having 4 monthly intravenous lignocaine infusions which when I am well enough to attend are excellent . I'm due to try mexilitine which is a daily tablet that apparently should replace the infusions and work continuously as well.
Also new treatment if relevant Medipen it without a doubt improved my sleep at night I do wonder how other are getting on with there medipens
Thanks squeak xx 🐷🐭
I want to genuinely and sincerely wish you all the best of luck with finding treatments that are right for you. I also know from personal experience that as unique individuals that we all need tailored treatment plans.
All my hopes and dreams for you
Ken
I also tried ActiPatch which helps on a pain that is worse in one area, say, low back, shoulder or leg. It doesn't cost much and you can get a free trial on their website or guy at Boots, if they don't have in stock, they will order for you. When I went to ask St Thomas's Hospital Pain Management in 1997, they gave us stretches to do, which when you build up slowly do help. I am trying to get another copy as I have lost mine. i even did them whilst the pain was horrendous and was crying throughout, but it did help. NOTHING TAKES THE PAIN AWAY, but they do help to keep it down. I swim in a hydrotherapy pool, but not much at mo, then use jacuzzi, which helps get rid of build up of lactic acid which makes you seize up after exercise. It is taking months, but it helps. I use so many devices for different things, my friend I should show it on UTUBE. Ha, ha, wouldn't know where to start. My fibro fog with thyroid and menopause is making my brain act like I have I have nearly no memory. my carer has to check everything I do, which drives me nuts, but as same time at I understand. Having the 3 together is making everything so much worse. Am now trying out of desperation, HRT.
It literally is worth trying anything, even if it only h ps bring it down a little. Sorry can't continue. Brain dead.
LaurieLee
Also, if you can find a massage person who understands FM, that is amazing, but so expensive.
In the other treatments I have tried is Bowen Therapy, it was the best out of everything, but it can be very difficult to find a therapist and it's not available on NHS.
I have been getting reflexology for 3 years + and feel it defiantly helps especially during a flare up.
I have recently been diagnosed with Chronic Kidney Disease stage 3 due to the long term use of Meloxicam I used to control my Lupus. Please please do not use Meloxicam over a long period of time without having a discussion with your Rheumi regarding possible effect on your kidneys. Had I been warned I would not have continued to use Meloxicam. Its what they don't tell you that can really harm you.
I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck with finding some resolution to this issue. Please take care of yourself.
All my hopes and dreams for you
Ken
I have a infra-red sauna........ I find this can help with muscular and joint pains, Also visit the Hydrotherapy pool when I can.
After 10 years of believing all my pain came from RA and a dodgy knee, it became evident that I had FMS alongside mild inflammatory arthritis and osteoarthritis in my knee (cartilage all gone). The RA has been stable for years, thankfully, but FMS and chronic migraines made life miserable. I worked fulltime and the work/life balance took a dive. My ex-husband didn't understand that I couldn't keep house as I wanted because 6 into 4 won't go lol. He scowled at me perpetually. There wasn't much laughter or support in either direction by the end.
After the revised diagnosis, I attended a pain management clinic for 10 weeks (coincident with redundancy so I could attend without losing holiday days!) and which I found very useful and informative. It changed the way I took my medications. Before redundancy, I could afford monthly reflexology sessions which were beneficial mentally and to get a good night or two's sleep in the month! I used to spend many Saturdays helping to fundraise for my local charity, but eventually it got beyond me and I had to give that up too. I did find another job but after 2.5 years of being bullied by a s****y boss, in December 2010, I woke up one morning and found that I could barely move, let alone get ready for work. I have not worked since that day and went onto ESA.
The past 5 years have seen radical changes in my life. I divorced in 2011 after 21 years in what felt like Death Valley! I relocated to Devon. I met the love of my life. Despite these positive changes, I still spiralled downwards for a year, partly because I felt beyond saving. I hit the buffers. Although on ESA, I was turned down for a blue badge despite only been able to walk a few yards on a good day, which was about once a week. Living on my own at that time, my independence eroded to almost nothing. My depression reached dangerous levels and my GP put me on a kind of suicide watch.
Since then, I've clawed my way back. My soulmate moved in. My GP prescribed a huge cocktail of drugs to get a handle on the FMS pain as well as trying to get me into a regular sleep pattern. With mixed results obviously. I piled more weight on. It added to the pain burden. Desperate for change, but not knowing how best to go about it.
Finally, after years of trying, I got a grip on my eating in 2014 and, with the help of 2 bariatric teams and my GP, finally fulfilled the criteria for gastric surgery 8 months ago. (I'd been turned down before my divorce.)
2015 has been a turnaround year for me. The first 2 months after surgery were brilliant. My FMS took a backseat and gave me a much-needed breather. I've shed almost 6 stones since April 2014. Another stone and I'll be over the moon! Never thought I'd get into size 14 clothing in a million years lol. The FMS inevitably surged again but my ability to handle it has improved. I've reduced quite a bit of medication and come off others entirely. Of course, now I need umpteen vitamins and supplements for life, so am taking as many actual pills as before, but that's ok. I still need the steroid injections in my knee unfortunately but with no cartilage, it can't be helped. A hamstring injury is taking its sweet time to heal so I can't go back to yoga just yet, but I still strut about in heels whenever I get the glad rags on.
Not working anymore allows me healing time. Being with the right man means that my mental health is now great. The downside of him moving in meant loss of ESA, but the upside is hugs on demand and lots of laughter, and someone to willingly (important!) fetch/carry when I'm having a bad time. Without his love and support, I wouldn't have made it to this point. Despite the previous 20 years of unhappiness and its many forms of pain, I consider myself lucky. I've discovered that this FMS journey is much better with support. Half of this battle is a mental one. Chronic pain is a major downer. Nothing is likely to cure it. We have to "kiss" a load of "medical princes" on our journey to test which ones we can put together to ease things little by little. My next target is to come off paracetamol, having ditched gabapentin and codeine. However, until my chronic migraines are sorted, there's faint hope of that!
Meanwhile, gentle hugs to all those who need them. I never thought I'd feel like this, so please, never give up hope xx
Thank you so much for sharing your story with us all, it is an emotional tale that I am certain many members can relate to and feel supported by your sharing, so thank you x
I have tried most off them , waiting on the magic table that does the job right ..
Jane
I think we all are my friend!
All my hopes and dreams for you
Ken
My "other treatment" works well. I have slowed down my life and keep my stress level down. I've retrained my body and muscles to be much more relaxed. My pain has dropped significantly. Instead of living with 8/10 pain in the fast lane I live with 1/10 pain in a slower lane. Less gets done, but all of the high priority things get done and I'm so much better. No more being next to tears due to the pain. Much more peace in my life. Yes, more clutter and less perfection, but the lack of pain and the peacefulness is worth it.
This is confusing because I already filled one of these out. Did it not go through to wherever it's supposed to?
Other treatment: Slow down lifestyle for about 1.5 years. Most effective treatment yet. Mission accomplished.
Okay, I don't see your reply at all, except as an email. I will say that I went from an 8 out of 10 pain level daily and a very rushed, busy day, 16 hr. days, to a much slower paced way of life. I gave up a lot of perfectionist goals and let some rooms in the house, for instance, be messier than others, didn't get our income taxes in on time because there was no penalty as long as the gov't. owed us, reset priorities and hit the highest and let many go...retrained myself quite a bit. I still put in long days but took breaks to break any tension and recreate peacefulness, stretch aching muscles and so on. I even took naps if needed.
After about a year I found myself taking on more and more things but still keeping the new, more relaxed me. I now get the message from my body when I need to stop and re-establish my peacefulness. I forgot to say my new pain level became a 1 out of 10. No more limping, or out-of-commision-arm or ESI's except 1 which I think wasn't necessary after all. I call this success! What more could I ask for? The cost is right, too. I don't just pop a pill, I take my "system" wherever I go. Granted, I'm on Sulfasalazine, leflunomide, prolia, hydroxychloroquine, gabapentin. I must give them credit. But I was miserable taking them before and now I'm not. I know how to stretch and move to relieve tension in muscles and ligaments that are tightening up on me due to getting educated in physical therapy. I give these helps credit also. But the big difference came when I finally trained myself to take life easier and much slower and listen to my body.
It sometimes seems that other people have done this or partially done this without realizing what they have done. I had such a huge change to make it was a very obvious effort for me.
I am so genuinely sorry that you do not see my reply except as an email. What you have achieved is very impressive and the goal of just about everyone on the forum. I want to sincerely wish you continued luck with this.
All my hopes and dreams for you
Ken
Acupuncture left me covered in painful bruises, felt like someone beat me with hammer. physhio exercises useless was sore for longer than normal afterwards, stuck with only few meds can tolerate without being very sick or a zombie.
I am so genuinely sorry to read this my friend and I have to admit that I did not get on with acupuncture either. I did a lot better with physio and still do my daily exercises. Also sorry that medications give you problems as well. Fibro can be very cruel, please take care of yourself.
All my hopes and dreams for you
Ken x
I have tried everything that has been offered or suggested.
However, nothing seems to give me pain relief just enough to cope.
I use heat a lot in bath shower form and those beanies in the microwave!
Heat pads are great for pain. Found the Wiccy Magic massage bar from Lush that has cinnamon and peppermint in it which warms the area which is a miracle worker
I have been treated for what I have called a physical depression for the past 2 years and have been better on Amitriptiline but this caused me changes in my taste and led me to eat a lot of sugar based foods as had cravings and was diagnosed with diabetes in November due to this and I had gained weight.
I have now started on Venlafaxine as all other SSRI,s made my restless legs much worse.
Still unwell and am increasing dose gradually but tolerating this one and will ask for investigations for diagnosis as my fatigue,brain fog and pain are keeping me off sick from work again,last off 2yrs ago. Need by brain to work again as I am a mental health nurse and wards are very demanding mentally.
Cranial osteopathy and skilled herbal anti-inflammatory treatments have helped. Hyperbaric oxygen treatment as offered by the MS Society charity is very helpful. Only had 2 weeks treatment as moved house. It's not widely recognised despite having had such positive results from a US study
I've tried cbt
Hot showers with low dose pregabalin,opiates
supplements, chinese medicine
